Sorry to hear you're not being treated with respect....My husband had Lymphadema and we traveled all over to get help for him....I had to wrap his legs at least twice a day ...he refused to elevate his legs and always sat up in a chair overnight...His doctor called him "non compliant" and gave up on him....He died at 59 and I miss him sooo much....Please shop aroung and get someone to help you....There is a Lymphadema clinic in Traverse City Michigan.   Best wishes with your [email protected]

"If you have any questions about being Disabled, become a free member of The Disability digest and get the answers! Get free seminars and links to various disabilities at the #1 source for all disability needs."
www.thedisabilitydigest.net/342.html 

Before my left leg got so very swollen, I had trouble finding clothes to fit because of my weight. I have been wearing sweatpants for years because I could not find jeans that fit. But now, my left leg has grown so large because of lymphedema that I cannot find anything to wear. I have one pair of sweats that kind of fit, but they are wearing out and soon I will literally have nothing to wear.

Is there anyone that I can go to that could make me sweatpants based on my measurements that will not drag me over the coals because of my freakishness?

It is as hard as hell for me to type this... I am in tears... please, help me if you can.

Gary

I am definately going to report her verbal abuse to my doctor. I am on a waiting list with another one, and I just wi**** would hurry up. Thanks for your support.

I started my lymph-edema treatment today, and my therapist is a real witch!!!! (exchange the W with a B) All she kept talking about was for me to exorcise and lose weight and my lymph-edema is due to my weight!!!!
I have gained about 110 lbs since last November, and it certainly is NOT what I am eating. I have digestive problems so I eat mostly soft foods like low fat yogurt, peanut butter and banana sandwiches and Slim Fast. Lately, I have even gained 14 lbs in one week! My primary care doc said it is most definitely due to my lymph-edema swelling out of control. My lymph specialist said it is from what I am eating and not exercising.

She said my weight is crushing my lymphatic system and that is why I have lymph-edema! I lost 120 lbs and had a panniculectomy. Last year, I looked so darn good! Then I started getting migraine headaches and was tried on a couple of meds. The one that worked was Amitriptaline. Problem is, weight gain is a side effect. I cannot take anymore meds for it because I am allergic to most pain meds and others interfere with my blood thinning med. When I lost all that weight, I was thinner all over, except for my legs. I saw my doctor and that was when I was diagnosed with Lymph-edema.

I now have lymph in both of my legs which makes it very uncomfortable to walk, and then started getting it in my arms. My lymph specialist insists that it is not only lymph edema, but fat too, and the fat is making my lymph worse. She keeps brow-beating me that it I need to lose weight, I should have kept losing weight and not stop at 283. (that was my lowest weight in a while. I was over 400 and got sick which is why I lost 120 lbs) She even told me that what happened to me,(getting sick and losing weight) was a good thing! Uh excuse me????!!!!!  No one should stay sick just because they are losing weight as a result! I missed out on Christmas dinner, Thanksgiving, social gatherings. etc. And she has the gall to say that was a GOOD thing!!!!

Plus, she is only going to wrap one leg at a time! So, now I am going to walk around with a thinner leg and a huge one!!! Unfortunately, I have to stick with this @#!$itch  because I am on a really long waiting list anywhere else, and I almost can't fit into clothes anymore due to my lymph.

Sorry for the long post. I am so angry to tears!!!

It is not my fault! Lymph-edema is not my fault!!!!!!