Recent Posts

dorthe H.
on 6/18/12 11:41 pm - farmington, MN
Topic: RE: can we talk?
thanks for the kind words.  that is why  i keep coming back.  i appreciate the empathy
DORTHE
     AGING IS INEVITABLE
              GROWING UP IS OPTIONAL!   
Cherokeesage
on 6/18/12 7:57 pm
RNY on 02/24/12
Topic: RE: can we talk?
My husband has never said anything negative but I know he will never really know how hard it is to live with FMS.  And, I pray he never does have to live with anything like this or any other disease.  I loved working and was climbing up the ladder when I just couldn't do it anymore so I didn't go back to work when we moved to our present location.  I always gave 100% plus in all aspects of my life and it doesn't feel good to know my life will never be like that again.  Healthy people don't get it.  People look at me and think I look healthy but they don't know what it takes for me to get up and out of the house to join them when I can.  We are leaving soon for a 3 wk camping trip.  We have a rustic cabin without plumbing.  We have to use an outhouse and a shower set up outside.  When I was younger it was an adventure.  I only go because it is important to my spouse but I'd really like to stay home in my comfortable bed and indoor plumbing.  It is a beautiful place during the day high in the mountains surrounded by pine trees and a river running in front of the cabin.

Banded  Oct 2008:  290       
RNY Feb 2012:        245    
Dr's set goal:            170 reached Oct 11, 2012
My goal:                     160  reached Dec 1, 2012
Today :                       145-150

I am half the person I was in 2008.

Missy A.
on 6/17/12 7:35 am - NC
RNY on 08/17/12
Topic: RE: pillows

My husband and I have found that the MyPillow is the best one to use. It really keeps your neck aligned and it helps with snoring as well. You can go to MyPillow.com to find one that fits your size. We have had ours for about three months now and have seen a remarkable difference in the way we sleep.

Missy

HW:348 Consult W:320 SW:295 Current W:156 GW:140
          

Hislady
on 6/14/12 10:59 am - Vancouver, WA
Topic: RE: can we talk?
Fortunately I don't have a hubby like that but I know how you feel about already feeling guilty. I feel bad cause I know my hubby always wanted to travel when he retired but now that I have so much trouble getting around it's pretty much out of the question. I have no problem if he wants to travel without me but like he says it's no fun by himself. Your hubby may never fully understand but maybe you can get him to read about it or go to a doctor visit with you and have the doc explain what is going on. It's so difficult to have an "invisible" disease, people will always give you "the look" when you use a handicap parking space or say you are looking for sympathy. When he gets this way you are always welcome to vent here, that's why we have this forum. The best we can do is like you said try to stay positive and just keep on keeping on, one day at a time. Until then here's group hug from your peeps here!
dorthe H.
on 6/13/12 10:37 pm - farmington, MN
Topic: can we talk?
dh was not in his happy place this a.m.  everything he said was negative.  i'd try countering with a positive but he wasn't liking it.  i asked him why he was so angry and he said it was because he had to go to work and i get to stay home.  i told him i'm sorry and he said 'no, you're not'.  i said i wish i could go to work and he said 'no, you don't'.(chuckling)  then he said 'it is what it is'.
i'm upset.  i've been off work for 2+ years, recently got social security disability approved, have many debilitating issues.  but i try to be positive - not always succeeding, but i try.  i already feel guilty and am bumming a bit by the comments.
does anyone else have a spouse saying/doing this?  if so, what can i do? 

        
DORTHE
     AGING IS INEVITABLE
              GROWING UP IS OPTIONAL!   
dorthe H.
on 6/13/12 10:21 pm - farmington, MN
Topic: RE: hi fibro friends
i agree with prior post by hislady. you might get better understanding from a pain center.  if not - i'd look at changing doctors.  one med daily is fine if that's what works for you.  but if you've told your md it's not working and they won't change it up, i'd move on.
my fibro meds are cymbalta, buspirone, neurontin, ... i've got pain patches, a tens unit, acetaminophen, and ice packs for breakthrough pain.  so i go through all my options until something works
good luck with your search for a solution, loretta.  hang in there.
DORTHE
     AGING IS INEVITABLE
              GROWING UP IS OPTIONAL!   
Hislady
on 6/8/12 5:37 am - Vancouver, WA
Topic: RE: hi fibro friends
Is it just for fibro or is it other pain too? I know I take cymbalta for my fibro pain and it does help some, but I also have a fentenyl patch for nerve pain in my feet and back. I like it better than the morphine I was taking because it doesn't make me so sleepy. Also I only change the patch every 3 days. You might ask him about that or find an actual pain specialist to deal with the pain issues, they are more likely to give you pain meds than a regular MD. Good luck I know how difficult it is to live daily with pain!
loretta cowels
on 6/8/12 2:24 am - MI
RNY on 04/16/12
Topic: hi fibro friends
I have an appt next week to see my doctor i want to change meds. all the stuff i take causes some weight gain but not sure what i should take. My doctors real bad about letting me have pain meds he only allowes me one a day and i need more or something else. Loretta
loretta cowels
on 6/8/12 2:21 am - MI
RNY on 04/16/12
Topic: RE: About that time again..What medications are you on to manage your Fibro?
i take neorotin 600 mg three times a day but trying to get off it so im down to 300 3x a day. i also take norco, celex, zanax, Its time to change again but my doctor is such a pain about pain meds I just want to feel normal and i dont want meds that can cause weight gain and almost all of mine can loretta
Hislady
on 6/7/12 6:32 am - Vancouver, WA
Topic: RE: Anyone diagnosed with FM * after * WLS?
This is kind of which came first the chicken or the egg? I've read of alot of folks that developed fibro after surgeries for lots of different things. I think it is because fibro can develope after any kind of trauma to the body, it tends to throw off the normal function and intensifies the pain messages. There is also some recent research about a connection with fibro and other autoimmune disorders. Fibro is such an odd disease with so many different symptoms that it's really difficult to say what brings it on.I think I have had mine since I was a teen and only had my surgery 4 yrs ago. I do know the older I get the worse it seems to get. It may also be a combination of things. so I don't know that you'll ever be able to know what caused it. I tried Lyrica for a short while and it did cause weight gain so I was switched to Cymbalta and that doesn't seem to cause the gain for me at least. So you might try one of the other drugs for fibro and also seek out a good pain specialist. I wish you the best and feel free to come here and vent if you need to!
Most Active
Recent Topics
×