finding a Dr???

I saw my PCP and he flat out told me he has no clue how to treat my Lymphedema (or Lymphangitis and he is now calling it) he said he wants me to be seen at a hospital with more exposure to things like this (he is affilitated with the main hospital in our small town) Hershey Med Center is close, only 20 min from me, so he wants me to go there, but cannot recommed anyone for me to see, so in the meantime, he wants me to check with Dr Marymor, who did my WLS, I just happen to have an appt with him on the 18th. I am not sure he will be able to help since his specialty is WLS.. does anyone have suggestions for finding a good Dr, or ideas on where I might possibly look??? I live in PA, not far from Harrisburg, Lancaster, and Philly is only 2 hours away. I did check out the therapists list, and there are 2 in Harrisburg, but would I need to see a Dr before calling the therapist? I am so confused by all this, finding Dr's has never been easy for me I really could you the help of you all. thanks in advance

The Lymphedema Consultants [T] Home Office : Pittsburgh, PA Telephone : 412-364-3720 Fax : 412-364-3119 E-mail : [email protected] ^^^ They teach class but I am sure they can help you find doctors in your area. also found a list of doctor but this is not a full list just a quick search - PENNSYLVANIA Allentown Good Shepherd Outpatient Rehabilitation Denise Rios, PTA, CDT, CMT [2A] Mary Hontz, COTA/L, MLDT 610-776-3220 or 610-402-9292 Orthopaedic Associates of Allentown Jane M. Roche, COTA/L, CLT-LANA [2G,1LL,1*,2] 610-433-6045 ext. 497 Everett Lymphedema Care Center Katherine C. Erlichman, DO [1G/] Michelle Soliday, RN, CLT 814-623-3838 Lansdale Central Montgomery Medical Center Joy Haynie, PT [1G,1LL] Yilei Zhu, PT 215-361-4531 Mercer iXL Rehab, Exercise & Wellness Center Michael J. Sharr, MPT, CLT [3A] Diane Sharr, MSOT, OTR/L 724-662-1776 Philadelphia Fox Chase Cancer Center Wilma Morgan, OTR/L, CLT-LANA [3LL,3] Cheri Doll, MSPT, CLT-LANA 215-728-7000 Penn Therapy & Fitness Joy C. Cohn, PT, CLT-LANA [1V,7G,2] Linda Boyle, MS, PT, CLT-LANA 215-614-0674 or 215-662-4794 Pittsburgh Allegheny & Chesapeake Physical Therapy Lymphedema Rehab Centre Suzanne Wagner, PT, CLT-LANA [1T,1] 800-332-5740 or 412-661-5578 Centers for Rehab Services Lisa Mager, MPT, CLT-LANA [1A,3G,2N,1S,3] Susan George, MS, PT 724-742-9770 Squirrel Hill Physical Therapy Center Cynthia Stein, LPT [4V] 412-422-7022 Pottsville Schuylkill Rehabilitation Center Patricia Gregas, OTR/L [2*] 570-621-9500 Windber Joyce Murtha Breast Care Center Elizabeth Pile, MOT, OTR/L, CLT [1S] 814-467-0044 Wyndmoor Chestnut Hill Rehabilitation Hospital Anne Lowry, PT [1G,2N,1] 215-233-6338 Quick search from http://www.lymphnet.org/resourceGuide/treatmentCenters.htm#PA

Thanks so much Robert. I am sl lost and confused when it comes to all this stuff.. words alone cannot express how appreciative I am!!!

http://www.clt-lana.org/therapists/default.asp http://www.acols.com/find.html http://www.klosetraining.com/pages/therapistdirectory.html These link be of use to you as well - good luck. I didn't have a problem finding a doctor to help me because I had a decent caseworker that found the doctors I needed. I have 2nd lymphedema in my lower left leg from an accident that occured a couple years back. I realize a good doctor is important to making life more better.

http://www.clt-lana.org/therapists/default.asp http://www.acols.com/find.html http://www.klosetraining.com/pages/therapistdirectory.html

Brianna, You don't need to see a doctor before the therapist. Basically the therapist if they are certified is going to know more about this. Typically doctors like yours doesn't know the first thing about this condition and there are really no specialists that do either. Finding a lymphlogist is very hard to come by. Your very best bet is to seek out a very skilled therapist who is LANA certified. They will know how to treat you and be able to tell right off if you have this condition. Robert gave you a great list to start with. Make sure when talking to their office to set up an appointment they are so the message therapy, wrapping, and compression. Ask them are they certified by LANA. This is all very important, there are therapist out there who claim to know the correct therapy and don't. Any questions email me anytime. Amy