Recent Posts

maris_38
on 1/4/09 1:47 pm - Orlando, FL
Topic: RE: Dealing w/ LE & living alone
I too live alone - and due to my weight was not going to be able to manage applying compression bandages.  Since I was about to have WLS I figured custom compression stockings would be a waste since I expect my leg size to reduce. 

My PT helped me find a compression device made by a company called "Circaid" - called the "Ready-fit".  Now this is for lower leg only, but I believe they made some similar items if your issue is with the upper leg as well.  Not only am I able to get them on and off by myself (they are pretty easy) but compared to custom compression garments and Reid sleeves etc they are "cheap" (about $150-$200 per leg - compared to $1000+ for the other items).

Best thing I did was seeing a Physical Therapist who is certified for Lymphedema and manual lymph drainage - she was awesome.

One other thing - not sure if this will help you but might be worth a try.  My PT reccomended using Eucerin 'original formula' lotion 2x daily.  She said that particular lotion has a PH balance that helps inhibit bacteria and helps (along with the regular moisturizing) inhibit ulcers.
maris_38
on 1/4/09 1:37 pm - Orlando, FL
Topic: RE: Too fat for therapy!

I would suggest trying a Physical Therapist - not an MD.  There is special certification PT's can do in Lymphedema therapy.  I have lymphedema in both my lower legs - and when I had therapy I was 330+ lbs - my PT told me I was one of her 'medium' patients.  The process with these PT's can be very long - they do manual lymphatic drainage massage and bandaging (and don't use machines) - but I would have to say that my PT was wonderful, no condescention and nothing but helpful.

(deactivated member)
on 1/4/09 11:02 am
Topic: RE: Too fat for therapy!
I think it is just this particular doctor's preference not to treat morbidly obese patients.

I will likely have to go out of town for treatment.
Brenie
on 12/30/08 8:57 am - Abita Springs, LA
Topic: RE: Too fat for therapy!
If it is considered medically necessary it will pay for it, what supplement do you have for your Medicare, I have Humana Gold and just had a pannieculectomy done on the 10th of December and what do they mean you are too fat to have therapy I was shaped that away before losing 250 pounds I am still bigger in my hips and legs and have lymphedema in both legs. I had therapy for the lymphedema way before the gastric bypass and had very good results.

 

Batwingsman
on 12/16/08 6:43 pm - Garland, TX
Topic: RE: Need feedback from Pump users
  NO!   pumps = bad idea ..    Chronic use of pumps w. LE has been shown to displace the lymphatic fluid into adjacent healthy tissues and, over time, spread the LE to them .    Currently MLDT + sleeves/stockings/wraps are the only way to properly manage and control  LE ..

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... "

HW/461 LW/251 GW/189 CW/274 (yep, a DS semi-failure - it happens :-( )

jdruski
on 12/8/08 2:58 am - Philadelphia, PA
Topic: RE: Pannilectomy and Lymphedema

Hi,

I know what you mean about having a hanging apron.  I had my first panni done 5 years ago as a means to help lose weight, they removed 50 lbs. of skin and fluid.

I had my second panni and hernia repair this past January.  I had wound complications and wound up on a machine to help speed up the healing.  This panni was more painful and I was overall miserable.  But once I got back on my feet (it took 10 weeks off from work and another 2 months) I am so glad to have had it done.  I still have 100 lbs. that I want to lose but having the panni removed has improved the appearance of my lympho leg.  It only swells once in a while.  I am planning on having my knees replace January 2010. 

Go for the panni it makes a big difference.  Let me know what your situation is, weight loss, lymphedma problems, etc.


Jeanne

Batwingsman
on 12/7/08 1:48 pm - Garland, TX
Topic: RE: What's Up W. Our Banner Pic?
 Hi Jazzbabe!   

  Yep, "Bat" is fine ..    lol  ..

  Wow Mishawaka ...  My dad had a traveling band up in that part of IN back in the late '40s and early '50s ..   They played many a dance hall, bingo parlor, wedding, etc. in N. Indiana and around the Lake Shore in those days ..   even played on W.W.A.E. in Hammond ..   They were kinda dubbed "the rumba kings" back then, but played mostly polkas, waltzes, Dixieland, etc.  ..      Dad grew up on a farm in La Porte ..

   I found the WLS didn't seem to make my LE that much better (although my surgeon swears it looks better!) but it did make it more manageable, since I can do my own massages and compression wrappings now ..  So I'm more "compliant" ..   Those nifty, custom-made "Ferra Wraps" make it a breeze, too ..  Just slip 'em off to shower, and then right back on ..

   The hardened tissue can be a PITA ..   Have you tried the "eggcrate foam" wrap remedy yet?   If you wear it for awhile, it will soften the tissues back up about 80%-90%, I've heard .. 

   I am a bit nervous about PS, as I'm worried that surgery in those areas might trigger the LE to occur in those same areas later on ..  I will need a LOT of assurance from my PS before I allow him to do it ..  (Dr. Kuster has a LE specialist that he works with, btw, Dr. Cardoso, there in Brazil) ..  

  Best of luck, and please let me know how things progress with you ..

  

  

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... "

HW/461 LW/251 GW/189 CW/274 (yep, a DS semi-failure - it happens :-( )

vinnigirl
on 12/4/08 8:19 am - El Dorado, AR
Topic: RE: Pannilectomy and Lymphedema
Jeanne,
How did everything go? I'm interested because I think I may need a panni.  Need to lose more weight but nothing seems to fix the apron problem.
vinnigirl
(deactivated member)
on 11/29/08 7:08 pm
Topic: RE: What's Up W. Our Banner Pic?

Batwingsman (may I call you Bat for short?)

I'm pre-op for DS.  My big day is February 25th.  I'm certainly hoping the weight loss will do the trick, or at least help, but I'm guessing not because of the hardened tissue.  My PHP is telling me they'll have to take care of it during my future body lift  (no question about that either - my skin's been stretched out all my life, and I'm going to be 51 in January).

I just got the lymphedema within the past five years, with a sizable weight gain after prednisone treatment for SLE (systemic lupus).



Batwingsman
on 11/29/08 6:59 pm - Garland, TX
Topic: RE: What's Up W. Our Banner Pic?
 Howdy Jazzbabe!   < waving >

  Wow .. a fellow DSer ...    We don't get many of those around here of late ..  (actually, we haven't had much POSTING of late ..   &:-(..  )

  So, has your LE seemed to have ameliorated any since your sugery? 

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... "

HW/461 LW/251 GW/189 CW/274 (yep, a DS semi-failure - it happens :-( )

Most Active
×