My luck...

If it wasn't for bad luck, I would have no luck at all. And of course, anything dealing with me has to be complicated! Six months after my surgery I started experiencing weakness in my legs. And by the time I went to the hospital, I had no feeling in my feet and legs - and it was slowly moving up my body. After several tests, I was diagnosed with Guillain-Barre Syndrome, BUT my neurologist isn't 100% sure that's what I had. The "feeling" is coming back slowly, and my reflexes in my ankles are getting better - it's going to take time. I'm just frustrated because I have yet to receive a definate answer as to what happened to me. My question is, has anyone experienced anything like this because of the surgery?

Oh Sandy, I'm so sorry! That must be really frightening!!! At least you are recovering quickly. If it is GBS, your feeling and reflexes coming back is a good sign. If you didn't recover this fast, the paralysis could have been permanent. Didn't they test your spinal fluid, so they could give you a diagnosis on the GBS? The "not knowing" is the hardest part of any illness. I'll keep you in my prayers! God Bless, Erika L

Sandy I'm sorry you've been experiencing GBS. After I had surgery to remove an ovary and endometriosis back in '85 , nearly 5-6 months later I had symptoms and at the time didn't know anything about GBS but I was thought to have GBS. After many tests and a trip to the hospital I found out it was Chronic Fatigue Syndrome with Epstien Barr Virus which both are chronic and I deal with them sometimes 2-4 times per yr. The near paralysis in my face came back in a few weeks and I was up walking without help in a few months...So though I didn't have GBS I know about it and stress can bring it on....it is a virus, however I don't know how it would fit in post surgery unless your immune system is low.

Thank you for the kind words. I'm just sorry I found this message board so late after my surgery. Every test was performed when I first was sick. It confused my doctor because I had a lot of 'a-typical' signs of GBS, but the IVIG treatment helped me. I was hospitalized for 5 days, went home and alomst a month later had a relapse - of course, the 2nd time was the worse. I received a 2nd opinion and that doctor told me my neurapathy was because of the surgery ... but I have yet to meet anyone who had the same (or similar) problems like I did. Yes, the not knowing is the hardest. I just wish I could get a straight answer from my doctor. Another thing that stinks is, for the 1st time in my life my outside matches what I knew was inside and I really can't enjoy it.

Hey Sandy, I was just thinking about something, one of the reasons they ruled out GBS for me was I had not had a flu shot...for some reason I remember that was a big contributing factor, any chance you have the shot before or after your surgery? I never take flu shots. One thing is good to hear that your inside matches your outside. I think you are the first to post this that I've read. I hope you feel better soon so you can enjoy life.

gald your starting to feel better !!!!