Not Alone!!

(deactivated member)
on 2/14/11 3:12 pm - Canada
I'm new to this group; but glad to know that I am not alone! Hope to find out more about doctors, med.s and coping with fibromyalgia. I can hardly get through working anymore and need to find out about disabilities available. Living in alot of pain and although family and friends try to understand; they really don't see the pain as it were a visable wound. My doctor is no good and trying to find another one. I know I need more tests done. I was told the waiting list to see a Rhuematologitst is 2 yrs. My doctor said it would do her no good to write a letter for me and my symptoms; as I have not been diagnosed with fibromyalgia yet; but the doctor is the one treated me for it!! Don't get it. 
MainePam
on 2/14/11 9:09 pm - Bucksport, ME
Welcome to the group. Two years is a loooooong time to wait.
Yes be assured when you say pain here we know exactly what you mean...

Pam
(deactivated member)
on 2/15/11 12:53 am - Canada
 Thanks Pam! I know I've probably had this for seven years now and had to give up jobs to take lesser physical jobs; but of course that means lesser wages. Its hard to deal with the fact that a person used to be so strong and now cannot do most things. Hopefully I can make good friends here and learn and share stories!
Hislady
on 2/15/11 7:08 am - Vancouver, WA
Welcome! You can be assured we DO know how you feel, our pain is real. I hope somehow you can get in to the rheum. earlier that's a terribly long time to wait. If you have any questions feel free to ask, we'll gladly help if we can.
(deactivated member)
on 2/15/11 11:37 am - Canada
 Thank you. I am in process of looking for another doctor; as mine doesn't seem to understand much about fibromyalgia..It was a trip to emergency room that got the diagnosis from a resident student. Thank goodness for that; I thought I was going crazy! lol
Anukis
on 2/15/11 11:30 am - Edmonton, Canada
Hello,
I've fairly new here too, but welcome! 
(deactivated member)
on 2/15/11 11:40 am - Canada
 Thank you! Hello to you as well; Anukis! Maybe we will learn things together in this group. It's really frusterating to live with this.
misshonesty
on 2/15/11 4:52 pm, edited 2/15/11 4:53 pm - MO
Sandra, most Dr's don't understand Fibro, however, I have been told the best way to get social security, is to see a Psychiatrists or counselor. I'm serious they understand how hard Fibro is to deal with. Goodluck, B
(deactivated member)
on 2/18/11 3:00 pm - Canada
 Thank you misshonesty; I have seen a couple of counselors in past 7 years for depression as well as having a family member with years of some form of depression or possibly bipolar diorder. I never stuck to just one counselor only went for advise. It has been really a major stress and continues to be. I have a goal to help this family member to deal with their disorder; so that I will finally find some peace in my life. Its extremely hard to get through each day without feeling like I'm going to collapse. Still trying to work my shifts when my mind is always in turmoil. I know that stress is a major factor on health and want so desperately for it to stop; because I know that I am getting more sick than anyone around me knows. I want to start taking better care of  myself; so that I can continue to help this person; but maybe never will succeed unless they can realize what is wrong. I guess that is why I went searching for forums such as this. 
Redheaded_Furie
on 2/16/11 2:43 am - FL
Hi Sandra,

I don't have Fibro, but one of my best friends does have it, so I'm here trying help her all I can. She doesn't post, but I share with her all I've learned so far. She also had WLS in Jan, which is another reason I'm here as well.

These ladies are sooo insightful, I've learned a ton of stuff already.

Shauna
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