Recent Posts

hamptons11937
on 4/21/10 10:15 pm - East Hampton, NY
Topic: I decided on the VGS and am 9 days post-op!
 To my Lupus friends:
My last post was regarding which procedure i wanted to have done.  After a lot of research, the vertical gastric sleeve seemed the best choice for me.  I am happy to say the operation went well and I'm feeling okay.  I had a bit of a Lupus flare after the surgery, but it went away the day I left the hospital... I felt so blessed.
I'm no expert in WLS, but I've had Lupus for what seems like forever and if there's any way I can help anyone or answer any questions, please let me know.
 Kim                 
Guernica Loser
on 4/20/10 4:58 pm
Topic: RE: I have SLE and nervous about which kind of procedure to have done
duh me!  you had your surgery!!!!  CONGRATULATIONS!!!!!  I hope you're recovering well and feeling better.  I'm so happy for you!
I've been on prednisone and chemo for over 7.5 years.  Gained over 160 pounds due to pred. Highest wt. 410. Surgery wt. 365. Current wt. 299
See ya,400s, 90s,80s,70s, 60s, 50s, 40s, 30s, 20s, 10s 300s!!!!  
                                    
             
Guernica Loser
on 4/20/10 4:57 pm
Topic: RE: I have SLE and nervous about which kind of procedure to have done
I have wegener's and if my insurance covered the sleeve I may have gotten that although my rheumy didn't like that idea.  I have the lapband.  I like it so far, but weight loss is slower.  If your insurance will cover the sleeve take a look into that.  I know with malabsorption it's not a good idea for us to get rny or ds.

hugs about pred.  I've been on pred and chemo over 5 years now.  Losing almost a 100 from my highest weight has helped, but I still have a long ways to go.  Come back and tell us how things are!
I've been on prednisone and chemo for over 7.5 years.  Gained over 160 pounds due to pred. Highest wt. 410. Surgery wt. 365. Current wt. 299
See ya,400s, 90s,80s,70s, 60s, 50s, 40s, 30s, 20s, 10s 300s!!!!  
                                    
             
murfy
on 4/19/10 5:13 pm - Jacksonville, FL
Topic: RE: lupus patients who have had gastric bypass
i have lupus and RA and degenertive disc disease. i am getting open rny tomorrow.
Murf

      
        
lybbenjamin
on 4/19/10 2:44 pm - Brooklyn, NY
Topic: RE: Please READ !!!!!!!
Hello Jennifer,

It is great that you are concerned about your Mom and are willing to seek advice from others.

About a year ago I started experiencing severe chest pain.  At first I thought it was acid reflux attack or severe heartburn so I went to GI specialist who instructed me to increase my GERD medication. But I still continued getting chest pain so severe at times I would describe it as "crushing pain".  You know that saying about having a monkey on your back, well I felt like I had a monkey on my chest.  I finally scheduled a visit with my primary care physician for next day however hours befor my appt. I woke up and chest pain was so bad I could barely breathe from the pain.  I was rushed to ER to find out that I had a blood clot in my lungs also known as a pulmonary embolism.  I later found out that due to my autoimmune disease along with decreased physical activity it can place someone at risk for blood clots.

I encourage you to try to encourage your Mom to go to her doctor and explain her symptoms so she can get proper treatment if needed.

Best wishes to you and your Mom.
lybbenjamin
on 4/19/10 12:56 pm - Brooklyn, NY
Topic: RE: I have SLE and nervous about which kind of procedure to have done
Hello Everyone,

I was diagnosed with Sarcoidosis (an autoimmune disease similar to Lupus) 18 yrs ago.  Unfortunately the only treatment that works for me when I have flare ups is Prednisone.  It has several side effects, but the one that bothers me the most is the weight gain.  I have tried many things but have been unsuccessful.

I finally have decided that weight loss surgery is the best option.  However, I have concerns about which surgery would best.  I feel lapband would be least invasive but concerned that since it is a foreign object my immune system will attack it and erode, damage, or corrupt lapband causing complications.  The other options seem more invasive and I worry about slow wound healing.

I would appreciate information from anyone with Lupus or Sarcoidosis. Thanks!
Lissa Strombelline
on 4/14/10 9:42 am - PA
Topic: RE: Anemic and Low Platelets
Wish my doctor would give me a prescription for Valium for my hematology appoinment on Monday!!!


http://facebook.com/Lissa2002
Text Me: 814 806 7861


Lissa Strombelline
on 4/11/10 3:12 am - PA
Topic: RE: Anemic and Low Platelets
Thanks for your post!!  As far as I know, I don't have an auto-immune disorder.
I see a hematologist on April 19 and am EXTREMELY SCARED!!!!!!!!!!!!!!!!!!!!
http://facebook.com/Lissa2002
Text Me: 814 806 7861


talksoupslp
on 4/10/10 11:57 am
Topic: RE: Anemic and Low Platelets
Since you posted this on the Lupus forum, I will assume you have lupus or some related autoimmune disease.

Shortly after my RNY last May, my white blood cell count fell below normal.  We watched it for 3 months and when it was still low, they sent me to a hematologist.  He did a bunch of tests and he (as well as my rheumatologist and nephrologist) decided it was just my autoimmune disease doing funny things after having surgery.  Now, my white blood cell count is normal.  Of course, 3 weeks ago, my platelet count is now low.  I had it rechecked last week and am awaiting the results.  If they are still low, I will head back to the hematologist for more tests.

I wouldn't worry about it yet.  Nothing to worry about. 


Highest Weight/Surgery Weight/Current Weight/Goal
426.4/356/216.8/165?
Daisy S.
on 4/6/10 10:10 am - Spokane, WA
Topic: RE: I have SLE and nervous about which kind of procedure to have done
I'am on Medicare and my doctors office said that they have never had approval for a sleeve done, the doctor says that is what he suggests would be the best way to go.  Are you on a private insurance or Medicare.  Thank you so much...
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