Recent Posts

k9ophile
on 12/20/08 4:23 am
Topic: Questions
I just got off the phone with a dear friend who had heard about my recent WLS.  He is also morbidly obese and said he checked into WLS surgery.  He told he was told because of his lupus, he was told he was not a candidate.  But I remembered seeing this forum as I was browsing through all the options OH has to help us no matter our age, surgery type , or medical challenges.  I definitely intend to lurk here and send him the information on OH so he can do some research of his own.  He lives in Ohio, and I'm not sure how willing he is to travel or how far.  I appreciate all of you for sharing your stories, your challenges and victories.  I would hate for him to give up just because one doctor told him he wasn't a good candidate.

"Our ultimate freedom is the right and power to decide how anybody or anything outside ourselves will affect us."  Stephen Covey

Don't litter!  Spay or neuter your pet

Louisette
on 12/19/08 5:15 am - NY
Topic: RE: Lupus and recent RNY and protein in urine
Thanks for the feedback.  I appreciate it!  l'll follow up with the Rheumy next week and well see what happens iwth the 24 hour urine sample!

Thanks!

Lynn  
5"11"
RNY 11/06/08
 330 ~136 
(Past, Present)



 

talksoupslp
on 12/19/08 2:42 am
Topic: RE: Lupus and recent RNY and protein in urine
Can't help you.  I've had small amounts of protein in my urine for nearly 14 years.  All my docs shrugged it off for years.  I had to find a new rheumie last year and he decided to send me to a nephrologist for follow up.  The neph suggested it could be because of my weight (I'm currently pre-op) and I took that moment to see if he would be on-board with WLS.  Sure enough, he was.  He changed my blood pressure med from hydrochlorothiazide (a diuretic) to lisinopril (an ACE inhibitor) and said that might help.  Sure enough, I now don't have protein in my urine.  He says it's the 60 pounds I've lost.  I say it's the BP med change.  I've lost significant amounts of weight before yet still had the protein in my urine. 

So, I'm not much help.  I can tell you that just because there is protein at a single urine sample, doesn't mean it's a significant amount when they measure for the 24 hour test.

Good luck!
TS


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
Louisette
on 12/18/08 6:39 am - NY
Topic: Lupus and recent RNY and protein in urine
Any correlation between my new RNY and NOW having protein in my urine.  Its a first.  Just completed 24 hour urine and labs so I'm anxiously waiting the results.  It's goign to be a LONG 5 days!

Can anyone shed some light here?  Im nervous.

Lynn  
5"11"
RNY 11/06/08
 330 ~136 
(Past, Present)



 

Chubbycakes
on 12/15/08 8:45 am
Topic: RE: Lupus and verticle sleeve
Thank you for your quick response.  I will talk to my rheumatologist  about  it and why surgeons are cautious about the lupus . My lupus is considered mild and never had a flare up yet. I do have more problems with fibromyalgia which I was diagnosed with the lupus. So I don't think there should be a problem with having the surgery it's just the surgeons here. But I will speak with my doctor first and thank you for the info. on the proton-pump.
talksoupslp
on 12/14/08 8:45 pm
Topic: RE: Lupus and verticle sleeve
I would be very leary going to Mexico to have the surgery with lupus.  I had thought about doing that myself.  Then again, my autoimmune stuff is pretty stable.  I would not go to Mexico unless your rheumatologist and PCP are both aware and supportive.

I don't understand why a surgeon in the states wouldn't do your surgery, unless your lupus isn't stable.  I met with a new surgeon just before Turkey day (having to change from the one I initially established with due to insurance).  One of the first questions he asked me was "is my lupus stable?"  He had no problem doing the surgery.  It helps that my rheumatologist is in the building next door and works from the same hospital I will have my surgery at.  Maybe your local surgeons need a little education from your rheumatologist?

A proton-pump inhibitor reduces gastric acid production...Prilosec, Prevacid, Aciphex, Protonix...

Hope I've helped,
Elli


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
Chubbycakes
on 12/14/08 12:10 pm
Topic: RE: Lupus and verticle sleeve
Thanks  for the info. I was not sure if  the sleeve would be o.k. I am looking into having surgery done in Mexico due to the surgeons here in my hometown of california refused me because of lupus. I was pretty limited on surgeons because of my HMO insurance. Also what is a proton-pump inhibitor.
talksoupslp
on 12/14/08 10:17 am
Topic: RE: Hello
Yes, same sulfur drug.  Same class at least.  I took my 3 day's dose today.  So far, no issues.  He started me on a low dose that works upwards in the course of a few weeks.  Could take 1-3 months to show improvement in my aches.  We'll see.

And yes, it is a bit difficult to find info on life after WLS with lupus.  There are other people on these boards with lupus and autoimmune diseases.  You might want to try the main board, the VSG, or the RNY board.  And I don't think Medicare will pay for the sleeve (but I don't know this for sure).  You might try asking on the VSG board.

-Elli


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
talksoupslp
on 12/14/08 10:13 am
Topic: RE: Hello
My rheumie was fine with the RNY or the sleeve.  I never was even remotely interested in the band...but according to the manufacturer, people with even just a history of autoimmune disease in their family should not have the band.  I prefer the idea of the RNY but was going to get the sleeve because of my nephrologist.  Fortunately (for me, not my nephrologist) the insurance won't pay for the sleeve.  So, everybody has agreed with the RNY.  Higher risk of espohageal problem more likely with Sjogren's syndrome than lupus, but still a possibility. 

-Elli


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
talksoupslp
on 12/14/08 10:07 am
Topic: RE: Lupus and verticle sleeve
Vertical Sleeve is probably the safest for a lupus patient.  There is no problem with malabsorption of meds and you can continue to take both NSAIDS and prednisone.  With the RNY, both are out of the question (though my surgeon said for a very short term need, both would be okay with a proton-pump inhibitor).

There are lots of people on these boards with lupus/autoimmune disease.  You may want to hit the main board or the vertical sleeve forum.

-Elli


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
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