Good morning

I kinda lost my swing yesterday but Im back at it. I hope to have time around lunch to read all the posts today as I will be in one place for a few hours.

I have a coupld rare syndromes, disorders, complexes. Ive dealt with them all my life but they had no names. Four or five years ago I got a name for one of them when they found angiomyolipomas in my kidneys...did the normal "mourn the years of being scoffed at" and was able to be grateful for finally having some kind of diagnosis.

But the other mysterious ones that no one could give me rhyme or reason for still plagues me but I may be close to getting an occifial answer.

I get hives. Many different kinds. I get them from ice on my arms, too hot of a shower, stress, sweating, scratching. to tight waist bands etc...and it doesnt happen ALL then time. I can go years with nothing and then I will spend three years fighting only to have it go away again. Sometimes it just happens for no reason There is also severe stomach and intestinal issues.

I went into ER yesterday (I live less than five miles from the hospital now) like I always do when I wake with fast moving "hives". I melted two benedryl in ho****er to make them work faster, shot them down, grabbed my epi pen and left. Got to ER and was treated quickly but this time a young ER doc gave me some information that connects EVERYTHING for two of these issues.

My GP has tests back about some autoimmune stuff he was looking for, but what the er doc said may be the auto. disorder he is looking for...

(Sorry for the novel) So today I am trying to be easy on myself. This would explain the flukey restriction on my band and theres another whole line of questions if that is so..It explains years of illnesses...Im angry and working through it...The motivational post today really helped me get in line and get ready to take on today---one thing at a time and first things first.

Bringing extra fluids as Im a pretty sunburnt. Light foods to avoid stomach upset and shopping for a hat to shade my poor fried face.

Culmination

I am:

Mixed emotions in motion.

Excited
Angry
Sad
Hopeful
Organized
Steadfast

Thanks for listening. Im now going to go out and scatter my emotions to the wind and deal with the day.

((((((((((Chrissy))))))))))))

I've been enjoying your posts everyday and your upfronted-ness about everything.  I imagine it  must feel good to finally get a name for some of what you've gone through.  I hope you have a great day....As I read your last sentence, I pictured you scattering your emotions like throwing out seeds for  the birds. 

 Thanks so much Jolena, youre befriending me has really helped me feel more at home here. I tend to sometimes overwhelm people with my extroversion and I know it. I just gotta be me though and its been nice getting to know you.