interstitial cystitis?

Does anyone here who suffers from fibromyalgia also have interstitial cystitis aka painful bladder syndrome? I do not have fibromyalgia, but I do have IC and know that they are sometimes linked. If so, how do you manage your IC? I have just been diagnosed and would like to hear others´experiences.

Thanks!

My mom had it so I'm a little aware of it, altho she had neuropathy in her lower body so didn't suffer from as much pain as you probably do. I know it was a royal pain in the arse to deal with because they always wanted to treat her for a bladder infection and the antibiotics always gave her diarreha so then she was even more miserable. I think there are drugs to treat it but as far as I know it's not really curable just treatable. Wish you good luck and maybe some of the others here will have more info for you.

Hello.  I was diagnosed with fibromyalgia several years ago.  I am under going a battery of test now to determine if I have interstitial cystitis.  IC can be treated with a course of medication and changes in diet and lifestyle.  I had not heard before that one could be linked to the other.

I have fibromyalgia, interstitial cystitis and endometriosis.  Sometimes all three of these conditions are linked.  I manage my IC with DSMO treatments.  I go to my Urologist every 4-6 weeks and have a catheter inserted with this DSMO ****tail.  It is made up of 4 liquid medications it is put into my bladder and I hold it for approximately 5 minutes then you urinate it out.  The process begins going once a week for 8 weeks then you continue to go as often as you need.  I am now able to sit through a movie.  Sit through my grad school classes as long as I go right before and after class.  I only go once or twice in the middle of the night.  I used to have to urinate every 15-20 minutes with the feeling of a constant bladder infection.  Now if I am careful and watch my diet I only have flair ups once in a while.  There are certain foods and beverages you should learn to stay away from.  You can try the IC network online.  If you have any questions don't hesitate to ask.  I wish you the best of luck...it isn't an easy medical condition to have.  None of them are...but it does get a little better when you have the right treatment. 

Wishing everyone a Healthy and Happy New Year...
Lauren

I have FMS and IC.  The doctor I went to said I am just not emptying my bladder all the way.  He suggested Kiegel exercises and gave me (I think) Elavil.  I never took it.  My regular doctor told me to take Sudafed every day.  I have seen something about the histamine effect in the literature I've read. 

I have not fully done what is needed to manage it.  I've been too busy focusing on pain in my arms from the FMS.  But, since it's allergy season, and I'm taking Sudafed, I haven't noticed my IC.  So, may be a connection...

I just got diagnosed with IC. Gluten flares me up big time. I developed this after I had surgery so wonder if there is a connection.