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bellalynacy
on 1/17/15 2:27 am
Topic: My experience with Pain management/Fibro and Spine issues-Docs do not understand! I am done!

I need to write this to give you all a warning about Pain managent doctors who do NOT understand what happens when you have RNY and absorption issues.

 

First of all, trying to find a doctor who is sympathetic to you with Fibro is tough.  I had one pain management Doctor tell me he didn't believe in Fibro, just another disease doctors lable you with when they don't know what is wrong with you.  So, I went to another one. This jerk, even when I told him about my surgery and that sometimes I couldn't last six hours with pain meds, instead of letting me taking them sooner he would up the dose. So, after 6 months of seeing him he upped my meds to 15 mg of oxcontin every six hours and a 75mcg fentanly patch.  Then, he was giving me epidurals in my back for numerous spine issues.

 

In Nov, I had to go to the ER after one of his shots.  I get a letter that he let dismissed me because I went to the ER.  I called before I went, and at the ER they told me the epidural inflamed a bulging disk in my thoracic spine.

 

So on Dec 13, I took the patch off and threw the pain pills away.  Guess what? After three years of being on some kind of pain medication I went through horrible withdrawals for a month.  I can not begin to tell you what I went through alone with no one to turn to.  So, I am writing this to warn you.

Bella Lunacy

Doingrightin2015
on 1/16/15 10:04 pm
RNY on 03/10/15
Topic: RE: Anyone out there have had an RNY, and a hysterectomy and had problem with HRT malabsorption?

I'm not sure if it has an issue 9 years out with malabsortion However, if it does they do have a hormone patch you could get and wear that is absorbed thru your skin.

Doingitright2015

HW in life 282 HW265 at start SW 244 CW170

 

 

 

 

 

 

Hislady
on 12/29/14 8:21 am - Vancouver, WA
Topic: RE: Finally! Effective pain management.

Well congrats to you, it isn't often we hear good news on the fibro forum. I figure whatever works is great!! You certainly can't go wrong with accupuncture. Hope this continues to work long term for you, what a blessing. Thank you for sharing, it will give others another option to look at!

JRDD
on 12/28/14 6:11 pm
Topic: Finally! Effective pain management.

FYI.  After years of fighting and progressively losing more and more ground in the pain management battle with fibromyalgia, I desperately tried acupuncture AND IT IS WORKING!  I am totally off narcotics and feeling better than I have in years.  I guess there are many types of acupuncture and the one that is working for me is Classic 5 Element Acupuncture in the Worsley Tradition.  I also had good results with John F Barnes style Myofascial Release therapy years ago, but then I moved and have not had good results with the kind the therapists practice here.

JRDD
on 12/28/14 6:01 pm
Topic: RE: How do you get up to exercise?

I fought depression for years, tried all kinds of meds to no avail.  Then my doc put me on Savella for fibro and my depression evaporated, it doesn't do jack for my fibro, but is great for the depression.  I have also fought the "how do I get myself to exercise" demon for years as well.  I had all but given up, but everyone kept nagging me about it and my doc really wanted me to try water exercise (not swimming, water aerobics).  I finally did it and it is awesome.  The pool I use is a heated sal****er pool at the local YMCA.  The people in my class are so nice and the weightlessness of being in the water is wonderful and water time is fibro pain free time for me.  So I actually look forward to going.  Keep trying different exercise options until you find one that works best for you.

Nancy
on 12/17/14 11:17 pm - Kasson, MN
Topic: RE: X-Post - I've got a date with plastic surgeon!!!!

I had the tummy done.  I was out in 24 hours and u just have to watch what is going on with fever and stuff.  Just make sure they do not take out the drains to soon.  If you are removing 25ml of fluid still u should leave them in.  What happens if that fluid builds up it will go out of the weakest part of your wound.  That is what happened to me.

dveryblessed
on 12/12/14 7:38 pm
Topic: RE: Diagnosed Three years ago and STILL can't find a good pain management DOC

Hi, has the Cymbalta caused you to gain any weight?

 

 

forrealwoman
on 10/14/14 6:26 am - Nashville, TN
Topic: RE: Green Rubbing Alcohol Baths?

it does not burn and it is sooooo soothing and relaxing.  And I have fibro also.  I do know that for sore, aching muscles it has helped me. I usually pour half a bottle into a full tub of bath water and just sit back.  Instead of Calgon, I just ohh greehol take me away!!! And it does gives me that relief I am looking for.   Has never burned me .

Roni W.
on 8/5/14 8:50 am - Forty Fort, PA
Topic: RE: Had VSG Nov 2012...newly diagnosed with FM....meds??

I get side effects from almost all of the Fibro meds, or the common meds used for Fibro pain. Gabapentin was awful, I felt like a zombie! And Lyrica and Cymbalta both made my depression worse. I get good relief from just old fashioned pain medications! I took MS Contin for years with great effect, but since they can't be crushed, when I had my RNY they switched me to Methadone, another narcotic pain med. It isn't "long acting" per se, but it has an extremely long half life (the amount of time the drug stays active in your body), so has the same effect as a long acting med, but can be crushed.

It was so effective that even after I could take whole pills again, I stayed on the Methadone.

Personally, I can't function as I need to, because of my pain level, unless I am properly medicated. It allows me to have a somewhat normal life. After dealing with Fibro for 15 years, that's about as good as I can ask for!

Nothing ever takes the pain away, but there are many meds that can make it bearable.

Keep after your doctor to explore every avenue if your pain treatment isn't working for you! With some time and trial you should be able to find something that helps.

As far as keeping it natural, good luck! You will come to a point where you may have to choose between natural, and living your life in pain......or chemical and controlling your pain. Good luck whatever you choose!

 

Roni in PA :)
"Those hairline cracks running through me are stronger than your wholeness. Every stitch on me represents an obstacle I've overcome."
                                                    gu siorraidhbrath

        
Roni W.
on 8/5/14 8:30 am - Forty Fort, PA
Topic: RE: Diagnosed Three years ago and STILL can't find a good pain management DOC

Mary I feel for you because I know exactly what you are going through! What state are you in? I've found that there is a HUGE difference in doctors attitudes towards Fibro and also pain control, depending on the state.

I live in Pennsylvania - and to be honest, I've had better luck getting proper treatment for my pain from my primary care doctor than from any pain mgmnt. doctor! I personally believe it's because A. Pain specialists see a lot of cancer patients, surgical cases, etc. that are acute cases, and don't have as much compassion for chronic pain patients, and B. Because we don't LOOK sick! Unless a doctor truly believes in Fibro, and has compassion for their patients, it's hard for them to get past how we look.

I take Methadone for pain. Many people don't know that it is in fact a narcotic pain medication, but it's been in use for many years, and is very effective!

One thing that helps when you see a doctor is to keep a pain journal showing how often you are in pain, and how bad it is. Also, write down what you have tried that has helped your pain, and mostly, what has not helped! For instance, list all the meds you have tried, if you have tried heat, exercise, etc. That shows them that you are trying to help yourself and not just looking for pills.

I also think patients have to at times be more....assertive I guess. I see so many friends and relatives ask doctors for things, like pain meds, and as soon as the doctor says "no" they just drop the subject! You do have to be polite of course, but there's no reason you can't ask "may I ask WHY I can't be prescribed pain relief medication"? And then stress to them, how much pain you are in......"I simply cannot bear this daily pain any longer, it makes it impossible to carry out things I need to do......etc etc etc". In the end if the doctor still says no then ask for a referral to a specialist. I have said "ok if you can't help me, give me a referral to someone who can". 

It is extremely hard to find a good doctor who treats pain, but it can be done!

Good luck and message me if you have any questions!

 

Roni in PA :)
"Those hairline cracks running through me are stronger than your wholeness. Every stitch on me represents an obstacle I've overcome."
                                                    gu siorraidhbrath

        
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