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If your primary doc isn't familiar with intercystial cystitis then a urologist would be the next person to check with. Good luck and I'm here every day if you have any other questions, glad to help!
Thank you for your reply. How do I get tested for the intersystial cystitis??
My THS for my thyroid is low (so over active) and I'm a little low on iron
Wow you do have alot going on and that is one of the big problems with fibro is it is so hard to diagnos. There are so many different symptoms, yours could be fibroand it could be a hundred other things. The main issue for most with fibro is muscle pain, it feels like the worst case of flu everyday but it never goes away and when it flares it's even worse. There is also a fogginess but not to the point of passing out that I'm aware of but I'm no doc. Sounds like seeing a neuro is a good start and yes they will test you for a million and one things because fibro is a disease of exclusion so they have to exclude all these other things before they can say ok looks like fibro. You might also try a rheumatologist or pain specialists too they sometimes deal with fibro too.
Have you had your labs done every few mos.? It could also be vitamin deficiences, that can cause alot of unusual symptoms. Also have you been checked for intersystial cystitis? It feel like a UTI but won't show as one because it is a bladder disease but not an infection. This is all going to take time but try to hang in there until they can sort it all out. There are other narrcotic drugs that they should be able to give you but yeah I understand they can be cranky about drugs. I tried lyrica and it didn't do much for me either I now take cymbalta and it helps some but I also use a fentenyl patch for all my pain. I wish you luck and hope some of our other folks will come on and have more info for you!
Some of the pain started years before, and I was always told it was tendonitis in my elbows. Then I got bursitis in my shoulder. Now the last year, I've been getting searing pain down my thighs. It's like someone is trying to rake out my bones and muscles, shredding them with sharp hot knives. I also get what feels like shin bruises or shin splits. I can't lay with out anything between my knees or it hurts and will bruise.
I herniated 3 disks 12 years ago, so attibuted the pain and sciatica to that, but after talking to others about fibro, some of it fits with the symptoms too. I also get a piercing pain thru my groin - I usually think it's a UTI but it's happening several times a month and it doesn't always test as a infection. It's like a arrow has shot thru my lower back into my front groin.
I've been loosing my memory horribly. It's quite commot to forget something I just said to my kids. Alot of the time I am in a fog, and so spaced out and dizzy, I scare myself. I've even blacked out while driving (that put a stop to my driving) things will feel surreal, like I'm in a total fog. I get migraines and have had 2 CT scans and they look ok.
My legs or sometimes my whole body feels like jello.....I can sleep 16 hours a day sometimes.
I've been tested for MS, and lupus, and now seeing a neurologist for a crap load of more tests. I have started Lycria but that doesn't seem to help and the only pain killer that works is Tramadol (sometimes) doctors have stopped gioving out Oxy and other narcotics around here.
What do you think?
There is a supplement called OPC-3 that helps with fibromyalgia. It will not cause weight gain. It is a very powerful antioxidant. Also I have heard that some fibromyalgia patients are deficient in magnesium. However, the delivery system of these supplements is key. If you would like further information, please e-mail me.
Also there is a natural product called OPC-3 that has helped a lot of people with fibromyalgia. If you want further information, you can e-mail.
Surgery Date: RNY: 12/19/12
Weight in: 221 lbs
Starting weight: 235 lbs
Surgery Date: RNY: 12/19/12
Weight in: 221 lbs
Starting weight: 235 lbs
Yep, you're right! I would tell them to take of themselves and get back on track when they feel better. Thanks for understanding!
Surgery Date: RNY: 12/19/12
Weight in: 221 lbs
Starting weight: 235 lbs
But when I asked my surgeon: his answer was yes, No, Maybe! He explained in some it goes away and is entirely manageable. Maybe not just not go away I should say.... No, some seem to have seen major flare ups. And maybe because we are all different.
Like I said I am only 2 months out. So I hope mine continues to stay on this track. My next step is to go from 20mcg of butrans patch to 15mcg by cutting out a quarter of it instead of going down by 10mcgs in one week and work way down.
Btw... My rheumatologist was unable to handle me on my need for pain meds. I had to switch to a pain specialist. Most get dx by rheummy then move to pain specialists.
Just FYI
Feel free to ask me if u have any questions.
Surgery Date: RNY: 12/19/12
Weight in: 221 lbs
Starting weight: 235 lbs
