Usually when I have a flare-up, I just feel very exhausted and a hey all over. Today (and late last night) not only am I feeling that but my nerves feel like they are on fire. I used to get this in my legs and feet and was dx with periphial neuropathy. I have never had this feeling all over, including my entire face. Has anyone else had this symptom as a Fibro flare? What do you do for it? I'm already on Neurontin but only take 1500 mg and know that can be increased which I will talk to my doc later this week about increasing. 

Any information/thoughts/ideas would be greatly appreciated.

I was diagnosed with Fibro in the sixth grade.  After years of attempting to live with it, I've come to believe that Fibro is affected by hormones.  My pregnancies have always either made it better or made it excruciating--no happy medium.  On set of puberty was when it was originally began.  When I've been very hormonal it's always been a huge flare. 

 

I wish you luck in finding what works well for you.  It seems no two fibro patients respond the same.  For me it's been Cymbalta, Tramodol, Lyrica, & Wellbutrin and I've finally have a head on my shoulders, good days, and starting to feel like I have a life--and then I had WLS but that's not what we're discussing.

Yes, the fatigue is frustrating with FMS.  I will have a great day and over do things so then have two or three down days.  My brain still wants to do all the things that my body will not allow.   I gained wt partially due to having FMS because I became less active after messing up my feet and knees.  Next came this aching all over that was diagnosed as FMS.  I didn't expect to be free of the symptoms with wt loss since it started prior to the gain.   However, I am doing much better because the inflammation isn't as bad now with a normal wt.   I also notice that I feel better since surgery because I don't eat as much sugar.  I'd read sugar caused more aching in FMS patients so perhaps for me it is true.

I use Tramadol for arthritis pain in the knee and FMS.  I did get a lot of relief with wt loss but still have to take this medication at night to sleep or when I travel.  A friend saw a lotion called Two Old Goats and got it for me and thus far it does seem to offer some relief when rubbed into my joints.  I just ordered more online.  There is one for FMS/Arthritis.  I'll know after a few weeks if it is really working or not. 

Hello Fibro in Columbus, Ohio,

My name is Dawn and I live in Powell, Ohio. I too suffer from what your husband has. I know his pain and his frustration. Its the worst disease to have, because doctors don't understand the disease nor do they know how to treat it. Often times a doctor who doesn't have the knowledge will keep giving you medications one after the other hoping something will work.  Well it doesn't work that way.

I did a great deal of searching to find my doctor and I would like to share his information with you. His name is Charles Lapp. He is in Charlotte NC. I know it sounds like a long ways a way but he is the best.  Its only 6.5 hours away by car. We have flown there but I don't tolerate flying because I have to use a wheel chair to get around if its any distance and I have an orthostatic intolerance.  I don;t drive but my husband will be driving me down there on my next appointment.  And you could possibly drive that far if you can make your husband as comfortable and pain free as possible. Please Google Charles Lapp MD Hunter Hopkins Center. I started seeing Dr. Lapp about 3 years ago and he knows how to treat Fibromyalgia and he has the UTMOST compassion. 

Just to share a bit about myself...I have severe Fibro/Chronic fatigue and I am very much over weight. I had the lap band with no success so looking to have some other sort of revision surgery.

Feel free to email me back.

Good luck and I wish you both the best.

Dawn