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Topic: RE: Hi all, Im new!
Seratonin Syndrome is a rare but potentially fatal reaction that can happen when certain medications are mixed. Basically- any SSRI or SSNRI and something else that affects the Seratonin receptors. It causes the receptors to overproduce and dump Seratonin. You can read more here:
https://health.google.com/health/ref/Serotonin+syndrome
https://health.google.com/health/ref/Serotonin+syndrome
Topic: RE: Hi all, Im new!
Welcome Emily.
This is a great board and you can be assured that we all understand pain , tiredness and all the many things that go with fibro.
I feel better in general since I have had the surgery and lost weight BUT I cannot say that it 'Helped" my fibro and really did NOT help my severe arthritis. BUT I would still do the surger over. The N saids and asprin are a no no after surgery but many others are OK.
What is seratonin Syndrome??? Just curious.
Pam
This is a great board and you can be assured that we all understand pain , tiredness and all the many things that go with fibro.
I feel better in general since I have had the surgery and lost weight BUT I cannot say that it 'Helped" my fibro and really did NOT help my severe arthritis. BUT I would still do the surger over. The N saids and asprin are a no no after surgery but many others are OK.
What is seratonin Syndrome??? Just curious.
Pam
Topic: RE: The cold weather is killing me!
I am on a good pain med combo, it works well in the other months. Fentanyl patch 50mcg and Norco. I just emailed my pain clinic doctor the other day to tell him that I am not telling him I am getting no relief from my meds this winter to get more. That my support group for fibro is not getting relief either and his reply was: Well not everyone is on a high dose of meds like I am that is why others are saying not enough meds. I felt like going into his office and shaking my finger with disgust in his face. How dare he say that. They have a pyschologist that her speciality is pain management, so I think I will go see her to learn to deal with the unsympathetic docs. He also told me to use an electric blanket. I live in my electric blanket. I told him I work full time and I can't bring my blankie to work with me. It is mostly my arms (near my armpits) that feel like I have strained them and can't lift them. I have to pick up my right arm with my left arm to move it, it hurts so bad. I did a bump up in my Norco though. I think. I have gone back and forth with them so much lately. i finally had to tell them that I feel like a person that has Cerebral Palsy (sp) looks when I am cold. My hands are in a knot and my wrists are curled up just sitting on my chest and I can't move much. I live in CA, and when it is 43 degrees outside, I really don't know how to handle that. Not all of us can afford to have a winter home in a warm climate. LOL
Topic: RE: The cold weather is killing me!
Thanks ladies! I am so blessed (?) to be out of a job and curled on the couch today watching Harry Potter.
Avababe- I, as well as many of us, have had to go to Rheumytologist or Pain Management docs for pain meds. Narcotics work well, but many general docs are against them. This is a chronic condition and long use of opiods and narcotics are risky.
I have tried every non-narco available including Lyrica, Savella, Cymbalta.....no use.
See if your primary doc will refer you to a pain specialist.
Gentle (((hugs))) to all my fibro family.
Let's get past this winter together.
P.S. I live at the beach in Alabama and we are expecting SNOW tomorrow!!!! UGH
Avababe- I, as well as many of us, have had to go to Rheumytologist or Pain Management docs for pain meds. Narcotics work well, but many general docs are against them. This is a chronic condition and long use of opiods and narcotics are risky.
I have tried every non-narco available including Lyrica, Savella, Cymbalta.....no use.
See if your primary doc will refer you to a pain specialist.
Gentle (((hugs))) to all my fibro family.
Let's get past this winter together.
P.S. I live at the beach in Alabama and we are expecting SNOW tomorrow!!!! UGH
"Don't sweat the petty things- and don't pet the sweaty things."
Topic: RE: The cold weather is killing me!
Oh yes the cold actually HURTS me when I am out in it. Seems this winter is a little worse .
I litterally feel your pain we sure understand here.
gentle hugs,
Pam
I litterally feel your pain we sure understand here.
gentle hugs,
Pam
Topic: RE: The cold weather is killing me!
Don't worry you aren't alone, the cold kills me too. I just want to curl up in my electric blanket nice and warm till spring! I don't know why the cold affects us so much but I know others here have complained of the same thing. We're all in the same boat it seems.
Topic: RE: The cold weather is killing me!
I hear ya on the cold taking a rough toll. Its AWFUL! We are having the worst cold snap we have had here in years, and of course, I am between meds basically! I had to stop my Savella about a month ago, and was just started on Cymbalta at SO low a dose just a week ago- so I am in SO much pain... How do people get pain meds for Fibro? My Dr is totally against them, other than Motrin, which as we all know- does NOTHING! Ugh :( I am so tired of hurting, not sleeping, and being foggy...
Topic: Hi all, Im new!
Hi, Im Emily (30), mommy to Ava (20 months) and married to my best friend Les. Im in the pre-op testing stages for RNY. I have Fibro, recent diagnosis. Im not 100% convinced thats really whats going on with me though. Im praying that its just because Im fat that Im tired and sore all the darn time. But, only time will tell. In any case, I was SO glad to see this forum here! I have SO many questions about meds post-op. I am FINALLY just having some relief after 5+ years of suffering (to the point I was severely depressed and homebound) and I cant bear the thought of not being able to take my meds.
I am on Cymbalta (after a strange reaction to Savella, which I LOVED!) 30mg per day. It does nothing.
Im also on Fiorocet and Phenergan for migraines, since I cant take the tricyclic migraine meds due to Seratonin Syndrome risk from the Cymbalta.
I also still take a MONSTER of a prenatal vitamin.
Can anyone offer some insight? Also, how did your pain/exhaustion react to surgery? Better, worse, unchanged?
I am on Cymbalta (after a strange reaction to Savella, which I LOVED!) 30mg per day. It does nothing.
Im also on Fiorocet and Phenergan for migraines, since I cant take the tricyclic migraine meds due to Seratonin Syndrome risk from the Cymbalta.
I also still take a MONSTER of a prenatal vitamin.
Can anyone offer some insight? Also, how did your pain/exhaustion react to surgery? Better, worse, unchanged?
Topic: RE: Savella
I was on Savella for about 2 months. The first month I was sick sick sick- when they say nausea and upset stomach are a side effect- they didnt lie. I lost about 15lbs in that month (and Im still pro-op!). I couldnt eat... The second month, I felt much better in the tummy. As for helping the Fibro- the pain was SIGNIFICANTLY better, like night and day. I was also sleeping better at night. However... I was exhausted during the day too! Worse than Fibro fog and fatigue. I could barely get out of bed some mornings I was so tired. Ive never been like that! So, I had to stop it. My 20 month old daughter wasnt a fan of mommy in bed :( The Dr did say that sleepiness is a VERY rare side effect though. I wish I hadnt had it, because other than being tired, I hadnt felt that pain free and balanced in a LONG time! I am on Cymbalta now, just started it, at a very low dose. Not a fan so far...
Topic: The cold weather is killing me!
I have FM and OA, along with pinched SI nerves. I am going next week for a radio-frequency ablation procedure on my SI nerves.
I take Morphine Sulfate ER 15mg 2x day and MS IR 15mg for breakthrough.
Since the temps have dropped, I can not find relief!!
Today I was given samples of Zanaflex for muscle spasms so far not much relief.
I can't take NSAIDS due to stomach bleeding and irritation.
Is anyone else affected so harshly by the cold? Or am I S.O.L?
Sidenote: I'm starting to gain my weight back because my Dr. suggested that exercise is aggravating my nerves...UGH
I take Morphine Sulfate ER 15mg 2x day and MS IR 15mg for breakthrough.
Since the temps have dropped, I can not find relief!!
Today I was given samples of Zanaflex for muscle spasms so far not much relief.
I can't take NSAIDS due to stomach bleeding and irritation.
Is anyone else affected so harshly by the cold? Or am I S.O.L?
Sidenote: I'm starting to gain my weight back because my Dr. suggested that exercise is aggravating my nerves...UGH
"Don't sweat the petty things- and don't pet the sweaty things."
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