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Topic: Testing 123
testing 123
JIMBO... 350lbs! lost!..... TRIPLE CENTURY CLUB!! HELL ...YEAH!
MY VSG......KICKS ASS! 
I am 6' 2" 
Topic: RE: Positive ANA test results
i took my first dosage yesterday and slept about 18 hrs....
phewwwwwww dont think i can function like that!
phewwwwwww dont think i can function like that!
pam 
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
Topic: RE: Lupus meds and RNY
Mommie-Mouse:
I have SLE, Fribromyalgia, MCTD and Reynaud's.
I took Mobic for a short time pre-op ( I have the DS), but my insurance wouldn't cover it, so my pain med was Tramadol (same as Ultracet). Post-op, Tramadol is my second-line pain med, and I use it if for some reason, the Lyrica and Cymbalta aren't doing their jobs.
I know lupies are warned away from the DS because of the malabsorption, but my dosages of Plaquenil, Lyria and Cymbalta were actually decreased after my weight loss. I can take NSAIDS if I need to, but I am now enjoying a 9 month remission. I have not had to use a prednisone taper since my surgery, and though I was expecting the trauma of the surgery to trigger a flare, it did not.
Prednisone had pushed my weight to an all time high of 405. I am now within 41.8 pounds of my goal of 145.
I am off my CPAP, I no longer have high blood pressure or restless leg syndrome.
I still must pace myself to make sure I have all the energy I need to complete my day, and, I am looking at coming off disability. I am participating in Social Security's Ticket To Work/Self-Sufficiency program. My first degree was a BA in Communications, and I worked for 20+ years as a radio news reporter. Unfortunately, that job is now too physical and stressful for me to resume with SLE. This fall, I will return to college to train for a new profession. My state Voc-Rehab will stick with me for 5 years until I become a RD, then go on to complete an MS in Nutrition. I plan to specialize in bariatric nutrition.
I have SLE, Fribromyalgia, MCTD and Reynaud's.
I took Mobic for a short time pre-op ( I have the DS), but my insurance wouldn't cover it, so my pain med was Tramadol (same as Ultracet). Post-op, Tramadol is my second-line pain med, and I use it if for some reason, the Lyrica and Cymbalta aren't doing their jobs.
I know lupies are warned away from the DS because of the malabsorption, but my dosages of Plaquenil, Lyria and Cymbalta were actually decreased after my weight loss. I can take NSAIDS if I need to, but I am now enjoying a 9 month remission. I have not had to use a prednisone taper since my surgery, and though I was expecting the trauma of the surgery to trigger a flare, it did not.
Prednisone had pushed my weight to an all time high of 405. I am now within 41.8 pounds of my goal of 145.
I am off my CPAP, I no longer have high blood pressure or restless leg syndrome.
I still must pace myself to make sure I have all the energy I need to complete my day, and, I am looking at coming off disability. I am participating in Social Security's Ticket To Work/Self-Sufficiency program. My first degree was a BA in Communications, and I worked for 20+ years as a radio news reporter. Unfortunately, that job is now too physical and stressful for me to resume with SLE. This fall, I will return to college to train for a new profession. My state Voc-Rehab will stick with me for 5 years until I become a RD, then go on to complete an MS in Nutrition. I plan to specialize in bariatric nutrition.
Topic: RE: I have SLE and nervous about which kind of procedure to have done
Hello all-
I have SLE, MCTD, Fibromyalgia, Reynaud's.
On February 25, 2009, after years of disability, I had a duodenal switch with Dr. Margaret Inman at St. Vincent's Bariatric Center of Excellence in Carmel, Indiana.
One year and nearly three months after my surgery, and an all-time high weight of 405, with a BMI over 60, I am 41.8 pounds away from goal.
I am now able to make it through most of my day caneless, although I still have to use a scooter for extended walking due to bad knee joints. I am no longer on prednisone. Plaquenil, Lyrica and Cymbalta are now effective in controlling pain and limiting flares. I am enjoying a 9 month remission at this point. The trauma of the surgery did NOT trigger a flare!
I no longer have sleep apnea or high blood pressure or restless leg syndrome.
I understand that many of us lupies are warned away from the DS, due to medicatin adjustment and absorption issues, but I was surprised during my journey that my Lyrica dosage was cut in half, as was my Cymbalta dosage. As I mentioned before, I no longer take Mirapex for restless leg syndrome, or Benicar for high blood pressure. I haven't had to use a prednisone taper the whole time I've has my DS.
The VSG is actually the top half of my surgery, and the bottom half is most closely related to a distal RNY.
For more information, log onto www.dsfacts.com .
Hello all-
I have SLE, MCTD, Fibromyalgia, Reynaud's.
On February 25, 2009, after years of disability, I had a duodenal switch with Dr. Margaret Inman at St. Vincent's Bariatric Center of Excellence in Carmel, Indiana.
One year and nearly three months after my surgery, and an all-time high weight of 405, with a BMI over 60, I am 41.8 pounds away from goal.
I am now able to make it through most of my day caneless, although I still have to use a scooter for extended walking due to bad knee joints. I am no longer on prednisone. Plaquenil, Lyrica and Cymbalta are now effective in controlling pain and limiting flares. I am enjoying a 9 month remission at this point. The trauma of the surgery did NOT trigger a flare!
I no longer have sleep apnea or high blood pressure or restless leg syndrome.
I understand that many of us lupies are warned away from the DS, due to medicatin adjustment and absorption issues, but I was surprised during my journey that my Lyrica dosage was cut in half, as was my Cymbalta dosage. As I mentioned before, I no longer take Mirapex for restless leg syndrome, or Benicar for high blood pressure. I haven't had to use a prednisone taper the whole time I've has my DS.
The VSG is actually the top half of my surgery, and the bottom half is most closely related to a distal RNY.
For more information, log onto www.dsfacts.com .
Topic: RE: Positive ANA test results
Are you having trouble sleeping? Seroquel is prescribed quite often as a sleep aid. Pain makes it difficult for many of us to sleep. It's used also to help with bi-polar disorder.
Topic: RE: Positive ANA test results
this is all so new to me and so darn confusing...
the doctor has put me on SEROQUEL for the next two weeks...
anyone have any clue whats up with that?
the doctor has put me on SEROQUEL for the next two weeks...
anyone have any clue whats up with that?
pam
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
Topic: RE: Positive ANA test results
thanks so much for your insight...
i really appreciate it
i really appreciate it
pam
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
"sometimes at night, i see their faces, i feel the traces they left on my soul.
those are the memories that made me a wealthy soul."
Bob Seger
1976
Topic: RE: Anemic and Low Platelets
OK - today is May 21. How did the appointment go for you? Good discussion? Find anything that you need to address or do you just have odd platelets? Hope you are OK. Please update us.
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: Positive ANA test results
I'm so sorry for your pain. I've had Lupus for 15 yeras now and I'm one of the lucky ones. Rarely do I have pain. My ANA is always crazy high and I'm tested every three months with about 5-8 vials drawn each time.
I hope you get your answer soon. Better to know - not easy to treat either as both can be unpredictable. HUGS and hope you get your answer soon.
I hope you get your answer soon. Better to know - not easy to treat either as both can be unpredictable. HUGS and hope you get your answer soon.
I'm Just Robin!
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Highest weight 250 - Goal Weight 150 - Current Weight 147
*** Hanging with Weight Watchers now to keep on track ***
Topic: RE: Positive ANA test results
Nothing about Lupus and other autoimmune disease seem to make sense. Sorry that you are in such pain.
I don't know much about the additional blood tests; not much help there. I've been suffering with lupus pain (or some type of autoimmune) for over 25 years, but just getting treatment. The doctors ignored my symptoms because I didn't have positive ANA until 2 years ago. Each subsequent blood test was more specific for lupus and still the doctor based her diagnosis on my symptoms and medical history. Autoimmune disease is just tricky cause you don't know how it's going to manifest.
I think the tests are just to narrow down which of the autoimmune diseases you likely have. Sorry to ramble.
I don't know much about the additional blood tests; not much help there. I've been suffering with lupus pain (or some type of autoimmune) for over 25 years, but just getting treatment. The doctors ignored my symptoms because I didn't have positive ANA until 2 years ago. Each subsequent blood test was more specific for lupus and still the doctor based her diagnosis on my symptoms and medical history. Autoimmune disease is just tricky cause you don't know how it's going to manifest.
I think the tests are just to narrow down which of the autoimmune diseases you likely have. Sorry to ramble.
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