any have Multiple Sclerosis n PCOS?

Heidi V.
on 2/6/05 5:07 am - stockton, CA
Lookin for pen pals who have a similar health problems like me, so we can be the extra shoulder for each other...
lhasaraptormom
on 3/28/05 1:17 pm - Spokane, WA
Hello I also have Ms I was dx in 1999. Kind of a cruddy disease huh? I found out I had it when my entire left side went numb... If you would like to chat I am here.
Angela L.
on 4/25/09 1:09 am
 Hi-

Do you still check this?  I have Ms too- doing great- no deficits.  Having Surgery in 2 weeks.

Angela
 Angela
liesehaley
on 7/25/05 9:36 pm - STATEN ISLAND, NY
i don't know if this helps any.... I have Pcos... my mother as MS so i had to live with her disease from the outside since i was a young kid.... i thought everyone's mother had it....lol
krisbrockmann
on 5/22/06 2:11 pm - Sunnyvale, CA
Hi, I have MS. was dxed in Nov. 2004. I had WLS on Dec. 9, 2006. I would love to have a pal. I had my last relapse 3 months ago and did my first steroid infusion. I am on Rebif (was on Avonex for a year and couldnt handle the side effects) The Rebif is working well for me with no side effects. By the way, what is PCOS? Keep in touch. Kris
GloryGirl
on 3/27/09 9:58 am - Columbia, MO
What is PCOS? I am 4 1/2 years postop and have just been diagnosed with MS.
BarEdul
on 3/29/09 9:16 pm
Hello, I have Ms and am looking for interactive places to chat and learn things.  Not to mention people for long term friendship.

PCOS is Poly Cystic Ovarian syndrome.  It is when your ovaries develop cysts a lot.  Howevr the disease comes with some long term effects that are nasty.  YOu can look it up under this name and learn more if you are interested.

I was just dx with ms, and am concerned about getting my surgery I have done everything necessary up till now.  However, my MS nuero has put the surgery on hold until he has some very important test back.  He wants to be sure of his tenative dx of Ms and wants to know surgery will not disrupt my body.

did you have any relapse when you had your surgery?
GloryGirl
on 3/29/09 11:11 pm - Columbia, MO
I did not have MS or at least was not dx with MS when I had my surgery 4 1/2 years ago. My diagnosis came just this last week. He did an MRI and then did a spinal tap and a visual test.  THe visual tst was fine but the MRI showed 25-30 lesions and the spinal tap was positive for whatever it is they lool for. he told me but I'm not sure IGG or IGB and the ratio between the two.

I have heard that surgery or trauma to the body can cause MS relapses. You will just have to talk to him. IF you do have MS he'll want you to go on one of the medications Im sure. It is supposed to slow or halt the progress of MS. I'm not looking forward to daily injection. THat may happen sometime this week or next. I'm waiting for the drugs to arrive and for a nurse to call to schedule a time to train me how to do this.
Loraluv-aol.com
on 4/18/09 2:17 am
Hi - I have had MS for a long time - I was diagnosed in june of 06 - But  I can remember being sick with it for at least ten years -before they finally figured my condition out... See it seems if you are over wieght - you are either depressed or unable to controll your appetite- So everthing that happens to you is because your FAT-  Well throw that ole "Fatigue from MS" in there and I was told I was Fat And Lazy...(Actually my Doctor said, "Lora you need to use your arms more and push away from the table" )  Thank God for a hubby and kids that loved me and believed that at times- I was really so tired I could hardly move.  Also a new Doctor that sent me to a neurologist after I told him my Left side was numb and every time I took a hot shower I felt like passing out... The moral of this story is = I think that being over weight has cause me more problems than anything else - Also My neurologist told me flat out, "wieght loss surgery is the best thing you can do for You &  your family!"  See she feels like if I am thinner - I will be able to move easier... Also it will improve my moral.  Ypou can always talk to me about MS I do not mind- I am now waiting to get my Lap Band and cant wait...
Lora Luv
lschable
on 1/24/10 11:34 am
Hi Lora,I saw your post and decided to write you. I too have MS and researching if it is safe to have WLS. I have had a dozen or so people respond with MS and the general consensus was to not have lapband if you have an auto immune diease. There is supposed to some PILLS from Europe coming to the US in the future and lapband may interfere, as well as having foreign object in your body. You may want to go for a second opinion. I have been told by my doctor not to get lapband. Anyway do your research. I do not know too much but I am getting so much info off of this chat
Good luck to you with the MS
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