Recent Posts
Topic: RE: Questions
I am not sure why, I just know my surgeon said that she checked with some specialist in New York or Stanford. I love my sleeve and glad that it was offered to me. I am on 20 something meds with my Lupus and steroids forever now, so that could be the difference or just that she did so much digging to find out info before my surgery. i am not sure.
Hope all is well for you and your Lupus,
Good Luck
Nicki
Hope all is well for you and your Lupus,
Good Luck
Nicki
Topic: RE: Questions
I have just been diagnosed with Lupus and I had the Lap band done about 1 1/2 years ago. My Rhuematologist is aware of it and has no problem with it. I told my lapband doctor at my last visit in November and he said it should not be a problem. I was more worried about the steroids they have me on for 2 months and he said it's ok. I told him I will be going on chemo at the end of February for the lupus and he said its fine. So i'm not sure the differences of opinions with the doctors. I wonder why?
Topic: RE: Question for Lupus sufferers
Lupus is a difficult diagnosis to make, even when obvious symptoms are present. Most tests that are done to determine this condition are blood tests - the ANA test, white blood cell count, etc. However, you have to have something like 5 symptoms of 8 probable symptoms for a doctor to make the diagnosis.
I first presented symptoms when I was around 21 (I am 50 now). The doctors suspected it, but could not definitely say it was lupus. I lived a pretty symptom-free life for many years. Then in 2003, I got meningitis, and was hospitalized for 2 weeks. That was most likely triggered from my compromised immune system. Then in 2005, I developed a blood clot on my kidney. Again, I was hospitalized for 2 weeks and have been on blood thinners since then. Hopefully no other life-threatening events will occur. I have systemic lupus, which affects your body's organs and systems. I never had the 'butterfly rash'. The discoid lupus is the version that affects the skin and most often cause skin rashes.
I first presented symptoms when I was around 21 (I am 50 now). The doctors suspected it, but could not definitely say it was lupus. I lived a pretty symptom-free life for many years. Then in 2003, I got meningitis, and was hospitalized for 2 weeks. That was most likely triggered from my compromised immune system. Then in 2005, I developed a blood clot on my kidney. Again, I was hospitalized for 2 weeks and have been on blood thinners since then. Hopefully no other life-threatening events will occur. I have systemic lupus, which affects your body's organs and systems. I never had the 'butterfly rash'. The discoid lupus is the version that affects the skin and most often cause skin rashes.
Topic: RE: Lupus and verticle sleeve
I have lupus and the RNY, and I'm doing great. There is concern about the impact of LapBand on people with immune issues, but NO PUBLISHED DATA at ALL. There is concern about RNYers not being able to take large doses of NSAIDS -- but I take asperin in low doses, with P Pump inhibitors, and no problems at all.
All surgery was performed in Los Angeles -- don't know why anyone would be told it wasn't done here.
And I can't think why there would be a problem with VSG and lupus, at all.
Your case may have specific issues related, other than the ones you mentioned?
All surgery was performed in Los Angeles -- don't know why anyone would be told it wasn't done here.
And I can't think why there would be a problem with VSG and lupus, at all.
Your case may have specific issues related, other than the ones you mentioned?
Topic: RE: Lupus and recent RNY and protein in urine
There are a lot of things that cause protein in urine, even with lupus.
Rheumies check protein (and other kidney levels) because they are looking for CHANGE, that might mean problems. Your Dr. will evaluate protein levels in concert wtih other blood/urine chems.
But it's probably not WLS related.
Rheumies check protein (and other kidney levels) because they are looking for CHANGE, that might mean problems. Your Dr. will evaluate protein levels in concert wtih other blood/urine chems.
But it's probably not WLS related.
Topic: RE: Questions
I had VSG because of my lupus. My dr said no to the RYN and Stanford said NO to lapband. With my rhuemy and surgeon on my side, they convinced my insurance that it would be in my best intrest to have VSG.
But make sure he trusts his surgeon!!!!!
Any questions have him contact me or your self at hadakempe AT hughes DOT net
(spam bots pick up email address wrote in usuall form.)
Nicki
Topic: RE: Lupus and verticle sleeve
Hello,
I have Lupus!! I had the VSG!! I am doing GREAT!! My rhuemy said NO RNY!! And my surgeon talk to a Rhuemy at Stanford and he said NO to lap band. Feel free to email me at hadakempe AT hughes DOT net (spam bots get address if typed in usual form) if you have any questions.
PS my surgeon is in Iowa and she is GREAT!! Maybe here instead of Mexico?
Thanks
Nicki
I have Lupus!! I had the VSG!! I am doing GREAT!! My rhuemy said NO RNY!! And my surgeon talk to a Rhuemy at Stanford and he said NO to lap band. Feel free to email me at hadakempe AT hughes DOT net (spam bots get address if typed in usual form) if you have any questions.
PS my surgeon is in Iowa and she is GREAT!! Maybe here instead of Mexico?
Thanks
Nicki
k9ophile
on 12/20/08 11:29 am
on 12/20/08 11:29 am
Topic: RE: Questions
Thanks for your reply. I just found out in our conversation that he has lupus, so I'm not sure how long he's had it or what drugs he's taking. It may turn out eventually that he isn't a good candidate. I just hate to see him give up without getting a second or third opinion.
Best wishes to you on your weight loss journey.
Best wishes to you on your weight loss journey.
"Our ultimate freedom is the right and power to decide how anybody or anything outside ourselves will affect us." Stephen Covey
Don't litter! Spay or neuter your pet
Topic: RE: Questions
Someone with lupus (or any autoimmune disease) should NOT have the lapband. It is contraindicated according to the manufacturer of the Lapband. There are many people on these boards who have had RNY and VSG with success. My nephrologist would have PREFERRED a purely stomach surgery due to risk of kidney issues with some of the others. Unfortunately, my insurance won't pay for the VSG. The risk of kidney issues is lower with RNY than with the DS. So, probably better off for him to look at RNY and VSG than any other surgeries.
Now, your friend is a male, and we know that it's mostly women who get lupus. While I'm not sure of the statistics, I believe when men get lupus it has a higher chance of being more involved. So, is his lupus stable? If yes, has it been stable for a while? Is he on steroids? With RNY, steroids and NSAIDS are no-no's post-surgery. Those are the two most commonly used types of drugs for lupus patients. I have a feeling, after my surgery, the manufacturers of ibuprofen products will cry.
All that said, it would be most important for his rheumatologist to be on board with the surgery. I saw a rheumie for 8 or so years. He ended up being a friend. So, when I asked a few years ago about weight loss surgery...he said "NO". I know he had my best interests at heart. But WLS has come a long way in a short period of time. If I had the opportunity to ask him now, I think he'd consider it. Maybe WLS isn't going to be appropriate for your friend's situation...but having lupus should not immediately contraindicate the procedure.
I hope I've been some help.
-TS
Now, your friend is a male, and we know that it's mostly women who get lupus. While I'm not sure of the statistics, I believe when men get lupus it has a higher chance of being more involved. So, is his lupus stable? If yes, has it been stable for a while? Is he on steroids? With RNY, steroids and NSAIDS are no-no's post-surgery. Those are the two most commonly used types of drugs for lupus patients. I have a feeling, after my surgery, the manufacturers of ibuprofen products will cry.
All that said, it would be most important for his rheumatologist to be on board with the surgery. I saw a rheumie for 8 or so years. He ended up being a friend. So, when I asked a few years ago about weight loss surgery...he said "NO". I know he had my best interests at heart. But WLS has come a long way in a short period of time. If I had the opportunity to ask him now, I think he'd consider it. Maybe WLS isn't going to be appropriate for your friend's situation...but having lupus should not immediately contraindicate the procedure.
I hope I've been some help.
-TS