Hello there, I have to say that I truly understand Just how you feel,  I have otosclerosis  also, and how I found out was one day I went to use my telephone to make a phone call and I could not hear a dial tone in the phone.  I thought that my phone had been disconnected  for some reason.  But when my children came home from school and my husband home from work they all used it and thought I was nuts because I had been upset all that day over not being able to call anyone.  Now silly me never thought to put the phone to the other ear until my husband asked me to. it was then I new I had hearing loss.  My ENT told me I had otosclerosis and I did not want to believe him and thought he just wanted to operate on my ear, back then it was just my right ear, Since then I have seen several ENTs and they all say the same.  about 2 years back I had gotton a hearing aid for my right ear the cic hearing aid is small and fits way down in the ear. well that lasted all of 6 months 2200.00 down the drain. back then my hearing loss was moderate loss within that year I started to loose some hearing in the other ear and begain to have some nerve loss in my right ear as well so the sugery would not work for me @ all.  Now today I have severe loss in my right ear with nerve loss as well and in my left ear I have moderate to severe loss also with some nerve loss.   For many years I tried to tell my family about this disease but no one understood me.  Everyone wondered why I was loosing my hearing, Until my birth father who did not raise me. I was talking to his wife and she was telling me her youngest daughter was having sugery on her right ear because she has otoscelosis.  then I knew where it came from.  My Dad blames Himself  sometimes for my deafness but it is not his fault.  For me life is sometime lonely and stressful,  Communication is hard because my family do not know how to communicate with me and refuses to learn sign language.  I Work as a nurse on weekend nights so I do not have to be in the mist of all that confusion is what I call it.   One of my worst fears happened  a few days ago, while working the day shift.  The Doctor was standing across from me giving me verbal orders for a patient, and as much as I read lips I could not read his and I could not hear him speaking, My tinnitus was very loud  the phone ringing  call lights going off. I wanted to cry right then and there.  But there was one nurse our team leader who knew of my loss . She stepped right in and started taking down the order for me .  The Dr was sort of frustrated with me I could see it in his eyes, when it was all done I thanked her so very much. If only she knew how much she helped me that time.  she also mentioned to the Dr that I was HOH and going deaf.  But she also told him I was one of the best nurses they had on the unit.  I can't wait to get my hearing aids , not sure how long they will work for me but for now I need them.  I have already started taking asl which my Doctor  said I should do.  So once again I feel where you coming from.

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Hi Peggy, how ya doing? I think I visited you in the hospital, no? I was there seeing someone else.  I am deaf in one ear from the mumps when I was 5.  So I do have one good ear, which is losing hearing now cuz of age according to the hearing doctor.  They have a new hearing aid available for nerve deafness which I have, but it costs $3,500.00 I think it is and I don't have that kind of money.  Oh well, stay well.

Karen