Recent Posts
Topic: Positive ANA test results
i just received my test results today and my ANA came back positive...
they said i would need 2 more blood tests to try to figure out if it's lupus or RA....
can someone enlighten me a little?
im new to all of this and the pain is intolerable most days....
does the 2 more blood tests make any sense to anyone??? im lost..any help would be appreciated.
thanks!
they said i would need 2 more blood tests to try to figure out if it's lupus or RA....
can someone enlighten me a little?
im new to all of this and the pain is intolerable most days....
does the 2 more blood tests make any sense to anyone??? im lost..any help would be appreciated.
thanks!
pam 
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
Topic: RE: Day three after VSG surgery and I'm doing GREAT
I was diagnosed in 1995 myself. I had every single textbook indication and my doc was brand new MD and no freaking clue what I had. The dermatologist diagnosed me within seconds of seeing me. Of course, then I read up on it and smacked my forehead and said OF COURSE!
I'm continuing to do really well with my weight loss and feeling good in general. Getting in all my vitamins, liquids (most of the time) and I've been able to eat real food again. When one small meatball is a meal or you measure out 1 ounce of tuna fish and you can't eat it all ... well, I never thought I'd see that day for sure!!!
for any of you other Lupus Patients out there - do your research, check with your docs, and go for it.
I'm continuing to do really well with my weight loss and feeling good in general. Getting in all my vitamins, liquids (most of the time) and I've been able to eat real food again. When one small meatball is a meal or you measure out 1 ounce of tuna fish and you can't eat it all ... well, I never thought I'd see that day for sure!!!
for any of you other Lupus Patients out there - do your research, check with your docs, and go for it.
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: Day three after VSG surgery and I'm doing GREAT
Whoa! I had no idea you also had Lupus! I have had that diagnosis for about 15 years or so. I just wanted to say hello!
HW282 SW272 CW170 GW150 "I am allergic to carbs. They make me break out in fat.
Topic: RE: Day three after VSG surgery and I'm doing GREAT
thats great that ur surery went well. I just left the hospital today. I had some problems with gases, nausea and my xray since i was a bit swollen but im good now.happy everything went well for you.
Topic: Day three after VSG surgery and I'm doing GREAT
so I was a tad bit worried that my lupus may cause problems with surgery but alas, none! My Rheumatologist had me redo one of my test prior as it was running higher than normal but it had dropped a few points by the next week so he OKed me for surgery.
In my preop blood work my PCP found I'm low on D and K so I'm taking them now.
My surgery was a breeze, no pain, hardly any gas, I only gained 2 lbs from surgery and I'm not having trouble getting in my liquids. I almost think they did not do surgery but for the holes and staples in my belly. LOL
I'm walking and just doing really well. since I'm on 7 mg of prednisone daily, they gave me an extra shot of it during my anesthesia bliss (by the way which I woke up from with wide open eyes and a smile).
I can't wait to see what the future holds for me.
In my preop blood work my PCP found I'm low on D and K so I'm taking them now.
My surgery was a breeze, no pain, hardly any gas, I only gained 2 lbs from surgery and I'm not having trouble getting in my liquids. I almost think they did not do surgery but for the holes and staples in my belly. LOL
I'm walking and just doing really well. since I'm on 7 mg of prednisone daily, they gave me an extra shot of it during my anesthesia bliss (by the way which I woke up from with wide open eyes and a smile).
I can't wait to see what the future holds for me.
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: lupus patients who have had gastric bypass
Renee, Have you not learned that tacos and candy bars are NOT wise food choices? If sugar and grease make you ill, just do the obvious! Quit eating it!! And you need counciling from your bariatric support groups, social worker or psychologist. You may have lost wt but you are still making bad food choices. It is hard, I know but bariatric surgery is only a tool. Eating poorly is still sruck in your brain!! Good luck, Marjorie
Topic: RE: Lupus meds and RNY
Pre-Op 3 mos. post op 5 mos. post op At Goal Surgery Date - 12/10/2009 Goal Met -8/26/2010
Still doing well. I'm now down to taking the Paquenil once a day every day. I'm now down 66 pounds and continue to have no joint pain from the Lupus -- BUT about the time of my last post, I was able to start back into the warm water therapy at the Y, and that has been a Godsend in keeping me mobile and flexible.
It's very seldom that I have to take anything for pain, but the Ultracet is in the cabinet -- just in case. I also added back the Glucosamine when I "graduated" from chewables/liquid meds post op to pills -- about 3 weeks' out. So far, so good. I can't wait to see my rheumatologist at my checkup the end of May and see what the bloodwork shows -- I hope it turns out to be as good as I feel.
It's very seldom that I have to take anything for pain, but the Ultracet is in the cabinet -- just in case. I also added back the Glucosamine when I "graduated" from chewables/liquid meds post op to pills -- about 3 weeks' out. So far, so good. I can't wait to see my rheumatologist at my checkup the end of May and see what the bloodwork shows -- I hope it turns out to be as good as I feel.
Pre-Op 3 mos. post op 5 mos. post op At Goal Surgery Date - 12/10/2009 Goal Met -8/26/2010
Topic: RE: Lupus meds and RNY
It hasn't happened. I take Plaquenil once a day 3 days a week and twice a day on the 4 days that I do my cardio workout or water aerobics. Haven't yet had to touch the Ultracets post op.
While my experience may not be "normal", it has been a godsend to have this kind of pain relief already with just a 15 pound post op weight loss.
Big ole congrats to you!!! I decided on the Sleeve just in case. I take my 7 mg of prednisone daily, my 2 Plaquenil daily, and my other things as needed but I did not want to take a chance on anything after the surgery etiher.
Glad you are doing so well. Do you have any updates siince your last post?
On December 26, 2009 at 10:41 AM Pacific Time, Mountain Mama wrote:
I have SLE and am 16 days post op from RNY. Amazingly, I've had little to no joint pain since the surgery. I had to stop my glucosamine a week before surgery and dreaded the thought of the joint pain I was sure to experience afterwards.It hasn't happened. I take Plaquenil once a day 3 days a week and twice a day on the 4 days that I do my cardio workout or water aerobics. Haven't yet had to touch the Ultracets post op.
While my experience may not be "normal", it has been a godsend to have this kind of pain relief already with just a 15 pound post op weight loss.
Glad you are doing so well. Do you have any updates siince your last post?
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: I decided on the VGS and am 9 days post-op!
YEA FOR YOU!!! I'm on my 4th day of liquid pre op and have surgery on May 7! Saw my Rheumatologist last Friday and he said my labs looked ok but redid my double stranded anti DNA. It always runs high - about 20 and was 40 last week. Has been up to 125 with no flare so when it went down to 30's he said he is OK with letting me have the surgery.
Surgeon explained about the extra prednisone shock before they do the procedure and reminded me of slower healing time. I'd like to add you to my friends list to keep an eye on you and help me thru too. OK??
Surgeon explained about the extra prednisone shock before they do the procedure and reminded me of slower healing time. I'd like to add you to my friends list to keep an eye on you and help me thru too. OK??
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: I decided on the VGS and am 9 days post-op!
What made you decide on VSG? I have lupus & Sjogren's and recently diagnosed with diabetes. The RNY seems to be the best choice for me but I am afraid of the esophagus problems and gastroparesis (slow stomach emptying) with Sjorgren's and dumping syndrome (which I have often) with diabetes. Both the VSG and the DS have been recommended but neither are covered on insurance.
Most Active
Recent Topics
