Chronic fatigue syndrome and not getting enough to eat...help? X-Post

As for the food part, take it to bed.  Nibble on something (within the allowed foods list) whenever your awake.  I don't have CFS, just Fibro but I don't allow myself to stay in bed (okay so it's my husband that does the hard work of getting my butt out of bed), but once I'm up away from my bed, even if I'm exhausted I can usually stay away (may not be productive, but I'm awake). 

You may have to find your "tough" and push yourself as far as you'll go.  I'm not sure what else there is.  I've always tried to live by the do what you gotta do no matter what...granted I'm not nearly as successful as I wish I was but sometimes the can-so attitude is just what you need.

I have Fibro/CFS . You need to keep protein drinks and bars everywhere. In you car, purse, whatever it takes. The protein will give you some energy and calories. You can't continue without it. Someone will be taking care of you. You HAVE to do this. It's easy to do thus. Get you a little cooler and don't ever be without your protein drinks! I am 13 yrs out. I have kept my weight off. I try to walk 3 mikes daily but some days I just can't. And that's ok. I wish you well, please get a grip on this.

Hey Missy, sorry to hear about your troubles.  My fibro kicked into high gear in Dec of 2010 when my twins were eighteen months old, but thinking back i can see earlier signs for years.  Anyway,  I had RNY in 2005 and within a couple years I stopped most of my protein and mega vitamins and I am wondering if that awakened the beast of FMS.  My body was incapable of surviving on piddly amounts of vitamins and nutrients the malabsorption issue brought on.  As far as your sleepiness, I began taking Nuvigil 500 mg/day and i was no longer falling asleep holding my children (within an hour of waking as was my case).  I was able to function again, but after a particularly nasty stomach bug in March I was nauseous or vomiting every day and I realized it was the taste of my Nuvigil.  Only after I did a bit of research on it did i find many FMS sufferers have nausea/vomiting with some meds - the solution - for me at least was an antihistimine.  I know it sounds crazy but i spoke to the pharmacist about it and he knew exactly the one I would need for that med - it was the off brand for benadryl.  I take it every day with my morning meds and no more nausea/vomiting.    One other trick to helping your caloric intake is juicing.  it may not appeal to you but you can make these quite lovely without being bad.  Carrots are a lovely healthy sweet additive to any juice recipe.  So what it does is allow your body to get the nutrients and vitamins its needing but without taxing your body.  Your body can focus on healing instead of exerting all that energy on digestion.  This is new for me but it is wonderful and i recommend organic everything.  something else i am learning about FMS is that some people have a lower resistance to the toxins of this world and I think that is what has "created" FMS.   Well, I hope this helped you, God bless and take care - Kelly