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Topic: RE: Appt with a therapist tomorrow
With a bit of work I would think it should get better for you. MLD (Manual Lymph Drainage) . The wrap while you sleep is important and it is not to hard to learn - but it gets old quick but very much needed to help keep the swelling down, I do it nightly. The Compression stocking - they are waiting till they can get the swelling down a bit, I am sure. They did that for me . I normally do 2 MLD's a day morning and night - you and your therapist will deide on what is right for you .But for me I do one after I take the wrap off in the morning -and then again when the stocking comes off and before the wrap for the night.
Good luck
Topic: RE: Appt with a therapist tomorrow
Robert, I am glad to hear the therapy is working for you. And thanks for the link, it was interesting reading. After meeting with the therapist today, I am hopeful this can be managed now that I have someone who knows what she is doing. I will being therapy 2 X's a week for 3 weeks to start, since my case is relatively mild at this stage, she is hopeful that that will be enough, they will train me on the MDL massage (or is it MLD? I worked all night, and have only slept 1 1/2 hours today, I am wiped out, whichever) and on how to apply the bandages, and she will be fitting me for a compression stocking.. with summer coming, I am not looking forward to that part, but hey, if the pain and swelling decrease, that is all I care about right now.
I wish you continued success and relief with your therapy sessions!!
Topic: RE: Appt with a therapist tomorrow
Good news!! I have been seeing a therapist twice a week for a while and it has helped me out greatly. While I still have pain in my leg it is not as bad as it was before I started. My range of movement is a bit better but not even close to the pre-lyphedema days.
IF time permits for you - someone sent this link to me to check out and thought I would pass it on. http://www.lymphedemalighthouse.org/ Their based out of GA but the information might be good for you .
Topic: Appt with a therapist tomorrow
I am so excited, my PCP actually listened to my request and called in the authorization to the therapist I located (thanks to you, Amy!! ) I go see her tomorrow at 9 am.. it is about a 45 min drive from where I live, but nothing I am not willing to travel to get the help I need. Thank you all so much for your continued support!! I will let you know what happens
Topic: RE: My PS stated that I have lymphedmia
The massage : manual lymphedema drainage (MLD) I myself have Lymphedema so I have been thru it, I wear a support stocking during the day and a wrap at night to sleep in. On a norm a do 2 MLD's a day morning and night . They have not found a cure but they can do things to make it more bare-able. ALso if you do not know there is also a yahoo group for lymphedema I found out about it a few days ago. Lymphland
Topic: RE: clueless PCP
Thanks Amy.. I am going to stay on him and if he won't refer me, then I am going to call the surgeon who did my biopsy and see if he will, if not him I will find someone to do it! I won't let them forget me and discourage me. Right now it is a mild case, and I want to keep it that way.
Topic: RE: My PS stated that I have lymphedmia
Well Thank you very much Amy.
Maybe with some of the theraputic massage that I saw someone writing about, I can wear the hose less time.... we shall mention it to the doctor.
Thank you
Topic: RE: My PS stated that I have lymphedmia
Carol,
Hopefully with time it will improve. I don't always have to wear my compression hose, but if I want them to stay half way looking ok I do. It's a pain I know.
Amy
Topic: RE: My PS stated that I have lymphedmia
I can not imagine having to wear these HOT stockings forever... they are hard to get on & take off...and I can not even imagine doing this when I turn 40, or 50 or even 60 years old...this is not a Good thing in my eyes... definately not worth it, I would rather have kept the skin and been able to wear shorts in the summer
Topic: RE: My PS stated that I have lymphedmia
Once there is damage to the lymph system there really isn't much they can do for it except to help you manage it better. Lymphedema is not something that can be cured, only managed. If you wear the compression hose that will help to control it better, I have to wear mine all the time to keep them maintained, I can take them off, but after having my legs down I'll start to swell without them.
I know this is depressing, it's very depressing to me a lot of the time. The compression hose is the only thing that has helped me.
Amy
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