wls and fibro

hi im new hear im in pain all the time i thought this would get better but it dont ive been on all kinds of meds and have gained weight or had side effects from all. i know loosing weight would help some. But am in real need of some one who understands all this pain. I tend to hide most of my pain from people i feel they get sick of hearing how im sick all the time. went bankrupt once from all the er visits ive let the fibro kick my butt instead of the other way around. I guess im just looking for some suport a kind word im trying to quit smoking so i can have wls and i feel this would help me some i tend to be able to get around alot better when im skinner. 

Welcome! We all know your pain, unfortunately losing weight won't help the fibro. It will help joint pain from arthritis but sorry to say the fibro is here to stay. You can't kick it's butt at best you can make friends with it. You may have good days and then awful days but it truely never goes away. You will have to learn to take advantage of your better days and rest on your bad ones. Try to find a rheumatologist or pain specialist to treat you as they are more informed about treatment than a regular doc. Come here and vent anytime someone is usually around.

around hear you have to get your doctors ok to go to any other and they have sent me to a rheumatoligist he said i have fibro and need to go to my phy.. for meds this was years ago plus ive had two neroligist because they thought i had ms. one says yes the other no i get so frustrated with doctors im like a guinea pig to them . As for resting i cant rest i have a very active 20 month old so i have to push though it but my baby helps me on my bad days he gives me a reason to fight and im slowly learning not to panick when i get real bad for awhile after i had y baby couldnt leave the house because walking made the pain come and its in my chest alot so id think i was dying and call an ambulence

Oh my, a 20 month old definately takes some energy, wish I had some better advice for you. I'm fortunate that I'm 60 and mine are all grown and giving me great grand kids! Most of them live far away so I don't have to tell them no about baby sitting because I really couldn't handle that. I do enjoy visits but couldn't manage a full time stay. I hope things get a little easier for you and do come here if for nothing else but to vent to folks who understand.

HI,  I too have fibromyalgia and had WLS surgery back in 2001.  i know how you feel, the pain is incrediable and you can not really explain the pain to others because its not really in any one specific place.  My Dr has advised me that there is a corralation between fibromyalgia pain and vitamin D.  I know that we get a lot of our Vitamin D from the sub and can  also take supplements but if you are like me, you may not be absorping your vitamin D.  By  being low on VIt D you will have more pain.  My Dr put me on a really high vit d tablet and this helped with the pain, plus there is a drug called Savella, it is for Fibromyalgia and it works pretty good.   The unfortunate thing is that by losing weight it will not help with the pain from Fibromyalgia. Please make sure that  your Dr know that you have this issue and also the WLS so that they can properly eveluate  you.  Good Luck

thank you ive tried sevella unfortently i dont have good insurence and it is way to exspensive for me all the meds that work good cost me a 200 a month i just got approved for medacare but still high physcription costs it sucks i have tried vitimin d im going to start taking it more regularrly see if it helps thanks for advice i feel i have to take this in my own hands because all the doctors in mich are lost with me

If the savella worked for you talk to your pharmacist and see if the manufacturer has a plan for people who can't afford the regular price, many of them do. My mom was able to get a very expensive drug for her urinary problem for free because she was low income. It's worth checking out. Good luck!

If the Savella worked to lesson the pain of the Fibromyalgia then I would  talk to my Dr and see if he can give you samples and please contact the manufacturer because they do have a program for people who can not afford the medicine. It might not cover the entire expense but it will help.  As I read over your other post you state that the Dr also thought you had MS, if you have this on top of the fibro, then the Dr will need to give you another drug to control the MS.  I know that my original testing for MS was inconculsive so they did it again and found that I was in the early stages.  Please ask you DR to test your vitamin D levels because if you are low on  vit D then your pain will be doubled or even tripled. Vitamin D  helps control the nerve endings that result in pain.  I would  recommend that you go back to your Dr and request that they do a complete physical and then dont let the dr just fill you up with bullS___t. Be firm with them and tell them  you want them to figure out what is going on and you need an answer now because you cant stand being in pain anymore. If you feel that your Dr will not listen to you or is not helping  you, then go to another Dr. You have the right to good competant medical care, unfortunately, sometimes you need to search for the right doctor.  I had to go through 4 different doctors before I found my angel in white.  Keep your chin up and please dont let it get you down, even though you want to just give in to it. Please dont, what pain meds do they have you on?  My Dr has me on Robaxin, Norco and Fentynal patches. I used to take Savella but the nausea was too much for me.  Now that my fibromyalgia is under control, I need to learn how to control the MS.  thats my next goal. Good Luck to you. 

I did change doctors and this one helps more but he allso has an athority complex i use to see one of his other doctors but he wanted to start seeing me because he wanted to watch and talk to me to make sure i wasnt selling my pain meds. witch now he knows i dont it was all kind of upsetting at first he made me feel like i was not really in pain but now that he knows me he knows im not like he thought. im on vicodin, neoritin fleril xanax and all kinds of vitimins i use to be on ms shots witch made me feel awfull but giving my self the shot every day didnt bother me as much as i thought. As for testing my first neroligist said i have progressive ms. and said i needed to start shots as soon as i had my baby. what a shock to find this out why i was 6 months pregnant then after i had my son my neroligist up and left his pracise theres only two neorolgist around hear. The secound guy gave me a lumbar punctere and that came back ok really confused now he says i dont have it so i dont know can you have ms with out it showing on a lumbar puncter all i know is im sick alot and its so unsettling

I don't know if you can have MS with having a normal spinal tape.  I am not a doctor I am just going off my own experiences.  I have had the brain MRI that was inconclusive, because I had lesions on the brain which is normal with MS but there are also lesions from Fibromyalgia so they couldnt say I had it or not.  I went to this one dr so that he could order the spinal tape, but he said he didnt want to do it because he felt that I should just live with the symptoms and continue on.  Excuse ME.  I want  to know what is wrong with me because my life has come to a screeching halt.  I used to go dancing every weekend even with the fibro but for the last two to three  years I have been maybe 3 times just because I dont feel  good, plus with my dizziness and vertigo it would not look good to fall on the dance  floor LOL.  So I am back with my Internist to find another Dr who will do the spinal tap.  One thing I do know, if  you have a defiancy in Vitamin D your fibro pain will be 10 times worse. Please have your dr test you for this, its a simple blood test and more common with people who have had WLS .  Its also another way to see if you have MS.  I just read something on this today.  I wouldnt have taken that kind of crap from my Dr. How dare he think that you are selling your meds.  I hope you have a better relationship with now then you did in the beginning. I will keep you posted on what  happens next week after my next appointment.   I do recommend that you quit smoking because that will help in making you feel better.  Always here for shoulder to bounce ideas off.  My direct email is [email protected]
Good Luck
Nancy Godina
Nana1176
GRDS 2001
Dr. Kesheshian