Recent Posts

Guernica Loser
on 3/29/14 8:28 am
Topic: RE: Losing weight with Wegener's Granulomatosis on pred and chemo

Hi!  I was diagnosed with Wg in feb of 2005 but I had it way before that.  I was just dx with lupus as well.  At the time of surgery Medicare would not cover the sleeve and I was too afraid to have the bypass due to bowel issues  with Wg.  The band sucks for me.  Where do you live?

I've been on prednisone and chemo for over 7.5 years.  Gained over 160 pounds due to pred. Highest wt. 410. Surgery wt. 365. Current wt. 299
See ya,400s, 90s,80s,70s, 60s, 50s, 40s, 30s, 20s, 10s 300s!!!!  
                                    
             
kat1004
on 3/26/14 10:59 pm
Topic: RE: Losing weight with Wegener's Granulomatosis on pred and chemo

Hello, my name is Katie. I was diagnosed with WG 11/2 years ago. WG is attacking my lungs and sinuses mostly but, I just had my first real flare up. My question is why did you not have gastric bypass or the sleeve?? If you don't mind me asking. I hope you are doing well!!

deedeebay
on 12/28/13 1:44 pm
Topic: RE: X-Post - I've got a date with plastic surgeon!!!!

Hope everything is going well with plastic, I know you will feel much better getting rid of that loose skin .

    

    
gayle-n-reno
on 12/22/13 7:38 am - NV
Topic: RE: New Lupus Diagnosis & New To WLS

I was dx with Lupus (SLE) almost 10 years ago....I had RNY 5 months ago.  At one point I was very sick...but after finding a great Lupus Dr. and getting it under control...I found an equally wonderful Dr for my WLS.  I had hernia repair and 10 inch of my colon removed due to diverticulitis (my colon was attached to my abdominal wall in 5 places) I had class C esophageal erosion due to acid refux 3 years before...since my surgery....no acid reflux, down 60 lbs, colon is healed.  I knew I would never be able to take some drugs again...but it was worth the change for me

 

JazzyOne9254
on 12/11/13 11:13 am, edited 12/11/13 11:14 am
Topic: RE: WEIGHT GAIN POST-OP DUE TO STEROIDS TO TREAT MY LUPUS

hamptons11937-

Since you already have the VSG, which is the top half of the Duodenal Switch, find a good DS surgeon and get yourself the intestinal DS re-routing to go along with it!

The trauma of surgery can set of major flares, but as long as your surgeon knows you have lupus, precautions can be taken, like having a longer hospital stay, so you can be treated right away if you do go into a major flare.  You may even be able to have it laparoscopically, if you find a surgeon who does the DS that way. It's still  trauma nonetheless, but not as much as an open abdominal surgery would be.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

JazzyOne9254
on 12/11/13 10:39 am, edited 12/11/13 10:48 am
Topic: RE: did anyones immune system go into shock after surgery?

Divine Lady-

I was diagnosed with lupus (SLE) for almost a decade before I had my Duodenal Switch, and had no vitamin deficiencies when SLE was diagnosed.

My DS...at least for me...has made coping with SLE easier, as Plaquenil did not work to keep flares down.  All I had was prednisone, and that helped with my weight increase to 405.  I was in the mid 200's prior.  Still SMO, but not as much as after the prednisone regimen.

I did read recently that Plaquenil depletes Vitamin D...and that explains my Vitamin D always coming up low normal or deficient. I have begun taking 100,000 IU of Dry D every day. 

DSer's cannot take the oil-filled capsules...we only absorb 20% of all dietary fat ingested, so we would not even absorb those.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

JazzyOne9254
on 12/11/13 10:27 am
Topic: X-Post - I've got a date with plastic surgeon!!!!

After nearly losing my mind....

I've got a surgery date!!!!

My plastics will take place December 27th at 10:00 AM  at St. Vincent's Hospital, Indianapolis!  

I got a call from the assistant today, who said the insurance company was called about the change of location, and told that both hospitals are part of the same corporation, just a different geographical location (about 10 miles worth!).  The assistant told me that the insurance company said the change of location would not be a problem, and they will send me a new approval letter indicating the different hospital.

I've had many questions asking how I got the insurance company to approve the plastics.  The excess skin has become a medical issue in and of itself, and I have been plagued by several bouts of cellulitis.  According to something I read, Severe Morbid Obesity is one risk factor for cellulitis.I never had it when I was SMO.  However, I am no longer obese, just overweight, according to the charts.  Once the excess skin and fat deposits come off, I will be closer to chart weight.

I have just a little time to get myself together for the surgery, as the hospital is two hours away.  

I'm a little concerned about being held in hospital for only 24 hours after the surgery, but I will discuss that with the doctor.

 

Big ups to G-d for making it all possible!  

Now...as lupies, we know that trauma to the body can set off nasty flares, but my surgeon knows this, just like my DS surgeon did.  She kept me in the hospital for a full seven days, just to make sure that if I did have a massive flare, I would already be in the hospital and it could be dealt with.  Same for my plastics.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

Paula83
on 12/6/13 5:03 am - Rego park, NY
Topic: RE: lap band with Lupus

Hey everyone. I would like to ask if anyone had blood clots and that they are on Coumadin and wanted to do a Lapband. My Hemotology dr doesn't let me. Pls share if someone had the same issue. Thnk in advance

JazzyOne9254
on 12/1/13 9:48 am
Topic: Link to info on Plaquenil and Vitamin D/Calcium depletion

I knew I wasn't going off my rocker!  I read this regarding Plaquenil, for anyone who is a DSer and taking Plaquenil for Lupus.

 

http://www.nutritionfocus.org/vf/healthnotes/HN_live/Drug/Hy droxychloroquine.htm

If the link doesn't work, copy and paste into your browser.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

JazzyOne9254
on 11/24/13 7:02 am
Topic: RE: did anyones immune system go into shock after surgery?

I think that's a good idea, but if your doctor codes the labs properly, they should be covered by insurance. If they are notated rule out (r/o)  whatever the code is,  instead of routine or surgical or intestinal malabsorption, then the insurance should pay for them.

Here's the sheet my surgeon hands out for PCP and other medical providers info:

 

 

This list includes labs we have had performed for Duodenal Switch patients.  The first group, every 3 to 6 months for life .with retests at 3 months for specific deficiencies.  The second group, annually, as long as the first year results were comfortably within normal limits. Primary care physicians, feel free to call  with questions.

 

1st Group

 

*80053          Comprehensive Metabolic profile: (sodium, potassium, chloride, glucose,BUN, creatinine, calcium, total protein, albumin, total bilirubin, alkaline phosphatase, aspartate aminotransferase)  (10231)

* 84134          Pre-albumin:

* 7600            Lipid profile: (cholesterol, HDL, LDL, triglycerides, chol/HDL ratio)

* 10256          Hep panel: includes ALT (SPGT) & GGT)

* 84100          Phosphorous – Inorganic:  (718)

* 83735          Magnesium:

* 84550          Uric Acid:  (905)

* 7444            Thyroid panel: (T3U, T4, FTI, TSH)  (84437; 84443; 84479; 84480)

* 85025          Hemogram with platelets:  (1759)

* 7573            Iron: TIBC, % sat

* 83550          Ferritin:  (457)

* 84630          Zinc:  (945)

* 84446          Vitamin A:  (921)

* 82306          Vitamin D: (25-hydroxy)   (680)

* 84052          Vitamin B-1: (Thiamin)  (4052)

* 84207          Vitamin B-6: (Pyridoxine)

* 7065            Vitamin B-12 & Folate:  (82607; 82746)

* 83970          Serum intact: PTH

* 83937          Osteocalcin:

* 84597          Vitamin K:

* 85610          PT:

* 85730          PTT:

 

2ND GROUP

 

* 593              LDH:

* 31789          Homocysteine, Cardio:

* 83921          MMA:

* 367              Cortisol:

* 84255          Selenium:

* 84590          Vitamin E:

* 82525          Copper:

 

 

For diabetics ONLY:

 

*496 - HEMOGLOBIN A1C   

 

 


 

 

 

POSSIBLE DIAGNOSIS CODES

 

 

269.2              Hypovitaminosis

 

268                 Vitamin D deficiency

 

275.40            Calcium deficiency

 

266.2              Cyanocobalamin deficiency  (B12)

 

281.1             other B12 deficiency anemia

 

281.0              Pernicious anemia

 

280.9              Iron-deficiency anemia

 

281.2              Folate deficiency anemia

 

285.9              Anemia, unspecified 

 

269.3              Zinc deficiency

 

244.9              Hypothryoidism

 

250.0              Diabetes 

 

401.9              Hypertension

 

276.9              Electrolyte and fluid disorders

 

272.0              Hypercholesterolemia

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - 

 

*579.3             Surgical malabsorption* 

 

*579.8             Intestinal malabsorption  *

 

 

*  Bands or sleeves should not use these codes as they are not accurate.

 

*Some insurance companies will not pay for any procedure that uses these codes.

HW 405/SW 397/CW 138/GW 160  Do the research!  Check the stats!
The DS is *THE* solution to Severe Morbid Obesity!

    

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