Fibromyagia and WLS?
Hello there I have not been on-line in a long time however I was just diagnosed with Fibromyagia and wonder if anyone else that is a older post op that had cosmetic surgeries has had these problems? I have scar tissue from my tummy tuck, lower body lift and breast augmentation and lift, total hysterectomy, hernia repair, gallbladder removal that have become EXTREMELY painful. My seizures are under control now as long as I keep my hypoglycemia under control and stay on seizure medication (unknown if gastric bypass related) But the pain from the fibro lumps and trigger points are extreme. I feel like I have the flu when I have bad days. I am just learning about this whole thing I thought it was something people just made up in there heads NOT TRUE. I wish Doctors understood more about it. The pain is unreal and the scar tissue is so bad. Please let me know if anyone else is struggling with Fibromyagia and if they had it prior to WLS or AFTER my Dr. said I most likely had it before but the trauma from my Life Trauma's, 320 pounds, then the multiple surgeries after, raising four kids (teens LOL) , Divorce, Single Parenting, Stress, Car Accident 15 years ago, and then the seizures and coma from my hypoglycemia, the move from CA to AR then another recent car accident that was pretty bad and had whiplash and a fractured ankle. All these things brought the fibromyagia to the forefront. Please anyone who can shed some advice or link for me. Thank you so much I wish everyone a great Thanksgiving.
My goodness you've certainly been thru the wringer haven't you?Any kind of stress can bring on fibro or cause a flare. The pain in scar tissue could be a form of neuropathy from nerve damage. I have very painful scar tissue on my feet from several foot surgeries. So far the narcotic meds I take for my arthritis keeps it under control but I think there are several drugs you can get for neuropathy, one I can think of is neurontin, you may want to ask your doc about it. Also there are several meds to help with the fibro, lyrica, cymbalta and savella. If your regular doc doesn't seem to understand try a rheumatologist or pain management clinic they are both good for treating the fibro. Good luck it can take awhile to find the right treatment.
I was diagnosed with FMS in 1997. At that time, had been having bouts of days/weeks in bed...not really pain. After moving to AZ and getting married (stressful enough), in 2002 I started having pain in my hands, mostly. The bouts of bedridden fatigue continued...
Had my open RNY in 2/2005... about a year later, WHOLE body pain set in... Had a revision 11/'08, which nearly killed me....I suffered with such severe malnutrition for a year...which also led to malabsorption of needed fat-soluble vitamins resulting in severe hemolytic anemia...and ended up having to have that reversed (along w/my appendix removed), and also a 4th surgery--gall bladder removal--12/2009, just almost a year ago. Right after this last surgery, the reversal, I have suffered with such EXCRUCIATING and debilitating pain, which has spread to my joints as well. I also am now suffering with muscle twitches/spasms when I am flaring...
These incredible flares are indeed FLU like...as you stated. Just last Sat I had another severe flare, which put me into bed for 4 days... During this time, I became even MORE depressed... I am certain it's more than FMS...at least in my mind..... I have developed, as I said, muscle twitching, as well as my tongue deviating/pushing to the R (against my teeth) inside my mouth. This is why I feel I have something more, but do not know where to turn, doctor-wise.
I am at the end of my rope, many times, and like you, am frustrated. I don't think its FROM the surgery...but, I do believe it was all exacerbated by the surgeries. I am frazzled and stressed all the time over this, and have not worked in over a year.
All I can say is, hang in there. I hang....but sometimes it's by a noose. :)
Had my open RNY in 2/2005... about a year later, WHOLE body pain set in... Had a revision 11/'08, which nearly killed me....I suffered with such severe malnutrition for a year...which also led to malabsorption of needed fat-soluble vitamins resulting in severe hemolytic anemia...and ended up having to have that reversed (along w/my appendix removed), and also a 4th surgery--gall bladder removal--12/2009, just almost a year ago. Right after this last surgery, the reversal, I have suffered with such EXCRUCIATING and debilitating pain, which has spread to my joints as well. I also am now suffering with muscle twitches/spasms when I am flaring...
These incredible flares are indeed FLU like...as you stated. Just last Sat I had another severe flare, which put me into bed for 4 days... During this time, I became even MORE depressed... I am certain it's more than FMS...at least in my mind..... I have developed, as I said, muscle twitching, as well as my tongue deviating/pushing to the R (against my teeth) inside my mouth. This is why I feel I have something more, but do not know where to turn, doctor-wise.
I am at the end of my rope, many times, and like you, am frustrated. I don't think its FROM the surgery...but, I do believe it was all exacerbated by the surgeries. I am frazzled and stressed all the time over this, and have not worked in over a year.
All I can say is, hang in there. I hang....but sometimes it's by a noose. :)
Hi there, I too haven't been on here in years. I've been more on the fibro forums lately just searching for some answers. I've always had chronic neck and shoulder pain, but in the last few years have experienced alot of pain in my hips, lower back, knees and ankles, which surprised me after losing 120 lbs and being at somewhat of a normal weight (150). I've wondered if the WLS surgery and the others that I've had (open gallbladder, 4 c-sections, yep 4 kids just like you...lol, WLS and anchor tummy tuck) have been some of the cause or at least brought more of it out! It's helpful to hear that someone else is experiencing the same thing! Good luck!
I am sorry to hear about your issues how old are your children? Do you have pain in your scar tissue? Have you joined www.MDjunction.com it is a great website. I have been taking Vit D3 and Probiotics as well as Magnesium and it seems to have helped. How long ago have you had Gastric Bypass? Do you get Fibro-fog? Memory issues? What type of medications are you on? My personal email address is [email protected] I am also on facebook Dana Dee Belden
Hi Dana,
My kids are grown now, they are 26, 23, 21 and 19, I also have four grandsons, 4, 3, 2, 1, and I'm 47! I had alot of pain in my scar tissue from my gallbladder surgery and my c-sections but when my plastic surgeon did my surgery she ended up cutting most of it out and did an incredible job so now I don't really experience much pain from it, some numbness and tingling but not much pain, so I guess I'm lucky in that respect! I'll have to check out that website, sounds good! I also take Vit D but not sure that its D3, and not sure what the difference is but I'm gonna check into it, I take Magnesium as well! I had my WLS in Jan. of 2002 and my tummy tuck in October of that same year, I'm thinking that's probably what caused the fibro to start flaring, two major surgeries in one year! I do have alot of memory issues and a sense of fog, like I can't concentrate! Work has become more difficult and I have a very stressful job! I do think that stress and lack of sleep makes my pain alot worse. I'm not too bad right now which is surprising with the holidays coming, but a couple of weeks ago I guess I had a flare and was in a lot of pain, so it comes and goes! I also thought fibro was a joke, my brother-in-law was diagnosed with it over 15 years ago and went on disability and I thought he was just a fake and playing the system, boy do I feel bad about thinking that now! Nobody really understands until they experience it themselves, its hard to explain and I feel like I'm just being a wimp sometimes and all this pain is just from getting older! That's what I'm thinking when I am like I am right now, which is sore but not in excruciting pain, than a flare hits and I'm like "damnit", this really hurts, am I really suppose to feel this bad just cause I'm 47....lol????? I try to take it one day at a time and trying to come to terms with the fact that I can't do like I used to! It was nice hearing from you and I look forward to us learning more about each other and supporting each other through this crap!! How old are your kids? I think you said teenagers, thats a battle all in itself, I remember....lol!! Do you work outside the home? Are you married? I'm in a relatively new relationship (14 months) and its hard to let him know what I'm feeling sometimes, when we first met I wasn't that bad, the fibro has gotten worse in the last 6-8 months, not sure why, maybe the stress from the job and life in itself (money issues, moving twice, family issues, etc)!! Well hope you have a great holiday season and talk to you soon!
Jenn
My kids are grown now, they are 26, 23, 21 and 19, I also have four grandsons, 4, 3, 2, 1, and I'm 47! I had alot of pain in my scar tissue from my gallbladder surgery and my c-sections but when my plastic surgeon did my surgery she ended up cutting most of it out and did an incredible job so now I don't really experience much pain from it, some numbness and tingling but not much pain, so I guess I'm lucky in that respect! I'll have to check out that website, sounds good! I also take Vit D but not sure that its D3, and not sure what the difference is but I'm gonna check into it, I take Magnesium as well! I had my WLS in Jan. of 2002 and my tummy tuck in October of that same year, I'm thinking that's probably what caused the fibro to start flaring, two major surgeries in one year! I do have alot of memory issues and a sense of fog, like I can't concentrate! Work has become more difficult and I have a very stressful job! I do think that stress and lack of sleep makes my pain alot worse. I'm not too bad right now which is surprising with the holidays coming, but a couple of weeks ago I guess I had a flare and was in a lot of pain, so it comes and goes! I also thought fibro was a joke, my brother-in-law was diagnosed with it over 15 years ago and went on disability and I thought he was just a fake and playing the system, boy do I feel bad about thinking that now! Nobody really understands until they experience it themselves, its hard to explain and I feel like I'm just being a wimp sometimes and all this pain is just from getting older! That's what I'm thinking when I am like I am right now, which is sore but not in excruciting pain, than a flare hits and I'm like "damnit", this really hurts, am I really suppose to feel this bad just cause I'm 47....lol????? I try to take it one day at a time and trying to come to terms with the fact that I can't do like I used to! It was nice hearing from you and I look forward to us learning more about each other and supporting each other through this crap!! How old are your kids? I think you said teenagers, thats a battle all in itself, I remember....lol!! Do you work outside the home? Are you married? I'm in a relatively new relationship (14 months) and its hard to let him know what I'm feeling sometimes, when we first met I wasn't that bad, the fibro has gotten worse in the last 6-8 months, not sure why, maybe the stress from the job and life in itself (money issues, moving twice, family issues, etc)!! Well hope you have a great holiday season and talk to you soon!
Jenn
Wow Jenn how I can relate to everything you are saying. As for my Children I have a Three girls 25,23,21 and a 16 year old boy only the youngest left at home. I have 6 Grandchildren (five girls, one boy) I am divorced but also in a new relationship of just over a year. I just recently started feeling better after a bad flare. I have major memory issues and get really confused when I am stressed. I feel like sometimes I am going crazy and some Doctors make you feel like it as well because they also do not understand Fibromyagia. I am sometimes harder on myself because I feel like I just need to suck it up. I am not working now that I moved from California to Arkansas I used to help run a bariatric treatment center in California from 2001 to 2006. Also look into this website www.fibromyagiatreatment.com (The fibromyagia treatment center) it has so much information as well. I have many sleep problems and I am going to have a sleep study next month I am wondering how that will go. Have a WONDERFL holiday. If you ever need any support or anyone to vent to I am here.
Always,
Dana
Always,
Dana
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