Update/Questions

raven81
on 4/28/11 4:35 am - Bloomington, IL
 
 
 
 
 
Update on me:still looking at lupus. did some more hardcore lupus testing in stead of just a screening plus rheumatoid arthritis, scleroderma, mixed connective tissue tests, polymyalgia rheumatica & other autoimmune/connective tissue tests, retesting all vits & minerals & thyroid plus some "poop tests" for c diff & some other bacteria & tummy issues. Results should be in next week. Lowered beta blockers because of severe hypotension (on them for migraines), added pills for fibro, adjusted migraine meds. Back in 3 weeks.  Doc was concerned about dehydration due to the amount of diarrhea I have been having and said no amount of Powerade type drink was going to replace what I was losing in electrolytes and it was probably making the hypotension worse.  I'm under strict orders to head to the ER at the first signs of dehydration or if the diarrhea continues even with the meds they are giving me (they are suppose to call it in I don't know what it will be yet).  My resting heart rate is in the 40's and when I stand up my BP drops to 80/60.  So that's been my last few days!
Instead of Lyrica they put me on Neurontin.  Anyone here tried that before?  I'm starting out on 300 mg three times a day.  I also take Topamax 50 mg twice a day.  Maybe I should just list my meds?

PRN (taken as needed for migraines)
Treximet 85-500 mg & Compazine 10 mg & Benadryl 50 mg taken together (this is a new treatment for me and I am still waiting on the prior auth to go through on the Treximet)
**OR**
Fioricet 50-325-40mg

Daily meds
All Vits and supplements plus Digestive Advantage IBS Formula Probiotics
Neurontin 300 mg 3x a day (for fibro)
Inderal 40 mg 2x a day (beta blocker for migraines- just reduced from 80 mg 2x a day)
Flexeril 10 mg at night for muscle pain
Prozac 20 mg
Topamax 50 mg 2x a day (for migraines)
Jolivette (birth control for migraines)
Ritalin 10 mg 3x a day (for sleep disorder- delayed phase sleep disorder)
Singular 10 mg (allergies)


I also have Vicodin from my surgeons office that I take when I need it from my stomach pain.  My stomach narrowed and I was in pain for 5 months and couldn't eat solid food and could just eat mushy foods.  After CT scans and GI scans and scopes the only thing he could see was I had some narrowing in the bottom of my stomach but he said that couldn't be my problem and dismissed it.  He finally did an endoscopy and stretched my stomach 2 weeks ago.  It has been much easier to eat since then.  I need to go in for my follow up with him though at this point I don't have much faith in his aftercare abilities.  He did tell my friend that took me to the procedure that I would need to have it done several more times before it would stay stretched out.  FUN!


Anyway- anyone have any feedback on the meds?  Or any of the tests or disorders that they are testing me for?  My mother has lupus so I am really familiar with that (I wish I wasn't).  Could it just all be the fibromyalgia causing everything to go out of whack?

www.geekmomblog.com -My Mom blog were I talk about my journey through weight loss & weight loss surgery, my kids, cupcakes, Star Wars & pretty much everything!         
Hislady
on 4/28/11 7:12 am - Vancouver, WA
I took neurontin before I got my band, couldn't swallow it after-too big. It seems to be a really good drug in that it doesn't interact with other drugs very much and you can take some pretty large doses with no problem. It worked well for me anyway. Yes fibro can cause an amazing number of symptoms and they aren't the same for everyone. Good luck hope all the testing comes up with a definate diagnosis, it's easier when you know what you are dealing with.
kahlana
on 5/6/11 9:56 am, edited 5/6/11 9:58 am - Sitka, AK
VSG on 01/26/12
I have tried the neurotinin and ended up not being able to take it because it made me so stoned I couldn't function. Since i have to work it didn't work out for me. Wish I could have reacted better to it though because there for the time I was on it (about 2 weeks I think) I had no pain whatsoever. I miss not being in pain.
ETA: I have a really high sensitivity level for drugs so finding something that doesn't mess me up is kind of difficult sometimes.
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