I am still lurking..lol..
I am very happy for both of you. I am still in the process of being excepted for surgery, last week I was told my BMI (54) is too high for sugery so I have to go back to the clinic next week (fingers crossed) so they can tell me how to get my BMI down..BMI needs to be 50 or less, I'll see if I can't get it down before I go =) than maybe they will push me through..lol.
I am curious if any of your lupus or arthritis meds had to be changed to liquid or injected?
Please keep posting, it's nice to see what is happening with life with lupus after surgery.
Cathy

Hello everyone


   I didnt know they had a board for Lupus. I wanted to write to you all because I had someone very special in my life that had this for a long time before cancer came along an took over. She fought this for 10 years an cancer for 4 months. Her name was Brenda Barber an she was my hero and also my mom. I think its great that you all are takin this step to improve your health. My mom was also overweight to but she lose 100 pds, not because she tried it just start fallin off when cancer step in.I Hope that each an everyone of you are doing sucessful. Lupus is very overwhelming an I can remember plenty nights and days where she would pray an cry in one day for god to heal her of this illness. Not to bring anyone down on this topic just wanted to give you my prayers an blessing an that god see you thru this an have good health.



                                                                                                            Best Wishes
                                                                                                                Barbara

Thanks for responding.  It's nice to know people do lurk around here.  I'm still flirting with temps from 99.0 - 100.8, and have an on-again, off-again headache, but that's it.  I'm getting some good sleep.  Because of my lupus, I have always known I function best with 8-10 hours of sleep.  Unfortunately, under normal cir****tances, I usually get 6.5-7 hours.  So this R & R off of work is making a difference. 

Sorry to hear your energy is sapped.  Been there, done that.  I anticipated it with the surgery, but (knock on wood), so far my energy level is about average.  Obviously, because of the lack of energy, exercise is difficult...are you doing any strengthening/toning exercises?  You know, stuff you can do while sitting down?  Maybe you could work on building some endurance that way?  I dunno, just a thought.

I wish I still had my happy plaquenil pills!  I was on plaquenil for 10 years.  Last August, I went for my yearly eye check up and my doc saw some retina changes.  Couldn't say for sure if they were plaquenil related, but he's been my doc for 9 years and hadn't noticed them before.  So, bye bye went the plaquenil.  In December, my rheumie tried sulfasalazine (often used with arthritis patients).  It was helping to control pain, but in March, my liver enzymes shot up.  Since my rheumie was on a 3 week extended vacation, my PCP wasn't taking any chances and got me a rush appt with a hepatologist, which bought me a liver biopsy.  Hepatologist wasn't nearly as alarmed as the PCP, just wanted the biopsy to compare to my biopsy from 14 years ago.  Anyway, the sulfasalazine was discontinued and now I have no lupus medication.  The rheumie didn't want to start something less than a month before surgery.  But at last conversation, methotrexate was mentioned.  We'll see what he says in June.

Wow, this turned into a long post.  Oh well.  Anyway, I'm here hoping you get some energy back soon.  Just remember, when the weight is off, it WILL make the lupus easier to manage.

-Elli

I don't think so. I'M the REAL Amy!!!

Hello,

Where is Amy?  I have not seen you here in awhile....

Take care,
Kitty Kat