Recent Posts

twohearts
on 10/12/09 6:36 am - Waukesha, WI
Topic: RE: Fibromyalgia and SS Disability
I am sorry about the disability as well.  I haven't even tried for that, but have struggled to maintain the household chores and working full time myself.  My husband has Huntingtons Disease so he hasn't worked in many, many years.  It's all on me to provide for us.  I just pray that I can continue until I die because, Lord knows I won't be able to retire.  Sometimes this life is just hard.

I especially pray that I can keep working until my husband passes away.  We need the insurance and it is way too expensive not to get it through an employer.  Even with insurance the copays kill me, but it is better than the alternative.  I just let the house work go as I figure it is all I can do.  Eventually I get around to taking care of the major issues around the house.  Just keeping the head above water these days and thankful for that I guess.

Take care all my friends.
twohearts
on 10/12/09 5:53 am - Waukesha, WI
Topic: RE: Just checking in How is everyone
Thanks for checking in.  I totally understand the fatigue and cravings for carbs.  I have the same issue.  I have been terrible lately between the fatigue, stress, and cravings.  I've gained back 11 pounds and I am over 200 again.  Arghh!  I feel like a total failure right now.

I talked to the dietician and she believes I will do better now that I am off all slider foods like yogart, cheese, peanut butter, milk.  She wants me to eat my protein not drink it.  It really has made a difference in how much I eat.  I miss my milk and click, but I'll give it up to get this weight down again.

I am still weaning off the sugar again. It is hard because that is always my go to food when I am stressed and in pain.
wildewoman
on 10/12/09 5:03 am
Topic: RE: Meds for Fibro

This is one of the reasons why I am going DS instead of RNY.  Not the only reason, but certainly a biggie.  I stopped taking NSAIDs while prepping for RNY (Kaiser wanted me to start living as if I was already post-op.)  The year or so I've been off NSAIDs has been miserable.  Happy to say I'm back to taking my ibuprofen and I'm feeling soooo much better.

Also, it's sobering to hear that the weight loss doesn't necessarily help improve the fibro, but I'm not surprised.  It does, however, give all of us recourse with the doctors who have told us for years "You hurt because you're fat."

I once told a doctor, "Hey, blame my weight all you want for the pain in my feet, ankles, knees and hips.  But I've never walked on my hands, so what do you have to say about my wrists, elbows & shoulders?  Why do my triceps feel like I've been punched all the time?"

He didnt' have much of a response to that.

~Martie~
"And pride - don't keep it all inside.  Don't keep your aching celebrating, wonder-making heart alone.  Write your own song!"


HW 360 / SW 347 / CW 198 / GW 180    Angel to Relifeagain (Marz)

francesn
on 10/12/09 1:47 am, edited 10/12/09 1:47 am
Topic: RE: Does it ever feel like something is eating at your bones?
i know what you mean but the doctors are very  sure with the fact that fibro> is not in the bones they tell me that it is in the muslces I've had it since i was 10 I'm 31 now. and  i have a desmoid tumor in my abdomen  most doctors seem to think it came from my fibro (a muscle that stayed inflamed and never got better) weird ha. i have the same problem when it comes to meds. i get sick or to drowsy so i cant take them having four kids and all who has time to fall asleep in the middle of the day. i just have learned to deal 21 years is along time so i can cope most days others i just go to the doctors they give me a phenergrin shoot works okay for a day or two not much more i can do.
Lilli_Colleen
on 10/11/09 8:37 pm
Topic: RE: Fibromyalgia and SS Disability
I am so very sorry you all are having such severe pain that working is difficult. I have been told I have a high pain threshold, and I guess I should be thankful for that.  While the fibro is painful for me and I am in a pain clinic, the meds and counciling I've been reciving has helped tremendously.

I am very blessed, as I don't have to work, my husbands job pays, but my father left my brother and I several duplexes when he passed a several years ago, and my brother passed two years ago. 

I do hope you all will be able to get the financial support you need.  Hang in there!


Lilli
Lilli_Colleen
on 10/11/09 8:23 pm
Topic: RE: Just checking in How is everyone
I've been very busy picking out my new apartment in Florida. The duplexes my dad left me and my brother (he's passed on) sold on Oct 6th! Escrow won't close for 60 days, but I don't mind :)

I know what you all mean about the cold, I'm so tired of being cold, now, I won't have to. I'll be living in Orlando :) 

Take care

Lilli
unique0731
on 10/11/09 12:17 pm
Topic: RE: cold feet for surgery
You can do this !  If I can do this anyone can, I was so scared to have any kind of surgery...I lived with a bad gallbladder for 10 years of fear of surgery...

I had WLS with my gallbladder removed at the same time.  It has not been easy but really hasnt been hard at all....   

I would do this all over again.   We have to always think positive

Hope you start feeling better !    I have not been feeling good myself


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laglass1996
on 10/11/09 3:38 am
Topic: RE: Just checking in How is everyone
Thanks sounds so good! The only thing I hate about the lap band is that cake gets stuck :(
It doesn't help that I'm addicted to all the new cake baking shows (Ace of cakes, Amazing wedding cakes...) Oh well.
 

 "Don't sweat the petty things- and don't pet the sweaty things."


 

Bonnibj
on 10/10/09 11:33 pm - Augusta, GA
Topic: RE: Fibromyalgia and SS Disability

So sorry you are having such a bad time with it.  I know what you mean though.   I always have to push a cart in the store or I can't shop.   That made it really hard trying to shop for Christmas last year.   My husband wanted to go to the mall and I just couldn't handle it.   I have a wheelchair now, but I don't always need that much.  I may get myself one of the walkers with the seat like you mentioned.  

Right now my main problem is that if I work for more than about 10 minutes at a time, I start getting weak in the knees and shortly thereafter I will begin to throw up.   Just can't handle anything for long.   It's just my husband and me and he works all day, so I do my housework a little at a time and rest in between.   It's a heck of a way to have to do things.

I'm not going to give up.   I'm waiting now for my "final" hearing date.  I have been through 2 appeals already.   This time I get to go see a judge.   I will keep everyone informed.

Thanks for your encouragement.
Bonnie

         Love My Danes        
francesn
on 10/10/09 3:56 pm
Topic: RE: Fibromyalgia and SS Disability
hi my name is Frances i am 31 years old and have been fighting chronic pain most of my life do to fibromyalgia(SEVERE) i have  2 Cains, a walker , walker with seat and brake's, need to use the carts in the store when i cant walk, and my 4 children in between the ages of 6-13 have to do just about all the work around the house that is how bad i get oh and did i mention that I've had it since i was10 years old. well the reason i tell you all that is because i have applied 4 times and been denied every time they say that  i am to young , that i should get a job using my hands but as i sit here  typing you this i feel like my hands are on fire they hurt so much. i understand you're pain that a lot of others could never come close to understanding but i will tell you one thing i meat a young women last year who told me she was on ssi  for chronic fibromyalgia but she did not even have 1/4 of the health issues that i have so don't give up just appeal and appeal tell you get it.
 

                                                                 good luck.
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