FRUSTRATED !!! Anyone with low blood pressure and or pacemaker and no medications

gigi_c
on 2/17/10 3:11 am - Lake elsinore, CA

RNY 19 months ago as I started loosing weight my low blood pressure was uncovered. Half my doc’s say it is because of WLS other half say I always had it, my weight kept my pressure up. I now have severe low blood pressure and several symptoms to go along with it. I am a prisoner in my own home. The cardio doc has given up on me. Nothing is working not even medications to raise my pressure. VERY FRUSTRATED… then 4 months ago I received a pacemaker…. Hate it!!!! It hurts all the time although it has regulated my heart rate, and I shouldn't pass out anymore it hasn't done anything for my pressure. (I know two seperate issues) I still have bad episodes with may symptoms some are a feeling of being very hot, fast heart rate or thumping then severe sweating, dizziness and a feeling of being very uncomfortable and then after the episode passes severe fatigue anywhere from 30 minutes to the next day. These episodes happen anywhere at anytime. Hotter weather brings them on more often. I am just hating life right now and wanted to know if anyone is or has gone thru any of these issues…thanks for your response…GiGi

vickyw222
on 2/19/10 4:34 am - Lambertville, MI
Hello. I am in no way a doctor but your symptoms sound a whole lot like Neurocardiogenic Syncope. http://www.cccgroup.info/neurosyn.asp  This is a good website that explains it pretty well. Alot of doctors don't understand it.  Many people go years trying to get a diagnosis. I have it and I'm 6 months out and feel like $h!^. It has totally gotten worse.  A tilt table test can get you a diagnosis.  Some of the weird symptoms people can get are... dizzy when stretching, singing, in a large open space. But it's a little different for everyone.  Hope this helps.

Vicky
gigi_c
on 4/12/10 6:37 am - Lake elsinore, CA
Hello Vicky,
I forgot I posted this topic... Thank you for the web site... I read the whole thing and it was like it was written about me.   I had a tilt table test and the worst possible thing happened.... my heart rate jumped all over and then stopped for two minutes... that night I got my pacemaker... Did yours start after WLS?

GiGi
vickyw222
on 4/12/10 8:34 am - Lambertville, MI
Did they give you a diagnosis?  Dysautonomia is the general term for it. There are alot of people who have it and it took years and years of multiple doctors and misdiagnosis before they got an appropriate diagnosis. I've had mine since about 5. It's crazy how it can effect your life. Mine did get alot worse after the surgery. This is the only thing I have ever found relating NCS to RNY...

http://www3.interscience.wiley.com/journal/120749605/abstrac t?CRETRY=1&SRETRY=0

Basically it says they did a small study and most of the people they studied had some new onset of dysautonomia including positive tilt table tests.

This is a really good place for information
http://health.groups.yahoo.com/group/NCS_F/
 it's an online support group but it's all done through email. When you write it goes to the whole group or you can just read what others write and hear their stories. It's nice to hear other  people having the same problems.  There's even one person who has a service dog that alerts her to her presyncope.
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