Recent Posts
Topic: RE: RNY and FOBI and LUPUS
I had the plain ol' RNY - no silastic there, either.
Your weight loss looks phenomenal! I hope I will just get through this nasty infection ... and get on track..
I have lost about 10 pounds, but of course my surgery was just ten days ago.
Btw, I like your music ticker. I'm a jazz and blues fan.
Your weight loss looks phenomenal! I hope I will just get through this nasty infection ... and get on track..
I have lost about 10 pounds, but of course my surgery was just ten days ago.
Btw, I like your music ticker. I'm a jazz and blues fan.
Topic: RE: RNY and FOBI and LUPUS
Yes, I had my DS February 25 of this year. I was 5 months out as of Saturday.
There is no silastic anything involved in the DS.
About 75-80 percent of the greater curvature of the stomach is removed which is the part of the stomach that produces most of the hunger hormone ghrelin. The pylorus is left intact as is the upper part of the duodenum, so, there is a fully functoning stomach . The "switch" part of the operation makes a separate biliopancreatic channel and ailimentary channel, which meet at the common channel that varies from 75 to 150 cm. This is where the digestive juices mix with the food broken down by the stomach acid (the smaller stomach still produces acid and churns food, the way it's supposed to) and is the only place nutrients are absorbed. the common channel empties into the large intestine, and is on its way out of the body at that point.
If you have dysmetabolic syndrome, the DS is the surgery for you!
Yes, I had my DS February 25 of this year. I was 5 months out as of Saturday.
There is no silastic anything involved in the DS.
About 75-80 percent of the greater curvature of the stomach is removed which is the part of the stomach that produces most of the hunger hormone ghrelin. The pylorus is left intact as is the upper part of the duodenum, so, there is a fully functoning stomach . The "switch" part of the operation makes a separate biliopancreatic channel and ailimentary channel, which meet at the common channel that varies from 75 to 150 cm. This is where the digestive juices mix with the food broken down by the stomach acid (the smaller stomach still produces acid and churns food, the way it's supposed to) and is the only place nutrients are absorbed. the common channel empties into the large intestine, and is on its way out of the body at that point.
If you have dysmetabolic syndrome, the DS is the surgery for you!
Topic: RE: RNY and FOBI and LUPUS
Yes, I can understand. You've lost quite a bit of weight! Does the DS have the silastic?
I would urge anyone with SLE or other autoimmune illness to avoid that - but that's because of my own experience with silicone implants and autoimmune disorders. And, I have to add that my surgeon told me that silastic (as in the lap band) is contraindicated for anyone with autoimmune illnesses.
I have 3 autoimmune illnesses - SLE, MS and Hashimoto's thyroiditis.
My SLE has been inactive, too, for some time, although I still take plaquenil. I've also had no MS flareups in years.
I do think our immune systems are different - I've had some weird things that people who are not immune-compromised don't seem to get. So, it is important to be cautious. When I looked at WLS, I had to weigh those concerns against the health impact of not having the WLS. It was a no-brainer.
I had the RNY, which does not have any silastic ring or band.
I gained a good portion of my weight just before and after being diagnosed with SLE in 2004. Someone told me that I couldn't have SLE because people with SLE lose, not gain, weight. I could gain weight lookimg at food.
I wish us all well on this journey. I started walking in the hospital, although the last ER visit didn't thrill me. I had an infection in the incision site, and just got out of the hospital today. Now I'm home, with a pic line and home-nursing to come by every day to change and pack the wound (a hole in my abdomen now) and give me IV antibiotics which I still have to take for another two weeks.
Tomorrow I am getting my long hair CUT. I can't figure out how to use our shower - it is not walk-in like the hospital's. I may have to get a hand held spray. I can't get my right arm wet because of the pic line and can't get my abdomen wet because of the wound. I'm just looking at the task of bathing and it makes me tired. I'm walking around with an open hole in my stomach - the surgeon in the hospt had to open up the incision, and dig out the infection and crud.
It's been just a bit painful.
I would urge anyone with SLE or other autoimmune illness to avoid that - but that's because of my own experience with silicone implants and autoimmune disorders. And, I have to add that my surgeon told me that silastic (as in the lap band) is contraindicated for anyone with autoimmune illnesses.
I have 3 autoimmune illnesses - SLE, MS and Hashimoto's thyroiditis.
My SLE has been inactive, too, for some time, although I still take plaquenil. I've also had no MS flareups in years.
I do think our immune systems are different - I've had some weird things that people who are not immune-compromised don't seem to get. So, it is important to be cautious. When I looked at WLS, I had to weigh those concerns against the health impact of not having the WLS. It was a no-brainer.
I had the RNY, which does not have any silastic ring or band.
I gained a good portion of my weight just before and after being diagnosed with SLE in 2004. Someone told me that I couldn't have SLE because people with SLE lose, not gain, weight. I could gain weight lookimg at food.
I wish us all well on this journey. I started walking in the hospital, although the last ER visit didn't thrill me. I had an infection in the incision site, and just got out of the hospital today. Now I'm home, with a pic line and home-nursing to come by every day to change and pack the wound (a hole in my abdomen now) and give me IV antibiotics which I still have to take for another two weeks.
Tomorrow I am getting my long hair CUT. I can't figure out how to use our shower - it is not walk-in like the hospital's. I may have to get a hand held spray. I can't get my right arm wet because of the pic line and can't get my abdomen wet because of the wound. I'm just looking at the task of bathing and it makes me tired. I'm walking around with an open hole in my stomach - the surgeon in the hospt had to open up the incision, and dig out the infection and crud.
It's been just a bit painful.
Topic: RE: RNY and FOBI and LUPUS
Jeane-
It took a while to find a doctor to do any type of WLS on me, especially since I have SLE.
Most surgeons are just plain scared, because of the trauma, and risk of a severe flare.
My surgeon didn't have a problems with it, because my lupus has been stable for the last 6 months prior to surgery.
Of course, there's no telling when it might kick up again. Hopefully, never.
Jeane-
It took a while to find a doctor to do any type of WLS on me, especially since I have SLE.
Most surgeons are just plain scared, because of the trauma, and risk of a severe flare.
My surgeon didn't have a problems with it, because my lupus has been stable for the last 6 months prior to surgery.
Of course, there's no telling when it might kick up again. Hopefully, never.
Topic: RE: RNY and FOBI and LUPUS
I had a standard RNY. For several reasons, my doc recommened that over the lap band. The biggest reason is because i have lupus and multiple sclerosis.
Lap band is contraindicated for anyone with autoimmune illnesses, because of silicone used. From your description, it sounds like the Fobi Pouch also incorporates a silastic ring - that is silicone.
I may be more sensitive than some about this issue, because I had had 20 year old ruptured silicone implants removed in 2004, after being diagnosed with multiple autoimmune illnesses, having hives and anaphyactic shock, and rashes that would not go away. I won't get into the controversy there but suffice to say that I suspect some people may be more susceptible to problems with silicone than others. Additionally, there is a reason the silastic ring is contraindicated for people with autoimmune illnesses.
I wouldn't do it, if it were I.
I just had RNY on July 16. I did have a complication from infection and just got out of the hospital today.
Lap band is contraindicated for anyone with autoimmune illnesses, because of silicone used. From your description, it sounds like the Fobi Pouch also incorporates a silastic ring - that is silicone.
I may be more sensitive than some about this issue, because I had had 20 year old ruptured silicone implants removed in 2004, after being diagnosed with multiple autoimmune illnesses, having hives and anaphyactic shock, and rashes that would not go away. I won't get into the controversy there but suffice to say that I suspect some people may be more susceptible to problems with silicone than others. Additionally, there is a reason the silastic ring is contraindicated for people with autoimmune illnesses.
I wouldn't do it, if it were I.
I just had RNY on July 16. I did have a complication from infection and just got out of the hospital today.
Topic: RE: Lupus and verticle sleeve
Keep trying, Cakes!
There were surgeons *****fused me, too. But I kept trying until I found one who was comfortable with performing the surgery.
I am on disability because of the SLE/Fibro combo. For many surgeons, the question is: do the benefits outweigh the risks?
Prednisone helped get me to 387 pre-op. Immediately post-op, I was 405.
Today, when I weighed for my surgiversary, I weighed 292.8 lbs. I have not been below 300 lbs. in more than a decade!
The weight loss has helped my joint pain, especially my knees and ankles, though I must admit, Voltaren Gel has had a hand in my pain relief, too!
I am hoping that my weight loss will propel me back into the workforce up to my retirement age!
Keep trying, Cakes!
There were surgeons *****fused me, too. But I kept trying until I found one who was comfortable with performing the surgery.
I am on disability because of the SLE/Fibro combo. For many surgeons, the question is: do the benefits outweigh the risks?
Prednisone helped get me to 387 pre-op. Immediately post-op, I was 405.
Today, when I weighed for my surgiversary, I weighed 292.8 lbs. I have not been below 300 lbs. in more than a decade!
The weight loss has helped my joint pain, especially my knees and ankles, though I must admit, Voltaren Gel has had a hand in my pain relief, too!
I am hoping that my weight loss will propel me back into the workforce up to my retirement age!
Topic: RE: Lupus and verticle sleeve
Cakes-
I have lupus AND fibromyalgia, and I also have a FULL DS! My meds are doing just fine, and I've lost 112.2 pounds as of today, my 5 month surgiversary!
I take Plaquenil, Flexeril, Lyrica, Tramadol as needed, Cymbalta ,which takes care of pain and depression...this was pre-Lyrica approval for fibro, I continue to take it to keep depression at bay.
Xanax as needed, and Mirapex for restless leg syndrome.
Of course, this is just my case. I don't know how severe your SLE is...but one thing is for sure...weight loss will help pain management!
Check with your surgeon if you think a full DS might be right for you.
Cakes-
I have lupus AND fibromyalgia, and I also have a FULL DS! My meds are doing just fine, and I've lost 112.2 pounds as of today, my 5 month surgiversary!
I take Plaquenil, Flexeril, Lyrica, Tramadol as needed, Cymbalta ,which takes care of pain and depression...this was pre-Lyrica approval for fibro, I continue to take it to keep depression at bay.
Xanax as needed, and Mirapex for restless leg syndrome.
Of course, this is just my case. I don't know how severe your SLE is...but one thing is for sure...weight loss will help pain management!
Check with your surgeon if you think a full DS might be right for you.
Topic: would like some information
Since this is a lupus forum I have a few questions about lupus. My mother had lupus for 30 yrs before being diagnosed. What kind of testing do they do these days for lupus? What are the chances of inheriting lupus? The last I knew the only way for a true dianosis is made is when an autopsy is done and every thing else is lupus suspect.
I am curious about this. My mother died at the age of 57 and I just turned 51. Any and all comments are welcome.
Hugs from Baltimore
Lori
I am curious about this. My mother died at the age of 57 and I just turned 51. Any and all comments are welcome.
Hugs from Baltimore
Lori
Most Active
Recent Topics
