Recent Posts

MainePam
on 9/13/09 5:09 am - Bucksport, ME
Topic: RE: I can't win
JoAnn
Let's hope it helps you. I still feels it helps me not be as achey. like i said my bone to bone elbow kills me if I do not take my pain pill. I just stick them under my tongue and some times if my mouth is dry have to have a drink.

let us know how your doing
Pam
JOANNFV
on 9/12/09 3:06 pm - SWARTZ CREEK, MI
Topic: RE: One Year out and always hungry
Gosh, I'm only six months out and feel  the same way. Lately I'm hungry alot and have noticed I can eat alot more and not feel full.Going to doc for six month check up,gonna discuss with him. I know I don't get enough water or protein.Can't seem to find protein drink I can stand the taste of,especially the powders.I was told we could not drink coke or any soda's ever again, cause would cause bloating and discomfort to stomach.The coke doesn't bother you?   JoAnn
Hislady
on 9/12/09 2:53 pm - Vancouver, WA
Topic: RE: How are you all doing this week?
Well I'm still stuck in bed (week 3 of 6) with my broken leg. I think all this laying around is making me really stiff and sore, even tho I'm doing all my physical therapy exercises and stretches. Fortunately I can still get some good pain meds under the guise of my broken leg.
JOANNFV
on 9/12/09 2:43 pm - SWARTZ CREEK, MI
Topic: RE: I can't win
Dear Pam, just bought the magni life you take and thought I'd try  it,since you feel it helps you. But I hate trying to  get the pills to dissolve under the tongue. Hope I have just as much success as  you. Sincerely, JoAnn
JOANNFV
on 9/12/09 2:40 pm - SWARTZ CREEK, MI
Topic: RE: Meds for Fibro
Actually  I think my fibromyalgia is worse since my surgery.I am six months out and have not been able to take an NSAID, I took motrin for pain and I feel that is part of the problem. The only anti-inflammatory med my surgeon will allow is celebrex.My family doctor is trying to get my insurance to approve it. Right now I take soma and vicodin es. I know everyone is different in what helps them.  But  I don't regret  having the surgery. Good luck.  JoAnn
mamamiajuju
on 9/12/09 5:45 am
Topic: RE: Meds for Fibro
When  I had rny surgery in 2003 the doctors, pcp, gyno, all contributed my pain to being overweight.  I lost 100 lbs and soon experienced pain unlike anything I had prior. Then i was given the diagnosis of fibromyalgia, it hurt just to breathe.  The rhemotologist I started seeing put me on tramadol and the fentanyl patches gradually increasing to the 75mgs.  It made life better, I was not pain-free, but I could work (standing as an airline employee) and take care of my family.  My doctor advised me that the lack of sleep was a major contributor to my fibro, he prescribed Xyrem, which is a very strong sleep inducer in a liquid form that I would take twice a night.  It was expensive, but the insurance coverage I had at the time covered it, it is generally prescribed for narcolepsy.  I stayed on these meds for 5 years, eventually tapered down, today I only take the tramadol, after having to switch insurances, the Xyrem wasn't covered for fibro, and was denied, at 1000.00 a month I had no choice but to stop, sleeping is still a problem, but my level of pain isn't close to what it was following the rny.  Sometimes a dramatic weight loss triggers flare ups. I found that the patches were more effective than any oral medication I tried.  My weight prior to surgery was 250lbs and I got down to 135lbs, stable at 160lbs today. 
MainePam
on 9/11/09 11:27 pm - Bucksport, ME
Topic: RE: How are you all doing this week?
Hi Cindy,
Doing good here.
Enjoying some real nice weather here in Maine.
theknittingmom
on 9/11/09 8:46 am - Beaufort, SC
Topic: RE: Anything else we can try for pain?
I have just started to see my rhuemy last month. Before that I was being treated by PCM at the Naval Hospital in Beaufort SC. SHe had placed me on Elavil which is an antidepressant but helps with muscle pain. When I went to my rhuemy he told me to stay on the Elavil but also gave me a perscription for Savella which is also an antidepressant but he said that is works better for fibro patients than the Elavil does. So now I am taking both, it seems to help. The rhuemy that I am seeing specializes in fibromyalgia so I am hoping that he will be able to help. Talk to your doctors and see what they can do for you. I am just glad that after five years that they are finally starting to take me serious.
Christine M.
on 9/11/09 8:11 am - GA
Topic: RE: How are you all doing this week?
Or--- everyone is too tired to type!  I have been started on a new drug regiment for fatigue. It is 20 mgs. Ritalin CR and 75 mgs. Nuvagil every A.M.  This has been helping alot and does not leave me any more ramped as usual at bed time. I really have my fingers crossed on this one. My experiance is that I adjust quickly to new meds and that they do not help for very  long. But I am going to enyoy it for now. Christine

 

  

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