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Topic: Life goes on.....
I have just started going to Pt twice a week to help get things back on track. I have Lymphedema in my lower leg and I must have been over protective of myself. For I have gotten lazy every since my last hosptial visit. So I am trying to get more active and it is a chore because for the few months I have not done much out of fear that if I over did it I would be back in the hosptial once again. Lesson learned thou, if you have lymphedema you still can/need to have a life just be a bit more on the safe side. A good doctor/therapist can help you get more active and have a better life by doing so. If you have pain as well as the swelling from your lymphedema let them know - my leg get to swelling a bit - the pain gets stronger, it is a trigger, so I know not to over do it. The right support stocking works wonders. I now wear a 40-50 mg support stock(open toe) made by the juzo company and it works alot better than the one I had from another company. I hope in time this message board does grow so that we can exchange our feeling of differnt doctors/therapist and products aimed to suit us with lymphedema . I had to go thru 5 or 6 doctors to find the one I have now and she is good as gold and to boot she know about lymphedema first hand not just out of a text book as many do. Do your research on the doctor(s) that will be treating you to see if they meet the requirements you need to be treated fully/fairly.
Topic: RE: finding a Dr???
http://www.clt-lana.org/therapists/default.asp
http://www.acols.com/find.html
http://www.klosetraining.com/pages/therapistdirectory.html
These link be of use to you as well - good luck. I didn't have a problem finding a doctor to help me because I had a decent caseworker that found the doctors I needed. I have 2nd lymphedema in my lower left leg from an accident that occured a couple years back. I realize a good doctor is important to making life more better.
Topic: RE: finding a Dr???
The Lymphedema Consultants [T]
Home Office : Pittsburgh, PA
Telephone : 412-364-3720
Fax : 412-364-3119
E-mail : [email protected]
^^^ They teach class but I am sure they can help you find doctors in your area.
also found a list of doctor but this is not a full list just a quick search -
PENNSYLVANIA
Allentown
Good Shepherd Outpatient Rehabilitation
Denise Rios, PTA, CDT, CMT [2A]
Mary Hontz, COTA/L, MLDT
610-776-3220 or 610-402-9292
Orthopaedic Associates of Allentown
Jane M. Roche, COTA/L, CLT-LANA [2G,1LL,1*,2]
610-433-6045 ext. 497
Everett
Lymphedema Care Center
Katherine C. Erlichman, DO [1G/]
Michelle Soliday, RN, CLT
814-623-3838
Lansdale
Central Montgomery Medical Center
Joy Haynie, PT [1G,1LL]
Yilei Zhu, PT
215-361-4531
Mercer
iXL Rehab, Exercise & Wellness Center
Michael J. Sharr, MPT, CLT [3A]
Diane Sharr, MSOT, OTR/L
724-662-1776
Philadelphia
Fox Chase Cancer Center
Wilma Morgan, OTR/L, CLT-LANA [3LL,3]
Cheri Doll, MSPT, CLT-LANA
215-728-7000
Penn Therapy & Fitness
Joy C. Cohn, PT, CLT-LANA [1V,7G,2]
Linda Boyle, MS, PT, CLT-LANA
215-614-0674 or 215-662-4794
Pittsburgh
Allegheny & Chesapeake Physical Therapy Lymphedema Rehab Centre
Suzanne Wagner, PT, CLT-LANA [1T,1]
800-332-5740 or 412-661-5578
Centers for Rehab Services
Lisa Mager, MPT, CLT-LANA [1A,3G,2N,1S,3]
Susan George, MS, PT
724-742-9770
Squirrel Hill Physical Therapy Center
Cynthia Stein, LPT [4V]
412-422-7022
Pottsville
Schuylkill Rehabilitation Center
Patricia Gregas, OTR/L [2*]
570-621-9500
Windber
Joyce Murtha Breast Care Center
Elizabeth Pile, MOT, OTR/L, CLT [1S]
814-467-0044
Wyndmoor
Chestnut Hill Rehabilitation Hospital
Anne Lowry, PT [1G,2N,1]
215-233-6338
Quick search from http://www.lymphnet.org/resourceGuide/treatmentCenters.htm#PA
Topic: finding a Dr???
I saw my PCP and he flat out told me he has no clue how to treat my Lymphedema (or Lymphangitis and he is now calling it) he said he wants me to be seen at a hospital with more exposure to things like this (he is affilitated with the main hospital in our small town) Hershey Med Center is close, only 20 min from me, so he wants me to go there, but cannot recommed anyone for me to see, so in the meantime, he wants me to check with Dr Marymor, who did my WLS, I just happen to have an appt with him on the 18th. I am not sure he will be able to help since his specialty is WLS.. does anyone have suggestions for finding a good Dr, or ideas on where I might possibly look??? I live in PA, not far from Harrisburg, Lancaster, and Philly is only 2 hours away. I did check out the therapists list, and there are 2 in Harrisburg, but would I need to see a Dr before calling the therapist? I am so confused by all this, finding Dr's has never been easy for me I really could you the help of you all. thanks in advance
Topic: RE: Take a minute to.........
Thanks for the reply. I do hope it become a bit more active . I check it on a daily bases just to see if I could have missed anything.
Topic: RE: Recommended lymphedema Dr. in PA/MD?
Katie,
I'm not sure if you ever got a reponse via email so I wanted to see if I could help, there are several really good therapist in your area.
Take a look at this link:
http://beta.obesityhelp.com/forums/lymphedema/postdetail/29.html?vc=0
There are some therapist links at the bottom to help you.
Amy
Topic: RE: Take a minute to.........
Thanks Robert, hopefully we can get things a little more active here. I know sometimes because the board was placed kind of hidden people didn't know about it, hopefully now that they have moved it under medical conditions more people will start coming here.
Amy
Topic: RE: My lymphedema is doing great
When you get your surgery and you have the weight come off that will help a lot. However even now after I've lost a great deal of weight I'm still having issues with them swelling on me. I have to make sure that I'm using compression hose as much as possible for them to maintain.
Amy
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