Recent Posts
Yep, you're right! I would tell them to take of themselves and get back on track when they feel better. Thanks for understanding!
Missy
HW:348 Consult W:320 SW:295 Current W:156 GW:140
You are being too hard on yourself, what would you say to a friend that feltthe way you do? I bet you'd tell her that a day or 2 won't kill ya, just get back on track once you feel better. Unless a person lives with fibro they have no idea how it can suck the life out of you. Once you get over this funk you'll be right back to working out! Give yourself a hug and then move on.
Thanks for that. Yesterday's exhaustion carried over to today. I feel guilty for not being able to go to the gym. I just start feeling like a failure on days like this! I need not be so hard on myself.
Missy
HW:348 Consult W:320 SW:295 Current W:156 GW:140
I spend those days pampering myself and maybe even lay around in bed all day! I do try to make sure I get fluids in so I don't get dehydrated. I figure a day or two without protein won't kill me but I don't let it go for long. It seems on days like that I don't really get anything accomplished anyway cause I'm so addle brained. So I figure time for a poor me day!
What do you do on these kind of days? My fluid and protein intake take a hit because I have no energy to get up and fix me something to eat or to drink. They don't come often, but when they do, it is ridiculous!
Missy
HW:348 Consult W:320 SW:295 Current W:156 GW:140
Well, here it is January 2013, and my doctor told me last week to double the dose to 60 mgs (available in one capsule) which I now take in the am. I did, and within 8 hours had the migraine from hell which is still with me a day and a half later...Mindful that when I first took just 30 mgs I also had a headache, will tough this out a few days and see if it resolves...I need more relief than that provided by 30 mgs now as lately have been in generalized pain day and night...
I take lyrica and I did have a weight gain at first. I wanted off but my dr, convinced me to give it a try. The weight gain leveled off and I have had good results with lyrica. I did not want to start a new drug and go through all of that, but sometimes it is just trail and error.
Good Luck.
Hello everyone, as you can tell by the post time I am not on anything for sleeping the night. Weaned off my 100 mic Fentanyl patch as it was eating my flesh ( dr. gave me rx for Flonase to spray on the skin before applying, which helped for about a week then the burns started up again and burn cream they suggested took days to heal - just in time for the application site to be used again. Big jump in the pain so I talked to my pm doc today when i went in for si injection about increasing dosage. Explained the situation again about gastric bypass medicine malabsorption and i even gave her some print outs from the American Journal of Health and doctors blogs about their patients. She only increased my Oxycodone from 10 mg 4 x's/day to 5 times/day. Its almost laughable if it wasn't such a painful existence. I miss the old me - I know I shouldn't dwell on that but it is hard. My husband misses his little nympho wife and my sweet/ornery twin three year olds barely have a mommy.
so, lyrica 100 mg 3x/day
savella 100 mg 2x/day
oxycodone 10 mg up to 5x/day for breakthrough pain (which is all the time)
tizanidine - 4 mg 3x/day for muscle spasms - also help occaisionally to fall asleep
nuvigil - 500 mg/morning to help me stay awake and chasing my rascals
Vitamin D2 - 4000 units/day
Prenate Plus - not preggers but doctor prescribed for mega vitamin
Generic Benadryl - keeps me from being nauseous/ vomiting with nuvigil
and a billion herbal remedies to try to attack this stupid FMS - i would love not to be dependent on pharmaceuticals but I have to say how grateful I am to God for the minds that figured out how to make medicines. I could not survive without them at this time. Good luck and God bless you all.
Hey Missy, sorry to hear about your troubles. My fibro kicked into high gear in Dec of 2010 when my twins were eighteen months old, but thinking back i can see earlier signs for years. Anyway, I had RNY in 2005 and within a couple years I stopped most of my protein and mega vitamins and I am wondering if that awakened the beast of FMS. My body was incapable of surviving on piddly amounts of vitamins and nutrients the malabsorption issue brought on. As far as your sleepiness, I began taking Nuvigil 500 mg/day and i was no longer falling asleep holding my children (within an hour of waking as was my case). I was able to function again, but after a particularly nasty stomach bug in March I was nauseous or vomiting every day and I realized it was the taste of my Nuvigil. Only after I did a bit of research on it did i find many FMS sufferers have nausea/vomiting with some meds - the solution - for me at least was an antihistimine. I know it sounds crazy but i spoke to the pharmacist about it and he knew exactly the one I would need for that med - it was the off brand for benadryl. I take it every day with my morning meds and no more nausea/vomiting. One other trick to helping your caloric intake is juicing. it may not appeal to you but you can make these quite lovely without being bad. Carrots are a lovely healthy sweet additive to any juice recipe. So what it does is allow your body to get the nutrients and vitamins its needing but without taxing your body. Your body can focus on healing instead of exerting all that energy on digestion. This is new for me but it is wonderful and i recommend organic everything. something else i am learning about FMS is that some people have a lower resistance to the toxins of this world and I think that is what has "created" FMS. Well, I hope this helped you, God bless and take care - Kelly
