Recent Posts

Amy Williams
on 5/2/07 2:58 am
Topic: RE: Lots of questions
When you have the massage done, are they doing your complete body and not just the abdomen?
Pam A.
on 5/2/07 1:28 am - Northeast, WA
Topic: RE: Lots of questions
Amy, Well my doctor didn't know what was causing the rash, either, and agreed that it might be a system overload, but that unless it got worse to just wait and see what happened. It's slowly been getting better, but it's still there. I am back to wrapping both legs so I'm making progress again. And I've started back on my exercise bike, but for only ten minutes at a time and will see how that goes. Between the not exercising and not wrapping, I've been putting weight back on. Granted, it's only three pounds, but after so many months of losing weight, that seems like a lot! My PT did give me some additional massage for my abdomen to try to move things along, but now I think that some fluid is building up on my upper legs, which weren't a problem before. I'm not looking forward to having to wrap the upper legs, but I don't want to give up on this! Thanks for your insight into things, and I will keep an eye out for any sign of infection.  Regards, Pam
B. McCoy
on 5/1/07 9:06 pm - Columbus, OH
Topic: RE: Any Dr. Katzen patients develop lymphedema?
I was wondering if you had surgery already?  - I am a katzen patient and would be willing to discuss lymphadema.
Amy Williams
on 5/1/07 5:16 pm
Topic: RE: Any Dr. Katzen patients develop lymphedema?
Molly,

Have you gone through the surgery already?


  I've lost over 400 pounds!  
I love helping others, if you have a question just ask!  


Click on a link to read more about my journey:  
My website   My reconstructive photos 

Amy Williams
on 5/1/07 5:06 pm
Topic: RE: Abdominal CT
Many times this is NOT an effective way to find out if you have lymphedema and even if they find a blockage or damage to the lymph system there is little if nothing they can do except tell you, you have lympehdema. Most good therapist can tell by sight if you have lymphedema. I've seen people go through the testing to try to see and they later tell me it hurt or was a huge waste of time. It can also make your condition act up if you do in fact have LE. Personally I wouldn't do the test. I would find a therapist in your area and get their professional opinion. You will find that very few doctors know or understand how LE works or how to even treat it.


  I've lost over 400 pounds!  
I love helping others, if you have a question just ask!  


Click on a link to read more about my journey:  
My website   My reconstructive photos 

Amy Williams
on 5/1/07 5:01 pm
Topic: RE: Lumphodema and osteoarthritis
Sorry I cannot help, but I've seen on the yahoo groups I am on that knee replacement can sometimes make the condition have more swelling, but as long as you maintain therapy and low leg wrapping you should be able to contain it. With any surgeries with already LE there it can make it worse or better, you really never know the outcome.


  I've lost over 400 pounds!  
I love helping others, if you have a question just ask!  


Click on a link to read more about my journey:  
My website   My reconstructive photos 

Amy Williams
on 5/1/07 4:59 pm
Topic: RE: Lots of questions
Pam,

Have you had anymore luck with this? I just wanted to say that exercise in some instances can really effect your lymphedema in your legs. If I do too much with my legs in the form of exercise I have this problem and they tend to swell on me even more. This is a very unforgiving condition.... Sigh..

If the circulation is not going well with the therapy then it can move to another area of your body such as your panni or chest or arms. Just keep your therapist informed. As much as the wrapping is a pain, it was well worth it. Also remember that sometimes when you do therapy the area that has accumulated the protein based fluid from the LE is a base for bacteria to form and sometimes it can wake things up and cause infections to develop. Usually antibotics are very helpful, but can cause cellutitus as you have had. Don't give up, I know it is a pain, but the more you try the better your outcome can be for you.


  I've lost over 400 pounds!  
I love helping others, if you have a question just ask!  


Click on a link to read more about my journey:  
My website   My reconstructive photos 

Pam A.
on 4/24/07 5:19 am - Northeast, WA
Topic: RE: Lots of questions
I did have gastric bypass surgery about 16 months ago and have lost 203 lbs. My lymphedema/lipedema is located in my lower legs, so that is all that we have been treating. As you learn about clearing the lymph system, the gut is a major player in the process, so my PT thought that some of the fluid we were trying to clear was sitting in my panni. She has showed me some additional clearing exercises for there, and it seems to be better.  Still no answer on the rash.She thinks that it might be a sign that we have overwhelmed my lymph system with the treatment, but even though I have reduced my wrapping to one leg at a time, the rash is still there. I've got an appointment with my doctor this afternoon to see what she thinks about it.  I have had two bouts of cellulitis. The last one wasn't a very severe case, but the one years ago put me in the hospital on IV anitbiotics for six weeks. Not an experience that I care to repeat. The most discouraging thing is losing the progress that took four weeks to make in a matter of days since I've only been able to wrap one leg at a time. Not to mention that each treatment is a 270 mile round trip. I like living in a small town, but it sucks when you have to travel so far for medical treatment. Good luck with your treatment. I hope everything goes well for you.  Pam
jdruski
on 4/23/07 3:36 am - Philadelphia, PA
Topic: RE: Lots of questions
Pam, I wish that I could help you, but I am going to start my treatments at the end of summer.  The therapist that I am going to told me that a bike is good.  She also recommended Pilates and Yoga, low impact stuff.  I know there is a lady named Amy who is a part of the OH family and she is a weatth of information.  I am going to be talking with her real soon. Do you also have the lymphadema in your pannus?  Have you had the surgery?  Do you get cellulitis? Good luck.  Keep posting as I would like to follow your progress
jdruski
on 4/22/07 9:00 am - Philadelphia, PA
Topic: Lumphodema and osteoarthritis

Hi, I have almost decided that I am going to get my knees replaced early next year. My question, is there anyone out there who has had the operation and also had lymphadema. I am only mid way to my goal, but I have a long road for that. Any information would be helpful. I have stage 2 in my calf and stage 3 in my lower area around the ankle. Nothing above the knee. Thanks. Jeanne
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