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Hi! I had wls and have Fibro also. I have been dealing with this disease for over 20 years. My doctor sent me to many specialist for the horrible headaches and bodyaches. I was diagnosed with Rheumatoid Arthritis, and Lupus. The Fibro was diagnosed later after nothing helped me with the "sick spells". Sick spells consisted of headaches that turned to throwiing up my guts all the way to irregular heart beats which landed me in the hospital and on blood thinners! I have since gotten off of the thinners but still have the headaches. I had the surgery, got myself into classes in the local pool and took up scrapebooking, gardening and other things to fill my day. So far, I've chosen not to take the meds that have been prescribed (Lyrica). I mainly take Ultram when needed because with the surgery I got off so many meds that going back that route is a problem for me. I suppose that I will have to take those drugs in earnest at some point but for now I feel good most days and ride out the bad days with a few painkillers....Thanks for starting this post!
"The task ahead of us is never as great as the power behind us." 
Hi, don't know where to start. I don't know if I have fibro. My doctor suggested it but I really don't have a lot of pain. My main problem is terrible fatigue. I didn't realize how long I have had it but I saw on my online record that I was first seen for it in 2008. I thought it was 2009. Anyway, I have had every test there is to have. I had WLS in 2002 and it was a very malabsorptive procedure so after all the other tests were negative I blamed the surgery. I regained most of the weight I lost and I assumed, incorrectly, that if I were absorbing calories I was absorbing vitamins, too, so I wasn't very dilligent with supplements. I did have regular labwork but they never really did really a lot of labs. I was very low in D and my ferritin was 7 so I had an iron infusion but that didn't help. I got to the point that I went back to my original surgeon and begged for a reversal. I was also having problems with diarrhea, gas and bloating and was in pain from that every day. He agreed to do a revision to lengthen my common channel right away and also told me he would give me a pouch even though he said I might not lose any weight. At that point all I wanted was to feel better and not gain any more weight so I agreed.
I had the revision in July and while I have lost most of my excess weight I still have problems with fatigue. My doctors don't really seem to have any answers. They just tell me to get some exercise. I can barely walk to the kitchen and they want me to exercise. I was in tears the last time I went trying to get my doctor to understand how bad it is.
I do have some good days so that gives me hope but most of the time I spend at home trying to get the energy to take a shower. That is a big accomplishment for me. Last week felt good enough to get some laundry done and do some housework and visit some friends but the last few days I have been feeling terrible again.
I am afraid of being diagnosed with chronic fatigue syndrome because that just feels so hopeless. I really don't want to live this way. I have 4 beautiful grandbabies I want to spend time with but it is so hard because I am so tired all the time.
Right now I am taking Cymbalta and Wellbutrin. I don't feel terribly depressed. I mean I am depressed about not being able to function but I don't think depression is the cause of my fatigue. I am also going through menopause and i know that can cause fatigue,too.
I really wonder if my WLS didn't affect my immune system. About 6 or 7 years ago I had an auto immune disorder called SIBO, small intestine bacterial overgrowth, where the toxins from the bacteria caused reactive arthritis and a rash. I was treated for that and fully recovered but the fatigue I feel now is exactly like the fatigue I felt when I had that. I wonder if there isn't some residual affect from that.
Anyway, I don't know what my problem is. Lately I have been having more pain. I wake up aching all over. It kind of feels like you do when you have a flu. It might be because I have been trying to exercise. I got a XL Glider, which is like a Gazelle and I try to use it as much as I can. I managed to do it for 10 minutes in a row today. My doctors seem to think that if I just exercised I would have energy and I am so desperate to feel better I will try anything even though it feels like I am climbing a mountain.
I read all of your stories and it seems like you are all going through the same kind of things, if not with the pain then with the fatigue. I don't know how you can manage to go to work or even function. I have been on Social Security for a while because of depression and anxiety. I was working part time from home for about 8 years but I was laid off in 2009 and I don't see how I could possibly hold down a job now with the way I feel even though we are really struggling financially. It just makes me feel worse that I can't be productive and take care of my kids. I have 5 children, all grown except my 15 year old daughter. Her and my 19 year old live with me right now.
I had the revision in July and while I have lost most of my excess weight I still have problems with fatigue. My doctors don't really seem to have any answers. They just tell me to get some exercise. I can barely walk to the kitchen and they want me to exercise. I was in tears the last time I went trying to get my doctor to understand how bad it is.
I do have some good days so that gives me hope but most of the time I spend at home trying to get the energy to take a shower. That is a big accomplishment for me. Last week felt good enough to get some laundry done and do some housework and visit some friends but the last few days I have been feeling terrible again.
I am afraid of being diagnosed with chronic fatigue syndrome because that just feels so hopeless. I really don't want to live this way. I have 4 beautiful grandbabies I want to spend time with but it is so hard because I am so tired all the time.
Right now I am taking Cymbalta and Wellbutrin. I don't feel terribly depressed. I mean I am depressed about not being able to function but I don't think depression is the cause of my fatigue. I am also going through menopause and i know that can cause fatigue,too.
I really wonder if my WLS didn't affect my immune system. About 6 or 7 years ago I had an auto immune disorder called SIBO, small intestine bacterial overgrowth, where the toxins from the bacteria caused reactive arthritis and a rash. I was treated for that and fully recovered but the fatigue I feel now is exactly like the fatigue I felt when I had that. I wonder if there isn't some residual affect from that.
Anyway, I don't know what my problem is. Lately I have been having more pain. I wake up aching all over. It kind of feels like you do when you have a flu. It might be because I have been trying to exercise. I got a XL Glider, which is like a Gazelle and I try to use it as much as I can. I managed to do it for 10 minutes in a row today. My doctors seem to think that if I just exercised I would have energy and I am so desperate to feel better I will try anything even though it feels like I am climbing a mountain.
I read all of your stories and it seems like you are all going through the same kind of things, if not with the pain then with the fatigue. I don't know how you can manage to go to work or even function. I have been on Social Security for a while because of depression and anxiety. I was working part time from home for about 8 years but I was laid off in 2009 and I don't see how I could possibly hold down a job now with the way I feel even though we are really struggling financially. It just makes me feel worse that I can't be productive and take care of my kids. I have 5 children, all grown except my 15 year old daughter. Her and my 19 year old live with me right now.
WLS 10/28/2002 Revision 7/23/2010
High Weight (2002) 240 Revision Weight (2010) 220 Current Weight 115.
I am Valery a lurker with FM also post RNY surgery..i pop in to read if anyone has found the "miracle" drug...
i just quit taking neurotin, because my memory loss was getting so bad...I take cymbalta, not sure if it works or not, bedtime is flexeril, tylenol with codeine for bad days, otherwise just xtra strength tylenol. since surgery i have become much more sensitive to many meds, ultrm used to be one i could take when at work and still function, since surgery i get the itchy crawlies from it, so now i just suffer in silence.
i just had a review at work, and per my supervisor my performance the past quarter is sub-par, so i have that stressinf me out, so guess what...flare up! i have always been honest with her about the FM, the fibro fog, meds etc...all that plus being just 4 months out from this surgery, i just feel she could be a bit more patient and understanding...yes i miss work from time to time, not nearly as much as i could, i make it to work, polite to co-workers, polite to customers (all while in pain) i have missed my "quota" of sales...now i fear i will get fired if i cant get the numbers up...i work for a communications company, so it involves frequent change...
anyone else have stuggles at work? problems with memory? problems with supervisors not understanding?
v.
i just quit taking neurotin, because my memory loss was getting so bad...I take cymbalta, not sure if it works or not, bedtime is flexeril, tylenol with codeine for bad days, otherwise just xtra strength tylenol. since surgery i have become much more sensitive to many meds, ultrm used to be one i could take when at work and still function, since surgery i get the itchy crawlies from it, so now i just suffer in silence.
i just had a review at work, and per my supervisor my performance the past quarter is sub-par, so i have that stressinf me out, so guess what...flare up! i have always been honest with her about the FM, the fibro fog, meds etc...all that plus being just 4 months out from this surgery, i just feel she could be a bit more patient and understanding...yes i miss work from time to time, not nearly as much as i could, i make it to work, polite to co-workers, polite to customers (all while in pain) i have missed my "quota" of sales...now i fear i will get fired if i cant get the numbers up...i work for a communications company, so it involves frequent change...
anyone else have stuggles at work? problems with memory? problems with supervisors not understanding?
v.
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