Recent Posts

Lilli_Colleen
on 11/9/09 9:04 pm
Topic: RE: Need Ideas for Excersise
I also participate at the local Y's water routines. It's low impact so we won't feel the effects as if we're going to curves.

I'm on my feet a lot, so I only need to go to the Y twice a week.  It helps clear the mind and spirit. 

Gook Luck!
Trisha H.
on 11/8/09 11:11 am - Southern, OR
Topic: RE: Has WLS helped your Fibro pain?
 Thanks for all your replies. It is discouraging, but maybe if I wasn't so blah in other areas the pain would not be so bad ~wishful thinking~ I will have to take it day by day & Pray for a miracle. We're going to try a new fibro med so hopefully that will help too. Take care and keep up the great work!!!
You may delay, but time will not.

You must begin to think of yourself as becoming the person you want to be.

Never, never, never, never give up.

               
reeree89
on 11/8/09 5:28 am
Topic: RE: Poll: What meds have helped you the most?
This is my combo and I'm doing OK!
Neurontin  2400mg
Tramadol  2- 4 x daily
Cymbalta  60mg
Tizanidine- 1-4mg at bedtime
Symbyax- 25 mg at bedtime

Hope this helps

Maria :O)
Ree
-200 Lbs
Live. Love. Laugh.

Hislady
on 11/8/09 4:58 am - Vancouver, WA
Topic: RE: Poll: What meds have helped you the most?
Well for total relief only narcotics work for me. Right now I take morphine 2x a day plus cymbalta. I still have some pain but it's pretty tolerable most days and I have oxycodone for break thru pain and I rarely need that. I find with the narcotics I have to take them a few days and then I build up a tolerance to the loopy, sleepy effect. Once I've used them awhile I can drive and do anything else I need to. I wish you luck, this is a nasty disease to have to live with but at least its finally getting some recognition.
laglass1996
on 11/8/09 4:43 am
Topic: RE: Poll: What meds have helped you the most?
My fibromyalgia wipes me out, my pain makes me not want to move.....the meds help me feel like a "normal" person again.
They may cause drowsiness, but not more than I'm used to.
 

 "Don't sweat the petty things- and don't pet the sweaty things."


 

OregonGal
on 11/8/09 1:41 am - Beaverton, OR
Topic: RE: Poll: What meds have helped you the most?
Thanks for your response ~

Do you find either of those meds make you drowsy?  My only experience with any narcotic type meds - vicodin, percocet was when I was recovering from different surgeries over the years.  A small amount would wipe me out.  I don't know if that was the drug, per se, or just trying to recover from the surgery.

If these medical professionals could live just one day in our bodies - maybe they would have a little more compassion and a willingness to help without looking at us as "drug-seekers" !
laglass1996
on 11/8/09 1:22 am
Topic: RE: Poll: What meds have helped you the most?
The pain management Dr. I go to just put me on two new narcotics Embeda (extended release morphine) and Nucynta ( for breakthrough pain).

I have tried everything and I hate having to take such strong meds but at least I only take them once a day and they aren't as hard on the liver as some.

Unfortunately, I was unable to find ANY relief on non-narcotic meds. My pain is very muscular and I also suffer from neck and back disc herniations as well as osteoarthritis in my back and feet.

I've been this way for 15 years....I'm only 30.

My med combination has not hindered my life at all, which I am grateful for. I have happy, healthy children, a great husband, and home. I am able to work, as long as it isn't manual labor (which my last job turned in to).

Good Luck with your med search. It is very hard and often we are judged harshly, but don't give up until you find what works for you.
 

 "Don't sweat the petty things- and don't pet the sweaty things."


 

Jan70
on 11/7/09 9:12 pm - United Kingdom
Topic: RE: fibromyalgia and Lap-Band
Hello, I am hoping to have a gastric band fitted, have to see my Dr first. I have Hypothyroidism and Fibro and liver dysfunfunction. I have gained at least 5 stone since having my last child in 1999 (making me 15 stone). Im joke saying its just baby weight Im trying to get rid of. Everything I go to the Dr about they say its the Fibro. My knees, hips, elbows and back are just unbearable with the pain and I have used a crutch for walking now for the past 5 years. I am going to see my liver Dr within the next few months so I am going to plead my case with her. Its been very good for me reading the postings on this to see what to expect after surgery, if Im lucky enough to get it! I dont think people realise how debilitating Fibro is, but weightloss can only help surely? not only physically but for self esteem issues too. Thanks for this great site, I feel better just posting this now!
Bye for now.

OregonGal
on 11/7/09 8:17 pm - Beaverton, OR
Topic: Poll: What meds have helped you the most?
Hi ~
I was diagnosed with fibro in 1985, but the last 5 years, following RNY, have definitely been the worst.  I have tried Neurontin (minimal pain relief, but also made me very drowsy), Lyrica (no noticable help), taking Cymbalta (no pain relief), and taking Ultram now which just takes the edge off the pain for only about half of the 8 hours that it's supposed to work.

I have a first time appt.this week with the rheumatologist - have gone to a pain management clinic this past year, but she offered no help beyond the neurontin.

What meds have worked best for you without side effects of drowsiness or being loopy?  Somehow, I work 12 hour shifts and have to be able to function there.....

Thanks for your help ~
Kathleen T.
on 11/7/09 5:43 pm
Topic: RE: New med for Frib. Savella
We will be changing Rx insurance next year and I don't know want they will pay for they already have several RX that they will not be paying for wish me luck.  Don't know if I such even try changing hopefully they will. 
"A Man's heart plans his way, But the Lord directs his steps. 
Proverb 16:9
May not be where I want to be but I glad to be where I'm at.
Working at getting the rest of the way.

12/10/2012 I'll be having LBL, BL/BA, thigh & arm lift, eyelid
Body by Dr. Sauceda    booked to 12/9--12/22
Most Active
Recent Topics
×