ALL MIXED UP LUPUS AND RNY HELP!!
(deactivated member)
on 8/25/10 3:52 am
on 8/25/10 3:52 am
Hi, to all my fellow sisters and brothers who find themselves on this roller coaster of life after surgery. My background is that I started as a 5' 21/2" 235 lb 34 y/o woman, who was pretty healthy I did not have diabetes, high blood pressure heart problems or cholesterol problems, but I had hypothyroid, fibromyagia and lupus. This combination of pain and meds and thyroid made it hard to lose and keep off weight. So I with a gaggle of doctors, decided that gastric by pass would be my best option to keep me from gaining additional weight and avoiding the health risks that come with it. Well I have done well lost 125lbs down to 110lbs, had lower body lift and got new breasts. Things were going great labs were great, then BAM! my bone density scan showed osteoporosis, PTH doubled the norm, and lost 1/2". And finally after a year of mega D, ZINC< MAG,CALC,PHOSP,IRON, A,C,E, B COMPLEX, my next scan was worse they finally approved me for RECLAST infusion, because of my age its only been approved for postmeno women over 55, and we can not take bone meds orally because of absorption problems. That brings me to my current problem, the diet for Lupus treatment calls for low protein, sulfa containing vegetables and opposite of that for a high protein diet that bypass patients are to be on, they suggest soy but soy inceases xenoestogens and mess with the thyroid, this was not an issue till about 6 moths ago when the pain has increased and food makes me sick, and of course Tylenol just doesn't cut it, I am taking melxocam which no one can agree on, but it helps. I need a rhumotlogist, nutritionist, endocrinologist and weight loss specialist that can agree on what is right for me, has anyone had this problem? please help
(deactivated member)
on 10/5/10 5:07 pm, edited 10/5/10 5:09 pm
on 10/5/10 5:07 pm, edited 10/5/10 5:09 pm
omg , i am so sorry that you are going through such a horrible situation. i am speechless. i would not know what to advice you. i also have an illness. it is cidp. autoimmune disease and i am 57 years old. thinking of getting wls. now , all i can say is that you helped me to decide not to have it. i will pray for you to find a good dr. i know how difficult that can be, especially if no one really knows what to do. God bless you, linkee p.s. i get infusions once a month for it. ivig.