Recent Posts

rthomas
on 1/31/10 12:34 am - bham, AL
Topic: lymphedema
what can i do about my lymphedema
chel5507
on 1/16/10 5:56 am - United Kingdom
Topic: RE: Before and After pics of legs
Hi, just wondered what type of weight loss surgery you have had. I am 57 always had large legs but put this down to stopping sports and vasically got on with it.

Until my doctor noticed my ankles once when visisting her in a dress, then she sent me for tests etc and diagnosed lipodema, ok now we have a name for my large legs and batwing arms.

I had some lyposuction in the buttocks,thighs,stomach and had the fat cut off my arms, but that has all started to return .

Well done for putting the photos on and would be grateful as new member to know how you did it.
Niknik0071
on 1/13/10 11:26 am - Smithtown, NY
Topic: RE: Lymphedema and dating
Thank you sooo much for sharing your story.  It helps alot just to know that similar issues have gone through other people's minds as well as my own.  Of course topics such as treatment and long term care are important, but what about other underlying issues or even the psychological ones that don't get brought to light about this condition.  I am currently working on reducing my lymphedema and my weight.  Of course the two go hand in hand.  I am still learning to accept myself as I am even as I continue on this journey.  Again, thanks for your response!

Nicole
maris_38
on 1/13/10 10:00 am - Orlando, FL
Topic: RE: Questions
Hey Sarah,

Would love to meet up with you any time you're in town!  I've enjoyed following your posts on all the boards I've seen you on.

As for the LE - that's a high compliment considering that you're the authority!  I guess two years of nagging from my nurse practitioner before I got treated finally sank in (that and the pain of constantly putting off doing anything about it).  Guess I had to learn the hard way!
maris_38
on 1/13/10 9:57 am - Orlando, FL
Topic: RE: Lymphedema and dating
It's always a difficult question - because our own perception of ourselves is our biggest obstacle, in my opinion.  In my case, my LE is in both lower legs, but has improved a lot as I've lost weight. I looked (and felt) like the Michelin man when I was having MLD to reduce the edema and was bandaged from toe to thigh.  Definitely didn't feel sexy in any way then. Thankfully,  I can now wear regular medium compression socks, and I basically look like I just have fat, creased ankles and slightly puffy legs and feet.  So I wear trousers and full coverage shoes and it's not at all noticeable when I'm clothed.  Would I like to wear pretty, short dresses (or at least something that's around the knee)? Yeah... I still hope I might get there, but even if I don't, I've become pretty comfortable with where I'm at.

I've recently become involved with someone who seems to think I'm pretty hot just the way I am and didn't even notice... even when things eventually ahhh heated up.  I didn't bring it up until I had to put my socks back on when getting out of bed (I can't be vertical without them, unless I want my legs to balloon up).   It was no biggie for him (frankly I was more worried about the saggy skin I have in other places, but that doesn't seem to be an issue either). 

My advice, for what it's worth, if they know what you look like (and with online dating I make sure they have recent photos), and you take it pretty easy before pulling the intimacy trigger, then (if they're any kind of decent human being) it shouldn't be an issue.  Everyone has their own baggage, it just may not be as visible as LE legs.  I think if you accept yourself the way you are, and are matter-of-fact about your condition, then it's likely not to be a big deal for someone who has begun to care about YOU.

That said - yours may be much worse than mine, so proceed at your own comfort level.
D. Scott
on 1/13/10 7:32 am
RNY with
D. Scott
on 1/13/10 4:41 am
RNY with
Kermit P.
on 1/11/10 7:16 am
Topic: RE: Lymphedema and dating

It is very tough......I am no longer dating the man I was (who was very accepting) so dating again is scary.  I am also contemplating weight loss surgery and this is why I have started viewing this site and seeing how others have done.  I was just diagnosed with lipedema last year but my weight has steadily creeped up since this started apprx 3 years ago.  I do not want to be disabled and am unsure what to do.

I agree with you too that life is not just about finding "the one" and that happiness can come from so many directions.  Life does not always turn out the way we thoght it would and we can adjust and enjoy life and embrace joy in others ways.

Blessings to you in your journey,

Jennifer

Niknik0071
on 1/11/10 2:28 am - Smithtown, NY
Topic: RE: Lymphedema and dating
Thanks for your input!  Yes, it's tough to get over that initial hump of insecurities....but for those of us with significant lymphedema...who can blame us   I'm still looking for the right person who be as accepting as your special someone, but I'm also prepared for the possibility that it may not happen.  I still believe in keeping my head up and taking pleasure in the simple things in life

Nicole
Kermit P.
on 1/10/10 10:03 am
Topic: RE: Lymphedema and dating

Hi Nicole,

I was self conscious too but with some time  while dating someone recently, I was able to trust and he was very accepting.  I will tell you though that we had to negotiate having the light on or off though!  That may be too much information but as the other writer said, as you get to know someone and they get to know you, the rest usually figures itself out.  It is hard though especially if your lymphadema is quite severe. We tend to notice it so much more as well.

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