Recent Posts

bigbaby2698
on 8/14/06 12:58 am - Bunker Hill, WV
Topic: Another Auto-Immune something or other..
Wow.. how strange that I happened to stumble into this board. I am currently having my ANA retested also to see if it's elevated. In October, my doc checked and said it was "negative" for lupus. I'm not sure what you ladies mean by "flares" exactly, but let me explain mine. Well first, lol I have been told that I have chronic urtacaria .. which means hives for life. I went to a RA doc and they said it had nothing to do with them and they billed me $400 and sent me packing.. The derm said it was simply hives. Now, my personal opinion from trying to research this all on my own after seeing countless ER, Urgent Care and family doctors is of course some sort of auto-immune something or other. Hives are automatically auto-immune. However, I'm trying to understand this part.. I get hives.. yes all over.. I understand that part. Although, there are days when say in the afternnon.. my arm will start to get sore and then more sore and then so sore I have to actually hold it up with the other arm, because just letting it hang HURTS. Next thing you know within a few hours.. my entire upper or lower arm.. wherever it tends to happen is HUGE. Red, inflammed and hot, hot. When I say huge.. I mean the skin is being pulled so tightly it turns shiny. The derm says.. yeah just another type of hives.. I say.. uhm.. no? The pain and swolleness will last that whole day and part of the next and then be gone. I have journaled my food and cut things out that may have given me certain reactions and nothing works. I tend to get it mostly in my arms, hands, feet and knees. The hives often apear all over.. except oddly.. my lower legs. Also, if one knee is swollen, 9 times out of 10, the other is too. Same with forearms.. if one has a "swellie" as I like to call it.. likely the other arm will have one too. Or it will come the next day. They are usually gone within 24 hours and just pop up somewhere else the next day. I more or less have what feels like a moving disease on my body. It many time stops me from working which is frustrating. I have a very phsyical job and it's all unairconditioned ( hotness brings out the hives ) so if my hand, arm, feet. knees are all swollen and hurting or itchy.. chances are.. I won't make it to work. I just want an answer.. They can't figure anything out.. And I get this goofy chest pain that they keep telling me is heartburn.. And I continue to tell them, it's almost impossible with the surgery and the fact I avoid fatty heartburn causing foods anyway.. they won't listen.. Any input would be appreciated.
Mystical_Dreamer
on 8/5/06 1:55 pm - GA
Topic: RE: Hepatitis B Vaccine
I cant email you from your profile page, I tried. Email me at [email protected] and I will tell you more. this is what i was given in 2002 http://www.whale.to/vaccines/hepatitis3.html
NotsoTubbyAnymore
on 8/5/06 12:26 pm - MO
Topic: RE: Hepatitis B Vaccine
Hi, I'd really like to talk with you about this - or email for more info. I work with a Hepatitis C group as a counselor, and our office is in the process of offering HAV and HBV vaccines for our Hep c clients. I'd like to know when you got your shots, and from what company were the shots from? GSK is offering the Twinrx, but you don't suggest that you've taken that series. Can you supply a little more info? Tayah
kimberlycoffelt
on 7/24/06 5:50 am - League City, TX
Topic: B12 Deficiency, Pernicious Anemia
I have recently (in the past 2 weeks) reached my all time lowest post op weight, 139 lbs...yeah. However, there have been some things I have learned in the past week that are a little disturbing. I recently found out that I am seriously B12 deficient (due to bariatric surgery) and have pernicious anemia. My husband hounded me to go to the dr due to my body bruising and it becoming out of control. We found out that my b12 level was 82 and it should be between 190-1000 and they like you around 300-400. I have since learned from the hematologist that nearly every bariatric patient at 2 years post op becomes b12 deficient and i was never told this before surgery or by any of my dr's since. I will now need monthly B12 injections for the remainder of my life, if I knew this, I don't think it would have changed my mind on the surgery, I would have still had it. What is bothersome is my level is so low and we do not know how long it has been that low that it can cause your spinal cord cover to disappear which causes nerve damage and paralysis. they do not feel that I have paralysis yet obviously since I can still touch, feel, move etc but the covering may have already begun going away. On Friday, I began a rigerous course of b12 injections, i must go once a day m-f for 2 weeks, then 3 days a week for 2 weeks and 1 day a month then out if my level is back to normal. We also found out that my body is using every possible resource it has to produce blood and the platelets it is producing are no good which is why I am bruising...they are not allowing my blood to clot. Which can be caused from the possibility of Lupus. I tested positive on 2 blood tests for SLE (not surgery related, my mother has SLE as well and many overlapping illnesses) and they took several more tests while there on Friday, I get those results next week. My main concern is to warn those that are not aware of the B12 deficiency. I am also having to have a CT Scan to check my spleen. I would like to know if any of you have had this much of a problem with B12?
kimberlycoffelt
on 7/24/06 5:35 am - League City, TX
Topic: RE: HELP! I had surgery 9-9-05 and now have an ulcer
I just had my 4 yr post op anniversary on 7/16. I had ulcer before surgery and I have had them after. I have recently been diagnosed w/Lupus and b12 deficient (which I am at risk for paralysis currently). I had severaly problems w/nausea about 6 months post op and was temporarily put on Reaglan (something they give diabetes patients to help with food disolving). I had to take it 30 min before meals and it seemed to help. The only time I have problems now is if I eat something I know I shouldn't (like mexican or fried foods)...but sometimes you just need a bite. i hope that you get to feeling better and also, be sure to have your b12 checked.
shantrism
on 7/17/06 7:03 am - Baltimore, MD
Topic: HELP! I had surgery 9-9-05 and now have an ulcer
Hello, Boy, I wish I meet this page last year when I was trying to get approved. I felt so lost and known of the doctors I talked to (except my doctor) had experience with lupus patients having WLS. They all told me I was a high risk and since I take predinisone daily I might not heal. Well, I came through with flying colors (Thank God) and I really did not have an issue until Feb. when I had pain in my pouch with distintion. I had a three day stay in the hospital with no real problem. My luck has changed slightly I have been diagnosed with Costacondritus (Spelling). This is where your ribs in the center of your chest become inflamed. I also had pain at the top of my abdomin near my chest and the area is very tender. I was give a script for Motrin 600mgs four times a day. The pain in my pouch got worst and I was nausous all the time before, during and after meals. I am still nausous and have pain when I eat. My surgeon gave me Protonix to get the ulcer under control. Well, I still feel sore and sick with food at certain points of the day. I was told last week that if things don't get better I will have to have a endoscope done. My question is: Have any of you experienced the same situation or something similar? Also at 1 year had you reached 100 or more pound weight lose? I feel like I have failed a little because i have not reached 100 pounds at this point and I am almost 1 year out? What can I do and does my Lupus have any effect on my weight lose?
JSMITH1566
on 7/2/06 11:46 pm - Fairfax, VA
Topic: RE: Lupus and Autoimmune Hepatitis
Thanks for the advice! I will make sure it's the EC!
madame yess
on 6/26/06 5:07 pm - MI
Topic: RE: Lupus and Autoimmune Hepatitis
Hi, I have lupus and just diagnosed with MS due to overlapping autoimmune disease. I am able to take Naproxen but my dr prescribes Naproxen-EC . the EC is a specially coated version that will not harm the stomach or pouch with my band. I have taken it daily for over a year with no problems at all. just make sure that you request the EC
madame yess
on 6/26/06 5:01 pm - MI
Topic: RE: lap band with Lupus
Hello, I have lupus and was just diagnosed with Ms as well. I did well with the lapband but now with MS I was adviced to get it unfilled. It will be decided whether or not I will need to have it removed in 6 months. so far so good and I am still losing weight. Just make sure that you are not flaring when it is put in. Madame Yess
JSMITH1566
on 6/20/06 2:59 am - Fairfax, VA
Topic: Lupus and Autoimmune Hepatitis
Hi everyone! Thank you for all of the great advice! I have Autoimmune Hepatitis (which is similar to Lupus). I am on 25mg of Azathioprine (Imuran) daily, and my tests are normal. However, since my immune system is attacking my liver, I can't take Tylenol. So, after surgery I can only take Tylenol, right? Is this for every surgery? What about lap band? Thank you!!
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