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I have secondary moderate to severe lower lymphedema in both my legs. Up till now I've been getting cellulitis about twice a year. This past year not once... Thank God!
I'm 40 days away from having my RNY and I've been battling this open area on my left leg in the back of my calf. Thank God I have dressings to keep it covered and clean... One day it seems like it's getting better... a couple days later it seems like it's getting worse. I don't know if they will operate if I have an open area and I'm afraid to ask!! At the moment... I do not have cellulitis. But it comes up fast as you all know. GOD PLEASE KEEP THE CELLULITIS AWAY... if only for a month after surgery.
It hurts right now. I've been dealing with it now for about 2 months. It's never really hurt before but I have been laying down all day (in a recliner) so there's been pressure on it. Maybe that's why it hurts so much.
I can deal with cellulitis. I'm an old pro at it by now.
How much can I expect to lose from this surgery? I'm at 480 right now. I started out at 532. I should be wearing compression every day but sometimes I just get SICK OF IT... you know?
Maybe I've answered my own question. Keep it dressed and clean... and start using the compression... I use Tubi-Grip. It's the only thing I can manage on my own. Wrapping is best but I can't manage that at the size I am.
Thanks for listening?
I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy.
Blog: born2lbfat.com Facebook: Born2lbFat Twitter: @born2lbfat
In my pre-op class, I was told that even the softgels contain oil, which, with a 20% absorption rate of fat with the DS, is simply throwing money away.
For DSer's...Vitamins A, D, E and K must be in dry form. You can hunt around and order from differnt sources, or just get the DS regimen from Vitalady.
I get some of both...whoever has the lowest price for what I need.
I shop around the vitamin stores on the Web for vites and protein, and some I get from Vitalady...and...even eBay!
My lymphedema affects my left leg the most, but comapred to some other patients I have seen in the waiting room, mine is *NOTHING*.
I have a huge lump at the top of my left calf, and permanent "stocking" indents on my lower calf. I think genetics come into play with me, because almost all of my Dad's brothers and sisters have it.
I'm done with wrapping, but I do have a lower body compression garment that I wear to keep my loose skin in place, and to control the lymphedema. I learned to do manual drainage on myself between PT visits, so I have not experienced any increase in swelling. I can wear an "off the rack" garment now, and since I've lost weight, I've gone down to 20-30mmHg from 40-50 mmHg. My old garment was very thick and stiff, and a day's work to get into! What I have now is more like a firm capri pantliner girdle.
I was lucky enough to live near a lymphedema specialist who diagnosed me. Try going to http://www.lymphnet.org/ , you can click on the "patients" tab and clck "search for treatment." Sometimes a vascular specialist can diagnose it. Good luck to you - many doctors are not aware of this condition! If you find a therapist in your area on the NLN website, you can call them - they should be able to refer you to a physician. With this crazy condition, it is often the therapist who spots it first. Good luck!
Nancy
I was wondering if you can please tell me who performed surgery on you. I am also diagnosed with lipoedema and I heard that liposuction surgery if effective, however, Ii never had opportunity to talk to someone about it...I would really appreciate if you could share more info about surgery and how can I find best surgeon for lipoedema in USA?
Thank you in advance….