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Topic: RE: My struggles with SLE and WLS
Thanks for writing back. Actually I'm on nothing. Not even depression meds. They took me off everything (don't think this is a good idea). The pred and plaq was working quite well, until I got the stricture and everthying went downhill from there. I take ativan for anxiety (instead of Effexor XR)
Nexium, some kind of anti nausea, Trazadone at night for sleep. I am a big mess inside. They say my anti depression drugs eat away at my liver and since I was in liver failure this was not good. Also, blood work from last week shows I am most likely in another Lupus flare. I forgot to mention that I also was diagnosed with Scleraderma.
Kathy
Nexium, some kind of anti nausea, Trazadone at night for sleep. I am a big mess inside. They say my anti depression drugs eat away at my liver and since I was in liver failure this was not good. Also, blood work from last week shows I am most likely in another Lupus flare. I forgot to mention that I also was diagnosed with Scleraderma.
Kathy
Topic: RE: My struggles with SLE and WLS
Hi there! I was diagnosed with SLE about 12 years ago and the reason I initially went to the doctor was because of all the stomach problems I was having. I think it would be hard to determine if it's the SLE or the WLS that is currently causing your problems. What meds do they have you on right now?
Topic: My struggles with SLE and WLS
Hi everyone,
I am 7 years out from RNY. I have lost 204 lbs and feel wonderful. Last year I was diagnosed FINALLY with SLE. It now explains 30 years of some really weird medical diagnosis'. I spent most of last year in a flare, it hurt so bad. In May of this year, doc put me on pred and plaq and I seemed to be doing better. However, (you know there's always a "however") over the summer I developed a stricture (imagine, this far out, but I also had one two years ago too, actually, I've had quite a few). I went to a gastro doc who dilated me, perforated my stomach, went back in to fix it and perffed my intestine. My RNY surgeon was called in and basically I had the RNY re-done, including removing more of my intestine. Not sure if this is related to the pred or not. After the intestine thing, I became septic, spent 6 weeks in the hospital with double pneumonia, liver failure, MERSA, kidney failure, on tube feedings, 8 days in a drug induced coma. I am finally home. Blood work from last week shows I am in yet another flare, so I am unsure of the pain I am feeling. Is it from the SLE or all the actual damage my body endured over the last 8 weeks (I've been home for 2 weeks now). My weight is down to 105 lbs (from 320) and I feel like a newbie, introducing foods every few days. Does the SLE affect your stomach/digestion too? Or is this just because they had to re-do everything? My body is so weak. I have visiting nurses, physical therapy and a nutritionist who visit 4 times a week. Anybody have any insight?
Kathy
I am 7 years out from RNY. I have lost 204 lbs and feel wonderful. Last year I was diagnosed FINALLY with SLE. It now explains 30 years of some really weird medical diagnosis'. I spent most of last year in a flare, it hurt so bad. In May of this year, doc put me on pred and plaq and I seemed to be doing better. However, (you know there's always a "however") over the summer I developed a stricture (imagine, this far out, but I also had one two years ago too, actually, I've had quite a few). I went to a gastro doc who dilated me, perforated my stomach, went back in to fix it and perffed my intestine. My RNY surgeon was called in and basically I had the RNY re-done, including removing more of my intestine. Not sure if this is related to the pred or not. After the intestine thing, I became septic, spent 6 weeks in the hospital with double pneumonia, liver failure, MERSA, kidney failure, on tube feedings, 8 days in a drug induced coma. I am finally home. Blood work from last week shows I am in yet another flare, so I am unsure of the pain I am feeling. Is it from the SLE or all the actual damage my body endured over the last 8 weeks (I've been home for 2 weeks now). My weight is down to 105 lbs (from 320) and I feel like a newbie, introducing foods every few days. Does the SLE affect your stomach/digestion too? Or is this just because they had to re-do everything? My body is so weak. I have visiting nurses, physical therapy and a nutritionist who visit 4 times a week. Anybody have any insight?
Kathy
Topic: RE: I have a few questions please help
First of all HUGS...
I was diagnosed with Wegener's Granulomatosis and it's also thought I have fibro. I was a school teacher and I had to finally give it up as it was just too much. You must be dead tired by the end of the day. I remember working, coming home and sleeping until the morning and do it again. I had no life and when I was awake I was just so tired.
I have to take chemo and prednisone for life. Are you on either? Of course higher doses of pred will really mess with your weight. Meds like Lyrica for fibro pain is not great for weight loss either, but then again neither is the pain. I have read that PCOS makes it more difficult to lose and I believe there is a PCOS forum on here? AND THE KIDNEY STONES? OUCH!!! Had that and never want it again!
I feel for you and if you need to talk I'm here. Is there any way you can take a family medical leave for a bit to help you build up some strength? I did that the first year I was diagnosed and it did help some, but in the end I had to throw in the towel. I had been working and going through school for over 10 years with it (before being diagnosed) and my body just finally said NO MORE.
I was diagnosed with Wegener's Granulomatosis and it's also thought I have fibro. I was a school teacher and I had to finally give it up as it was just too much. You must be dead tired by the end of the day. I remember working, coming home and sleeping until the morning and do it again. I had no life and when I was awake I was just so tired.
I have to take chemo and prednisone for life. Are you on either? Of course higher doses of pred will really mess with your weight. Meds like Lyrica for fibro pain is not great for weight loss either, but then again neither is the pain. I have read that PCOS makes it more difficult to lose and I believe there is a PCOS forum on here? AND THE KIDNEY STONES? OUCH!!! Had that and never want it again!
I feel for you and if you need to talk I'm here. Is there any way you can take a family medical leave for a bit to help you build up some strength? I did that the first year I was diagnosed and it did help some, but in the end I had to throw in the towel. I had been working and going through school for over 10 years with it (before being diagnosed) and my body just finally said NO MORE.
I've been on prednisone and chemo for over 7.5 years. Gained over 160 pounds due to pred. Highest wt. 410. Surgery wt. 365. Current wt. 299
See ya,400s, 90s,80s,70s, 60s, 50s, 40s, 30s, 20s, 10s 300s!!!!
See ya,400s, 90s,80s,70s, 60s, 50s, 40s, 30s, 20s, 10s 300s!!!!
Topic: I have a few questions please help
I have been diagnosed with Sjogren syndrome and Lupus. I have been stalled for 3 months now a I am getting very fustrated. I am sleepy and exhausted all the time esp after working the day before. I work on a medical surgical floor so very litle time to take it easy, or have an easy day. Is this normal for me. What do I have to look forward too? i don't know what to think or how to adjust my life any ideas? I also have Fibromyalgia, Vertigo and PCOS on top of kidney stones.
How does the RNY and Lupus effect each other?
Beverly
How does the RNY and Lupus effect each other?
Beverly
Topic: RE: Lupus and verticle sleeve
Hi,
I saw your post.
I had the lap band put in oct 2007.
In Jan 2010, i got sick and was feeling fatique, flu feeling was in hosp for 5 days.
Was sent home to follow up with all diff doc.
Final out come is I have lupus, polymylagia rumativa and my thyroid was low.
Since all this my band is just do wanting the fills, everytime i get one i have to go back to
get it unfilled, my doc wants to remove the band and do the sleeve.
just wanted you input on this and how do you like the sleeve.
Thanks,
Colette
I saw your post.
I had the lap band put in oct 2007.
In Jan 2010, i got sick and was feeling fatique, flu feeling was in hosp for 5 days.
Was sent home to follow up with all diff doc.
Final out come is I have lupus, polymylagia rumativa and my thyroid was low.
Since all this my band is just do wanting the fills, everytime i get one i have to go back to
get it unfilled, my doc wants to remove the band and do the sleeve.
just wanted you input on this and how do you like the sleeve.
Thanks,
Colette
Topic: RE: Does anyone ever go to this forum anymore?
I do, I am new to this site. But so far I like it. My surgery (rny)is scheduled for 1/11/11. I am so nervous but so excited.I just hope I can follow everyaspec to have a good result. any suggestions??? Congrats on everything, you look like you have done well.
lani
lani
Topic: Does anyone ever go to this forum anymore?
Is anyone out there?
Height 5'6" HW 263 SW 239 LW 142 From size 20/22 to size 5/6
At 4 years out I crept back up to 180 now working my way back down. CW 173 size 10
(deactivated member)
on 10/5/10 5:14 pm
on 10/5/10 5:14 pm
Topic: RE: lupus patients who have had gastric bypass
ok, talksoup! that was totally rude. that person has a real problem, and you just craped on her. not nice. give her some advice she can use. 
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