Recent Posts

Chembe
on 11/14/09 3:30 pm
Topic: RE: Fibromyalgia and SS Disability

I don't know, but I was approved after appeals and a hearing and I DON'T HAVE A DIAGNOSIS!! So, don't give up!!!  See PM I'm sending you about my case for more info!!

Kim

Nicole2777
on 11/14/09 1:56 pm - McRae, AR
VSG on 12/08/08 with
Topic: RE: Poll: What meds have helped you the most?
PM
Mirapex for Restless leg syndrome (plus magnesium/iron/folic acid supplements---good ****tail my rheumy says) (To increase dopomine--I think).  My rheumy thinks my fibro is from RLS.  I don't know if it is all from it, but if my legs are moving I am not sleeping deep enough and muscles are not resting and healing themselves correctly.

AM
Welbutrin--to increase seritonin (I think) and make my brain say happy things instead of pain things.  It does help, but doesn't take it totally away.

Tylenol to take off edge if I can't handle it.

I also see a chiropractor and massage therapist sometimes.  Stretches, walking and water classes help if i don't push too far. 

         I will be happy with thighs that don't touch!

Nicole2777
on 11/14/09 1:50 pm - McRae, AR
VSG on 12/08/08 with
Topic: RE: Positive Post Anyone?

My husband and oldest daughter drove to watch a college football game several hours away.  They left about 12 hours ago and will be home shortly. 

My youngest and I went to the beauty college for deep conditioning treatments, and free manicures.  Then to McDonald's and play land for her.  Then to Walmart were we tried on clothes and bought some items.  Then to the dollar tree where we shopped somemore.  Later we watched a movie together, she pulled out her first two teeth (within minutes of each other!) and I rocked her in the recliner before she went to bed. 

I found out my brother got engaged tonight!  Yea!

I have done a lot of laundry and except for some tightness in my back, feel pretty good!

Have a good night all!

         I will be happy with thighs that don't touch!

Nicole2777
on 11/14/09 1:46 pm - McRae, AR
VSG on 12/08/08 with
Topic: RE: Has WLS helped your Fibro pain?
I have fibro due to restless leg syndrome--at least according to my rheumy.  I know that with her treatment and the weight loss, easy exercise (stretches, water classes, walking) that is has gotten better.  The worst thing for mine is stress and my job and money problems. 

I also went to a chiropractor for the first time a few weeks ago.  The procedures it helps hurt some, but after that pain went away, I felt better...esp. in my hips.  I am still very tight around my shoulders and she couldn't get close to the spine there, but it did help some.  I will go again next week probably to be readjusted. 

Overall, yes it has helped some, but no, it hasn't taken it away.

I had a VSG, so the malabsorbtion (sp?) issues are not part of the side effects for me.

Hope this helps!

         I will be happy with thighs that don't touch!

OregonGal
on 11/14/09 1:09 pm - Beaverton, OR
Topic: RE: Poll: What meds have helped you the most?
Thanks, Julie, for your response.  I have an appt. on Monday with the fibro group as I decided to go straight to see them and not waste time going back and forth to my PCP as was suggested.
J. M
on 11/14/09 9:15 am
Topic: RE: Poll: What meds have helped you the most?

I was diagnosed with Fibro in 2007.  After trying countless drugs...Effexor 37.5 mg in A.M. and 1/2 a pill in P.M. worked best for me and has lessened my pain.  I don't have any side effects.
I also take 1 mg Lorazepam at bedtime to help me sleep.

Good luck to you.

Julie

RetroChic86
on 11/12/09 9:44 pm
Topic: RE: Positive Post Anyone?
 positive thoughts-

well im awake because im in pain and cant sleep
but looking at my husband sleeping-makes me feel butterflies.after 6 years of being together, its still great to know i get butterflies! i love him more each day
J. M
on 11/12/09 2:42 pm
Topic: RE: Has WLS helped your Fibro pain?
I have Fibro and my pain is alot less now after losing the weight.  I lost about 75 lbs.  I see a rheumatologist for pain management.  After trying countless different meds.  Effexor is the only one that has helped me with the pain.  It's not gone, but it's nowhere near what it was a year ago.  I'm not in tears daily like before.
I hope you will find a med that works for you.

Julie
Hislady
on 11/12/09 1:33 pm - Vancouver, WA
Topic: RE: Dissability Retirement
First off welcome to the board, always good to see new folks join us. I do know that dissability is very hard to get with just a fibro diagnosis so you may have to really fight and put up a battle to win it, that said I sure hope you do get it! I hate to burst your hopes but weight loss does very little to help with the fibro. It will help any joint pain you might have but as far as the fibro I don't think anyone here has had a decrease in the pain because of WLS. Also a warning about the band, if you have difficulty exercising as I do the band may not help much with weight loss unless you are a volume or junk food eater. I've always eaten good quality food and not much of it so my band has done nothing to help my weight loss because I simply can't exercise. Besides fibro and arthritis I also have COPD so my lungs are shot. I have only lost 25# in the 2 years I've had my band. I so wish I had gotten RNY or VSG. So just something to consider. Lapband weight loss is usually VERY slow for most folks. I wish you the best and crossing fingers that you'll get your dissabilty!
cintigirl
on 11/12/09 10:15 am, edited 11/12/09 10:27 am
Topic: Dissability Retirement
In August I turned in my dissability papers in to my pension board.  For the past five years I have been a regular in my doctors office with complaints of extreme fatigue, muscle pains, passing out, joint pain, tingling in hands, legs and feet, chronic cough (to the point of vomiting and loosing contol of my bladder) lack of sleep, depression, anxiety, anemia, respiratory problems, asthama and overall just not feeling good.  Each and every individual symptom was treated. I gaines 100 lbs in the process.  I think my complaints were looked at as "Your weight is causing your problems."  This only added to my weight gain and depressio.n  You know the cycle. 
Finally after lung function test, ;multiply MRIs, broncoscopy, Holter monitor,EKG, tilt test, and a stress test the rhumotologist finally diagonised me with Fibro.  I have been prescribed several anti-depressants, muscle relaxer, antiinflamatory, and pain med.  I will say the amitriptyline does allow me to get about four hours of sleep each night.  But nothing has helpeded the overwhelming feeling of exhaustion.  OH, I forgot to mention that I am a police officer required to be very active and very physical.  I was very good at this for 20 years, but now walking from my car to the building seems like a days work.  I can not work on the prescribed meds.  Would you want your local police officer on Oxicodone and Prozac-- I wouldn't. A normal retirement is after 25 years.  I just started my 22nd.
    The point of this is, I don't know if my dissability will be approved.  Both my PCP and my Psychologist wrote letters on my behalf.  I am having lap band surgery on Mon, Nov 16 (self-pay)because I do believe loosing weight might help.  However, it is much harder to do that when exercise wipes me out for hours.
     Sorry for rambling......  
  
If nothing changes.......nothing changes!
  
Most Active
Recent Topics
×