Recent Posts

TheHelly
on 11/3/12 11:14 am - Pascoag, RI
RNY on 12/11/12
Topic: I hope someone sees this!

I have secondary moderate to severe lower lymphedema in both my legs.  Up till now I've been getting cellulitis about twice a year.  This past year not once... Thank God!

I'm 40 days away from having my RNY and I've been battling this open area on my left leg in the back of my calf.  Thank God I have dressings to keep it covered and clean... One day it seems like it's getting better... a couple days later it seems like it's getting worse.  I don't know if they will operate if I have an open area and I'm afraid to ask!!  At the moment... I do not have cellulitis.  But it comes up fast as you all know.  GOD PLEASE KEEP THE CELLULITIS AWAY... if only for a month after surgery.  

It hurts right now.  I've been dealing with it now for about 2 months.  It's never really hurt before but I have been laying down all day (in a recliner) so there's been pressure on it.  Maybe that's why it hurts so much.

I can deal with cellulitis. I'm an old pro at it by now.

How much can I expect to lose from this surgery? I'm at 480 right now.  I started out at 532.  I should be wearing compression every day but sometimes I just get SICK OF IT... you know?

Maybe I've answered my own question.  Keep it dressed and clean... and start using the compression... I use Tubi-Grip.  It's the only thing I can manage on my own. Wrapping is best but I can't manage that at the size I am.

Thanks for listening?    

Sarahlicious
on 10/27/12 1:23 am - Portsmouth, OH
Topic: RE: Lymphedema, WLS, and Farrow Wraps
Hi, just seeing your post from my phone will reply with more later. Are your feet affected by the lymphedema? Mine aren't I actually have lipedema and lymphedema.

I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy

Blog: born2lbfat.com Facebook: Born2lbFat Twitter: @born2lbfat

JazzyOne9254
on 10/15/12 10:24 am
Topic: RE: soft capsule d3 2000units
No you can't.  All DS fat solubles must be in * dry*  form! 

In my pre-op class, I was told that even the softgels contain oil, which, with a 20% absorption rate of fat with the DS, is simply throwing money away.

For DSer's...Vitamins A, D, E and K must be in dry form.  You can hunt around and order from differnt sources, or just get the DS regimen from Vitalady. 

I get some of both...whoever has the lowest price for what I need.

I shop around the vitamin stores on the Web for vites and protein, and some I get from Vitalady...and...even eBay!



HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

JazzyOne9254
on 10/15/12 10:16 am, edited 10/15/12 10:17 am
Topic: RE: Does Lymphedema hurt?

My lymphedema affects my left leg the most, but comapred to some other patients I have seen in the waiting room, mine is *NOTHING*.

I have a huge lump at the top of my left calf, and permanent "stocking" indents on my lower calf.  I think genetics come into play with me, because almost all of my Dad's brothers and sisters have it.  

I'm done with wrapping, but I do have a lower body compression garment that I wear to keep my loose skin in place, and to control the lymphedema.  I learned to do manual drainage on myself between PT visits, so I have not experienced any increase in swelling. I can wear an "off the rack" garment now, and since I've lost weight, I've gone down to 20-30mmHg from 40-50 mmHg.  My old garment was very thick and stiff,  and a day's work to get into!  What I have now is more like a firm capri pantliner girdle.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

NanLaz
on 8/2/12 11:20 am
Topic: RE: I hate Lipedema
Hi Jeannie,

I was lucky enough to live near a lymphedema specialist who diagnosed me.  Try going to http://www.lymphnet.org/ , you can click on the "patients" tab and clck "search for treatment."  Sometimes a vascular specialist can diagnose it.  Good luck to you - many doctors are not aware of this condition!  If you find a therapist in your area on the NLN website, you can call them - they should  be able to refer you to a physician.  With this crazy condition, it is often the therapist who spots it first.  Good luck!

Nancy
    
Jeannieiam
on 8/1/12 3:24 pm - Hot Springs, AR
Topic: RE: I hate Lipedema
Does anyone know of a place to find doctors to diagnose lipedema?? I live in Arkansas and have no idea of what type of doctor to go see. Thanks!

Cecelia B.
on 6/15/12 8:20 am - St Louis, MO
Topic: RE: Clothing to fit my swollen leg...
 My son has a women who sews  TRIANGULAR  insert in his pant leg so he can wear his pants, his is very large and he could not get work clothes to fit it.  also Womem withing has extra wide leg pull on pants in black and brown etc you might be able to get into.

Starting wt. March/ 2010  385lbs
Surgery wt.  Sept/2010     322lbs
Current wt.  Sept/2013     204lbs

                            

Cecelia B.
on 6/15/12 8:15 am - St Louis, MO
Topic: RE: I had no idea.............
 Well I just wanted to update folks, I did increase my protein by including at least 1 protein shake a day and the result is ----my leg is decreasing again.  So Thank you so much for the information about proteins and lympnedema.  It seems to be working again......

Starting wt. March/ 2010  385lbs
Surgery wt.  Sept/2010     322lbs
Current wt.  Sept/2013     204lbs

                            

SVENOLINA
on 5/3/12 2:25 pm
Topic: RE: Lipedema / Lymphedema

I was wondering if you can please tell me who performed surgery on you. I am also diagnosed with lipoedema and I heard that liposuction surgery if effective, however, Ii never had opportunity to talk to someone about it...I would really appreciate if you could share more info about surgery and how can I find best surgeon for lipoedema in USA?

Thank you in advance….

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