My condition isn't listed but I am seeing a ton of Auto-Immune diseases dx following the weight loss surgery... Just to let you all know, my condition was very difficult to dx. It began with a little tingling in my toes, weakness in legs and arms, for a while it felt like I was stepping on a stone when I walked. Then I felt like I was wearing a tight pair of knee highs but I wasn't. The nubness slowly creeped higher and higher...still no dx. I went to specialists, to University of Michigan Hospital. Was misdiagnosed. Then I started losing my balance, and falling. I was tipping from side to side, I was dropping things. Things would fly right out of my hands. I fell and fractured three ribs...finally dx with CIDP. It is a cousin to GBS. Well, I was paralyzed and hospitalized for over a month. I came home, only to end up back in the hospital with three blood clots in my left leg and multiple in each lung. I didn't think I would make it that time. But God wasn't ready for me yet.

I had to learn to walk again. Two years later, I was finally walking with braces and a cane. I broke my right foot and I still in braces and using a cane. I am 54 years old now... I feel a lot older now. I went to Mayo Clinic in MN to confirm my dx and to Cleveland Clinic. I am trying my best to be the best I can be. I am just so upset about my weight again.  I posted in Lupus because Lupus is also an auto-immune disease. I hope yous don't mind. If anyone is having tingling and numbness in their toes and fingers- please inform your docs about this very rare disease. If mine would have been dx sooner, I would not be crippled. 

Myom died at age 25 from lupus, I was Dx'd in my late 20's. long story but after a year of steroids and immuran docs sent me home to die... Found alternative doc who put me on Gerson cancer therapy... Now I'm 53, eat clean (not as clean as back then) but I juice a lot and lots of raw. I'd really like to know what a day of eating is like for you. I'm waiting for insurance and chose the sleeve. What is RXY!

Hi there ,went in my mouth

I have had the WLS RXY Gastric By pass June 13 2012 it saved my life i was 389 now 188

Raw foods is a choice for my life i do lots of green in smoothie form juice and much more .

I honestly have seen it change my life so, i recommend it to any and all that will listen.........

My story is simple i was on a path of destruction emotional eating, and everything that was not nailed down especially oy vey Dough, I was dying basically........I researched went to the Docs the meetings the counseling,  Jumped through the hoops and came out the other side 3 years later a healthy vibrant full of life individual. and Would be  happy to help you on your journey also

check me out on thepinkrabbithole.com

and let me know what i can do to help

Love and Violet Light  and Blessings

BE good to you!

Dr. Pinky

I have a question, I take it that you have already had WLS, and wondering what kind surgery you had and how eating raw food works with that?  I totally believe in raw, alternative and juicing as it saved my life years ago when my lupus was so bad...  but now I am considering WLS.  I didn't think if you had the WLS you could do raw foods or juicing?  Can you elaborate as to how this has worked for you?  Are you happy you had WLS done?  Thanks, I meet with WLS doc for the first time next week, still very undecided about all of this as of now, your post very much intrigued me and hopefully can answer some questions I have before meeting with the doc.  Thanks again!

I think many surgeons are afraid to do the full DS on many patients because of the autoimmune issues, and the shock that a big surgery might have on the body, setting off a major flare.  My surgeon was concerned, but we agreed the benefits outweighed the risks, and she kept me in the hospital a full week post-op, just in case I went into a major flare.

I feel like a different person.  I no longer use my mobility scooter, and I no longer need my cane on a daily basis.  If my balance is a little off, I may use it for a day or two, but other than that, I'm feeling pretty near normal!

I am no longer on long term prednisone.  Prednisone is something that I will get only during severe flares, and pre-op, that was quite often.  I have only had to take a prednisone taper *once* since my DS, and that was before I lost the majority of my weight.

Now, I'm simply doing the basic SLE/Fibro drug ****tail - Plaquenil, Cymbalta, Lyrica, Tramadol 1st line for pain, Vicodin 2nd line for pain, and Flexeril. Of course, I have my vites and minerals to take as well, and I still do protein shakes.  NEVER let go of them completely, no matter what the doctor or dietitian tells you!  We simply can't eat enough to maintain the protein levels we need.   I can e-mail you my personal schedule of what I do if you send me your e-mail address.
I also have Vitalady's list for her DS and deficiency packages.  Let me know if you want that as well. My e-mail is [email protected]