sjogren's syndrome

i just had labs done that look like i have sjogren's...i have the eye and mouth dryness parotid gland infections.. definite autoimmune with antiphospholipid syndrome but i hurt in my muscles and joint so bad but i don't think it is as bad as i hear people with fibro or "lupus flare" any body out there have sjogren's ? and do you have pain?

I have Sjogren's and lupus.  Well, okay, my current rheumie isn't so sure about the lupus and instead chooses to call is "unspecified connective tissue disease".  I believe for most patients Sjogren's is a secondary diagnosis with some other autoimmune disease being primary.  Sjogren's causes joint and muscle pain just as lupus and other autoimmune diseases do.  And it can be just as severe...depends on the individual.

i definitely have antiphospholipid syndrome.. i guess that might be primary..years ago i had positive ana and high sed rate md thought i had scleroderma...today i have neg ana ...SSa test normal range is 0-0.9 my number is 8...seems i find on computer search that is indicative of sjogrens and lupus...am due to see rheumy in3-4 weeks

Unfortunately there are about a million things that could be leading to your discomfort.  Lucky for me I have autoimmune diseases out the wazoo in my family and know a little bit about it.  Pretty much any autoimmune disease will cause joint pain.  Sjogren's goes hand-in-hand with it.  My sister has Sjogren's and she has had the run-around with Lupus, Connective Tissue Disease, etc.  I think we have finally narrowed it down to Sjogren's, Lupus, and some gluten intolerance <= check out the gluten stuff- it is really interesting and can account for a LOT of the symptoms associated with autoimmune disease!  When she cuts out gluten her life improves drastically.  Unfortunately she's a sucker for the good stuff- bread, chips, cookies, basically all the yummy stuff.  Anyway, a flare doesn't have to be horrible and debilitating.  Some people's "flares" just make them feel run-down.  That's all I've experienced so far- I supposedly have Lupus but I have re-diagnosed myself with Fibromyalgia. 

I feel lucky because after reading this forum I'm thinking I've got it pretty good.  At the same time I feel guilty because I still have aches and complain- but compared to a lot of the people on here it's minor.

I hope this helps :)

thanks lou...i don't know what i have rheumy told me i don't have scleroderma(just by looking at me?) when in past 2 other md thought i did have sclerloderma so i will gladly accept sjogrens and lupus...but like i said i am soooo sore in joints and MUSCLES like deltoid area and side of hip from waist down to "saddlebag" area neck shoulders blah blah blah...but to top it all my anti phospholipid  gave me blood clot in head in2005 ..my neuro md says no nsaids ...they increase pressure in head ...i have increased liver enzymes so no tylenol so since 2005 i've had noooo pain med of any sort i weigh 230 lbs and am on scedule for sleeve within 1-2 months so weight loss should help some?

 I have Sjroren's (sp?).  

The symptoms are pretty easily manageable with eye drops, creams, constant warm beverages, and non-NSAID pain relief.  I do also have baby aspirin every other day, which helps keep inflammation down.

Unfortunately (or fortunately, depending on your POV) lupus and its relatives are fairly rare, so most gastric surgeons (and other surgeons) don't really know how to manage the care.   It is a very newly developing area.  Your rheumy and surgeon will have to work together on this one. 

Shushu,
I feel your pain as the saying goes.  I have Systemic Lupus, Sjogren's, Fibromyalgia, and a myriad of other autoimmune related syndromes, etc.  It's sometimes nearly impossible to find out what is the main cause of the pain.  The fact is, you're in pain.  Pain in my case is due to inflammation.  I, unfortunately, have been on Prednisone which has caused me to gain a lot of weight, as well as other medications.  
For the Sjogren's Syndrome itself, I've used eye drops and mouthwash as directed by my doctor (my endocrinologist and rheumatologist).
I saw my rheumatologist yesterday and my Lupus labs looked good (for me), but I'm still in a tremendous amount of pain.  He told me I could take a low dose Darvocet with Motrin if I felt the pain was bad enough.  I can't say I would want to recommend that to anyone though.
My doctors have said my weight is adding to my pain.  Well, no kidding.  That is one reason why I need to have WLS.  The lesser my weight, the less pain I'll be in.
I like what the woman said about gluten intolerance.  I would recommend you also see your allergist and get tested for common allergens.  I found out I have an allergy to casein (a milk protein), and gluten (basically wheat).  Just as the lady stated, when I avoid these foods I feel better, less pain because I'm not having an inflammatory allergic reaction, and I usually lose a few pounds when I follow it on a regular basis.
I also find stretching and a warm bath help.
I hope I've said something useful to you.  I'll keep you in my prayers.  I know how painful it can be.