Recent Posts

Hislady
on 1/19/10 12:47 pm - Vancouver, WA
Topic: RE: Cymbalta
I haven't found anything that helps with the fatigue and fog. I have to make lists alot and keep a daily calender of everything I need to do, it does help keep me on time, but I'm still tired all the time. Your dose is pretty low so if I were you I'd let your doc know it's not helping and see if he'll up your dose. I also found that dividing the dose and taking half in the morning and half at night time helped keep a more even dose going on. There is also a drug called Savella that lots of folks have had quite a bit of success with, so if the cymblta doesn't work with a bigger dose you might try that. I also take 30mg of morphine and 5mg of oxycodone for arthritis pain, sometimes narcotics are the only thing that works, tho with a little one you may not want to use them. Good luck and do come back and stay in touch with us.
(deactivated member)
on 1/19/10 11:24 am
Topic: Cymbalta
 What are your reviews on this?  Ive been taking 30mg once per day (at bedtime) for 3 weeks now.  NO improvement at all, whatsoever.  Im in so much pain, cant sleep, am exhausted during the day and just dont want to get out of bed (unfortunately, my 21 month old feels differently).  So, Id like to hear what you all think of Cymbalta (its the only med Im on) and what your dosage is.  

Also- is there anything you have found that helps with the exhaustion and fog?  Im SO out of it 99% of the time :(  I was praying for something for the exhaustion and pain- and so far, nothing Ive tried has helped either- and in fact, they have made me MORE tired and lethargic.  Ugh.  Please tell me there is something out there!  Ah, also, I cant take Lyrica due to a clotting issue- so thats not an option...
MainePam
on 1/19/10 6:12 am - Bucksport, ME
Topic: RE: So much FM with RNY? Why, why, why??
Renee,
Welcome to the board. I was diag way before surgery. But I am wondering if it is because people that have the surgery are people that pay attention to their bodies and would notice symptoms more than others.
Just a thought. I take 3 vicoden's a day, 3-4 fexeril, sleep med's at night. Wow I hate to take the pain med's but couldn't do without them either.
keep us posted how you are doing.
gentle hugs your way,
Pam
Hislady
on 1/18/10 12:24 pm - Vancouver, WA
Topic: RE: So much FM with RNY? Why, why, why??
I don't know that there is any connection except that stress, physical or mental can trigger it. Most of us were diagnosed long before our surgeries and we've had different types of surgeries. I don't think it's more prevelant than in the past it's just that it's finally being recognized as a disease where it wasn't in the past. The more it is studied the more they are able to learn and come up with effective meds. There is no one med that treats everyone, just like we all have different pain and symptoms we all have different meds. Attitude makes a big difference too, if you look at it as the worst thing ever then that's what it will be. We all have to learn to make friends with the pain and learn how to lessen it as best we can. Since it is going to be here for the rest of our lives we'd better learn to be our own best advocate and learn to make the best of our lives such as they are.
I've found the best place for effective treatment is a pain clinic, they specialize in all kinds of pain. Best of luck to you and hope you can find a good doc!
Nay7529
on 1/18/10 11:11 am - Westbury, NY
Topic: So much FM with RNY? Why, why, why??
Does anyone know why there is so much fibro with gastric bypass patients. I had my surgery in 2004 and ever since my surgery I have what they would eventually diagnose as fm. It sucks. I have been on so many meds, neurontin, lyrica, so many opiates that you would not believe, and so many more meds it is ridiculous. The pain neer stops no matter what and it is such a helpless situation to be in. I would like to know how many of you that are diagnosed with fm, were diagnosed AFTER surgery. Is this something that is more prevalent AFTER surgery, I had no signs or symptoms before and have been through every test possible with no other diagnosis. Please let me know out there, I currently take Cymbalta which sucks and something to sleep through the pain at night. No pain meds right now. Looking for a new doc. If anyone knows a doc that specializes in fm on long island (ny) pelase let me know. I've seen so many docs, whats one more right? Hope everyone is well and someone has some insight to a different treatment plan for me.  Thanks!!  ~Renee
graciesmommie
on 1/18/10 3:09 am
Topic: So far no meds since day before surgery
I had been on cymbalta for years.There was so much contraversy over how to take my meds that I just decided it was best to not take it.  I didn't realize how bad I felt taking all that medication until now. I am no longer on any meds and I feel great!. I have had a few days hear and there that I was so stiff, achy and sore I wasn't sure if I was going to be able to hold out but I have made it. I pray I can continue. I really don't want to have to take any meds at all. I have had Fibro for at least 9yrs. I know surgery has definately helped relieve some of my joint pain. The weight was definately not helping that situation. I pray that I can continue to keep my flares to a minimum. Exercise has helped as well. Guess time will tell. Danielle
Nothing tastes as good as this feels!                                                                     
Christine M.
on 1/17/10 11:11 am - GA
Topic: RE: The cold weather is killing me!
 If anything my pain is worse after my weight loss--the cold is so much worse--the fog is worse. I have now adjusted to the weight loss--the horrible lower and middle back pain has 'balanced' out. I cannot believe how bad the fatigue is considering I have 100 lbs. less of me to drag about. Would I do this surgery again? YES YES YES. My body is so much more comfortable and I can move around so much more easily. I too had expected to be 'better' and am very disappointed that I am not but life is easier in many ways and shopping for jeans is now a blast. It was still worth it. This years unusually cold temps. have made the pain and fatigue and fog the worst I have ever had (quality of life is poor) BUT it was still worth it. Christine

 

  

cigquitter
on 1/17/10 5:07 am - Fergus, Canada
Topic: RE: The cold weather is killing me!
Hey all.  I am new and have an appointment with a surgeon on Tues. 19th.  Also have Chronic Fatigue and Fibro since 1987.  Don't work anymore as an R.N.  I do go to aqua fit x3 weekly.  Not a pretty pix but it is the only place that I literally don't hurt.  I put on my aqua belt and just hang there before and after fitness class.  Doesn't mean I don't hurt later but I earned this pain which somehow makes it easier to take.  I also hurt much more in the cold weather and I live outside Toronto, Canada....the great white north.  43 degrees sounds balmy to me.  On the other hand I can't take too much heat.  Hot tubs make my muscles spasm.  Course I am menopausal so I can keep myself pretty warm.!! :-)  I have put on most of my excess weight in the last four years and have been more sore.  Hoping weight loss will help some.  take care all.  LAGLASS...try aquafit if you can.....  Arthritis classes here are usually held in a much warmer, shoulder height pool and believe me, here at least, no one has much to brag about body wise as most in my class are in 80's.
OregonGal
on 1/16/10 12:52 pm - Beaverton, OR
Topic: RE: Has anyone had a radiofrequency ablation?
Sounds similar to the cervical denervation I've had done twice on a nerve in my neck.  I was in a rear-ended in the fall of 2008 and since I still had a burning, red hot poker-type sensation, I had the nerve burned in March 2009.  It held up until about November - I waited and had it done again a couple of weeks ago.  In the beginning, I was told that the nerve would grow back any time after 6 months and that I may need it again.  After the 2nd one, the doc told me that she rarely has to do it a third time.  I don't know how similar the cervical nerve is to the spinal nerve, but it seems like it may be similar.

Worst part for me was that even though I was rear-ended, I couldn't get my ins. to pay for either procedure - they blamed it on the fibro!  Got an attorney to try and recover at least some of my medical bills.

laglass1996
on 1/16/10 10:09 am
Topic: RE: Has anyone had a radiofrequency ablation?
So far, so good. RFA consisted of two needles being inserted into the disc area and electricity being applied to cauterize the nerves.
I was given a shot of Demerol prior to the procedure. I had two disc done and while it was uncomfortable, it was not unbearable.
Each day my pain is lessening, which is great because I have to have my SI level done next.

My Dr. has continued with my previous meds and now added Physical Therapy with a PT that specializes in FM and DDD.

I hope it will just get better.
 

 "Don't sweat the petty things- and don't pet the sweaty things."


 

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