This is several months late but maybe it will help others.

I have Lymphedema, mostly on my thighs. I have large masses hanging on them but my whole left leg is swollen all the time. I had a very large mass on my left side and a small one on my right, both on my abdomen, which I had removed before my weight loss surgery because it was hindering my mobility too much. The mass on my left side weighed 33 pounds and the smaller was 4 pounds. Recovery was hard for the first week, but it was well worth the surgery. It not only removed the pounds but I can now get up and down much easier.

I also have a mass on my left breast which bugs me and I am hoping to have it removed one day.

I am having another mass removed from my upper thigh on July 20th this year. The mass hangs over my knee causing a lot of pressure which is also keeping me from walking much. I am nervous, but looking forward to having it gone. The rest of my Lymphedema will most likely wait until I reach my final weight loss goal, but I don't regret what I have already had taken off and what will be removed later this week. It does help tremendously with mobility. Just make sure to talk to your doctor and together decide if it's the best option at the time.

I had a benign tumour removed in 1996 and since have had many problem & am on numerous meds which cause weight gain & fluid retention. I fell in 2005 & was diagnosed with primary Lymphedema.

i am due to have the sleeve surgery within the next month or so but I have many questions the doctors have failed to answer.

i have diabetes insipidus so i have to drink at 3 litres per day, i'm on steroids, which are regularly increased when I have infections causing further weight gain. I did lose just under 100lbs by healthy eating but have since put it back on due to illness & meds so i'm hesitant about getting surgery.

can anyone give me advice?

You GO Sarah!! I'm really proud of you for leading this ( necessary) charge ...

I have lymphedema. I have very few masses which is weird given that I was over 750 myself. Multiple women in my family died from lymphedema and so I am taking it very seriously.

Do you get treatment from a specialist? I would consult a lymph specialist, because often reconstructive surgery can damage the lymph tissue and exacerbate the issue. you may have to have it removed anyway though because over time the lymph transforms into fat deposits.

I use special wraps right now, and just ordered compression garments. They absolutely help and it's ridiculous the degree to which they do. I have lost 11 pounds since starting OT last week. Crazy!

I just got measurements taken for the custom lymphedema garments. Only one or two places in the world makes them and it's located in Germany. They actually aren't elastic, but are inelastic. This means they don't stretch...it sounds weird, however the improvement with the lymphedema is like night and day.

Get evaluated for lipedema too if you can, by a specialist. They have special liposuction they can do for that, which helps both the lipedema and the lymphedema. It uses water rather than the cannulas so it preserves the lymph tissue.

I didn't notice the date on the OP.