How I'll Win This Cancer Battle
Dave, Plenty of prayers headed your way as well. The feeding tube? I got some experience there. I had one for right at 6 months! The “mix” they had in my pump, was- Promote® High-protein liquid nutrition with fiber. It claimed to be “Vanilla flavor,” but when I tasted some It tasted like raw chicken and cat-poo with some vanilla flavor added. Grossest stuff ever. But, it did give me ALL of my nutrition needs for quite a while. Here’s a link- http://store.darisimall.com/308411.html
The tube that goes in through the belly is held in by a “balloon” Sort of structure. The tube itself can get clogged or partially clogged As the liquid “food” sticks to the insides of the tube. A little water between bags of liquid nutrition will keep it “flushed.” Mine had an additional port where I could “feed in” meds. Crushed B-1 vitamins dissolved in water, Effexor, etc… The skin right around the entry of the tube Can get slightly irritated and will need to be cleaned fairly often. Just swab it with a Q-tip and add a little Neosporin around it. Mine had a “split-pad -4x4 Gauze Sponge” that kept it clean And dry. It had to be taped on to the skin. Use a “Skin-Prep” wipe to cut down on irritation of repeated taping. This is the type I used- http://www.metromedicalonline.com/420400.html
Since I was unable to have anything by mouth- (NPO)
For quite a while, I used these little “sponge-on-a-stick” things
That I got from the hospital.
Some were just for water, but others had mint or lemon flavor.
I think the lemon type had glycerin or some such that helped
Keep my mouth from being too dry.
Do have your Bariatric Doc be in touch with your Chemo/Ra therapy folk.
Who ever is setting up your tube feeding business
Should make sure they have all the info from the Bariatric Surgeon.
Hollar if you have any questions…
I drug my feeding tube and pump and bag around for quite a while.
It’s a pain, but will keep your energy up.
Keep us posted!
Best Wishes-
Dx
Doug
If we're treading on thin ice we might as well dance.--Jesse Winchester