Recent Posts

thorpea1976
on 4/26/12 11:05 am - sioux city, IA
Topic: RE: Hi His Lady and all Fibromites!!
 I was dignosed with fibro 1 1/2 yrs after WLS.. they say i have had it for a long time ,but i just chalked the pain i felt to being FAT!!! Boy was I wrong!!!
  My sleep sucks and can be up all night without sleep meds if i take meds i get about 3hrs of sleep not good but some at least. my social anxiety is aweful and panic attacks started along with my depression worsened, I now am in therapy once a week for those. I too am not working I was a caregiver/CNA and no longer can do that work  or much of anything. I do Great to get my daily must exercise to keep my wieght down which i did gain 15lbs so back to the basics once again.

whoever says fibro makes you lose wieght i wanna argue that fact cause it don't ....Dr.s who say that are crazy loons. 

I too think about applying for disablility but have heard that they are very hard on fibro patients.
I have been put on 5mg of methadone as needed up to twice a day .. I use it sparingly and ONLY when i can't stand it anymore..that is bad i know.



 
thorpea1976
on 4/26/12 10:53 am - sioux city, IA
Topic: RE: About that time again..What medications are you on to manage your Fibro?
 I am currently on 200 MGS OF savella 100mg in the mornin and100mg at bedtime
 300mg of wellbutrin
10mg of paxil
10mg of amytriptialin ..to help w/sleep
2.5MG of predisone tohelp w/ inflamation
10mg of ambien
 now for the massive pain i take 5mg of methadone as i need it...i use it ONLY when needed and it keeps me from being admitted to hospt.

I have tried many fibro drugs and this is what works...I still have many bad days but push through the best I can...yes the tears and cursing happen often, I will not let this damn condition kill me.

Now sleep is a big issue for me and most of time find it hard to sleep...i am dependent on my sleep- meds for what little sleep i do get . Hot baths after working out have been helpful and so is water areobics at the Y 
I hope this helps some 
Hislady
on 4/25/12 2:17 pm - Vancouver, WA
Topic: RE: Hi His Lady and all Fibromites!!
Hi there so good to see you again! I'm doing pretty good for now anyway. I've been on 30 mg morphine and 5 mg oxy for break thru plus my cymbalta. However I just had to change docs (mine moved away) but my new one is maybe even better as far as treating my pain. She is switching me to fentanyl patches too with oxy for break thru. Haven't picked up the Rx yet but will next week. Also just found out my thyroid is low so will start that soon too. Hoping that will also help with weight loss altho my pulmonary doc started me on a new drug that acts like prednisone except that it takes you appetite away! The first coiuple of months I lost 10 lbs a month, lately it's dropped to 5 but still with thaty and thyroid I'm hopeing to to get the rest of this weight off in spite of my useless crap band!
I'm so glad you are able to not work even if it's only for awhile. I don't know how I'd survive if I had to work! Some nights I sleep greaT and others I'm up half the night but at least I can sleep all day if I have to to catch up. I'd say go for disability if you can, it'd sure make you life easier and put off alot of stress for you. Glad you are reading up on fibro, it's really the only way to find out what may or may not
work, it's so different for each of us! Hope to see you post more often now that you have more time.
hopegirl66
on 4/25/12 7:59 am - Downingtown, PA
Topic: About that time again..What medications are you on to manage your Fibro?
In order to keep away from   what medications are you on for your fibro?

I'll start

AM- 60 mg X 2 Cymbalta
        300 mg Wellbutrin XL
Fentenyl 75 patch- every 48 hours
*****************************************************
PM- 12.5 mg Ambien CR (name brand...generic works different on me for some reason)

*For breakthru pain 15 mg OxyIR 1 tab every 4 hours as needed. 


    



 

 

hopegirl66
on 4/24/12 3:47 pm - Downingtown, PA
Topic: Hi His Lady and all Fibromites!!
 I've been away for a long time. Sorry...so much has happened. I am no longer working. I got laid off as of Jan 15th. All the prayers finally got anwered!!! I was able to get a small severence and now get unemployment, so with watching my spending....hubby agree's that I don't need to start looking for another job at least until the fall. I may decide to apply for disability...not sure. 
Sleep Issues- Well my sleep habits have gotten worse, sometimes I will stay up all night, the difference is, I can now sleep as long as I need too.
I do think my depression has gotten worse, I do have more time to think about things and anxiety kicks in a little more. But I'm still so happy not to have to worry about anything job related. I hated going to bed every night wondering if I would be able to go to work the next day...or once I was at work, trying to stick it out to last for the enitre 8 hours. I so don't miss that.
I'm getting a lot of books out from the library and I find them interesting. Books about going gluten free. I am currently reading a fibromyalgia cookbook. I am currently taking a fentanyl 75 patch which I change every other day. And for break tru pain, I take oxy (done) not cotin. Some days the patch is enouh, then sometimes it's not and I need the break thru meds. I have 15's that I can take every 4-6 hours as needed. I was also put back on cymbalta I'm happy to report that for me, my pain had to be managed first before they could add the cymbalta. Now the cymbalta seems to be a great fit. I'm actually loosing weight now on my own. It seems like the cymbalta makes me not want to eat. Since I've stopped working I have gone from 248 to 238 doesn't seem like a lot, but I need smaller pants.

Tell me how everyone else has been doing? I see that a lot of people keep being told by their doctors that weight loss will make Fibro go away....(I don't know why they do that).. But for the members that have been here for a while, or even newier members do tell how you are doing

Hugs,
Monica


    



 

 

Purplekat78
on 4/23/12 3:33 am - Winston-Salem, NC
Topic: RE: Fibromyalgia and WLS
I am having VSG in May 2012. I also have Fibromyalgia. I haven't  been able to take any of the recomended pain meds., so I am counting on the surgery and subsequent weight loss helping with the pain. My bones and joints can use use the break from carring around 71 extra lds. I hope it helps both of us. Keep  me posted and lets compare notes.

Mary K. Smith

    
loretta cowels
on 4/23/12 1:44 am - MI
RNY on 04/16/12
Topic: RE: pillows
good luck finding one that dont cost a arm and a leg i use body pillows one for my legs two for my head and sometimes anougher for my legs between me and my hubby all my pillows and three dogs that climb in bed with me i have no room lol.
Sassy1724
on 4/22/12 8:17 am
Topic: RE: Fibromyalgia and WLS
 I have had CFS and Fibromyalgia for over 25 years. I had WLS July 2010 and my pain and symptoms have reduced by at leaset 60%. I had to take a half a day off 2 years ago to go to the WLS seminar and just 2 months ago traveled from RI to Colorado to visit a friend for a long weekend, came home at midnight on a Tuesday and was at work on Wednesday morning. I will be 62 years old in September and I have a life I never thought I'd have! Miracles do happen! ;)
            
Hislady
on 4/21/12 1:56 pm - Vancouver, WA
Topic: RE: "bad" liver tests with Cymbalta
I think it may be one of those side effects that hits some and not others. I've been on cymbalta for quite a few years and just had blood work last week and all was well. You might want to try savella, it's a newer drug specifically for fibro, there's also lyrica but it tends to cause weight gain in many. Lord knows none of us need help in that dept. There are also some of the milder narcotic type meds that can help especially during flares. Keep working with your doc till you find what works for you.
We are all so different in what works for us, we just have to keep working at that magic combo that works for each of us. Good luck to you!
cookiebaby
on 4/21/12 1:04 am - Alton, IL
Topic: "bad" liver tests with Cymbalta
 Has anyone had problems with their liver panel tests after Cymbalta?  I took it before and the doctor said there was a problem so she took me off and the test results returned to normal.  I tried it again recently and the liver tests came back elevated again.  I had to be taken off - I know it was helping by the bad flare I had when she took me off of it.  I just wondered if this was common?

Most Active
Recent Topics
×