So sorry you are feeling so bad.   Seems this time of year is when things really start flairing up for me too.  I guess it is the cold and damp weather.  I know we need the rain, but it really makes me ache.  

I have gotten to where I just don't say anything to my husband.  He is so nice and tries to understand but I don't want to seem like a constant whiner.  Sometimes it takes me 3 warm baths a night to get to where I can sleep.  

My PCP has been changed and I have to wait until the 24th to see him for the first time.   My last PCP had pretty much given up on me and the last time I was there, she said that she had sent me to all the specialists she could think of and that there was little else she could do unless it was the normal PCP stuff.

Most of the specialists have passed me on to someone else.  My rheumatologist is the end of the line and he tries to help, but just hasn't gotten the combination right yet.   I go to a pain specialist who says he can only do so much and that when I get a really bad flair I should see the rheumatologist.

I feel like I am in a never ending circle, going round and round and round and never getting anywhere.

Hope you get to feeling better soon.    I'm looking forward to my warm bath tonight (already).

Bonnie

Hi Everyone,

My surgery is in 9 days!  I was wondering what types of excersises peopole have found good.
Any DVD routines too would be helpful.
Hints, suggestions, what works, what doesn't...
thanks!!!
 

Oh we all hear ya! It seems like everytime I get to a point where meds pretty well keep most of the pain down it only lasts a few weeks and then it starts all over again. My PCP (who used to be good about upping my doses) is getting more hesitant to give me more or a different drug. Seems like he wants me to rely more on life style changes, well I already do all that, stretching and mild exercise. I may have to go back to the expensive pain specialist cause since I broke my leg last summer it seems like my fibro is just out of control. I know we all get so tired of hurting and I just pray someday there'll be a cure. All I can say is we are so much stronger and tougher than anyone else realizes!

Hi OG

Thanks for you advice.  Actually, i called the office yesterday and told them i was desperate for some relief.  The doctor did approve the tramadol for me now, even though i only get somewhat relief from it.  i didn't think it was an NSAID either, so not sure what the problem was, unless it enlarges the liver?

thanks again
 

Hi, I don't understand, either, why you would have to be off the Tramadol, as it's not an NSAID.  I'm 4 years out post-op and have been taking Tramadol 3x a day almost a year now. It only takes the edge off the fibro pain for me, but is better than the Neurontin side effects of drowsiness.  I have been taking Cymbalta about 3 months, but can't say it gives me any pain relief, though maybe helps me cope a little better with the pain.  Following RNY, we're also told that we are supposed to avoid extended relief meds, which Cymbalta is, due to the malabsorption factor and the med working it's way too quickly thru the system.  What do we do??  If I were you, I would force the issue about you needing to stay on the Tramadol, especially if it's helping you, and it not being an NSAID.
Email me if you have more questions and wishing you the best on your upcoming day!