My dr's all said thry just plain give up

figure0156
on 10/19/10 8:35 am
well, i found out i am severly anemic that other blood counts are down but all my doctors all say they aren't the right dr to prescribe the iv infusions WTF?  i won't be back to my primary. i found another dr. I am on vicodin for breakthrough through my pain dr who i have stuck with all along, it does help some. I can do a little more, i am so grateful fo even that, thank you God.
I couldn't stomach the herbal stuff from the vitamin shop like tumeric. they made me sick. the magnesium was all that didn't. i can't stomach iron pills. they cause cramping. i have found that the seasonale birth control pill has helped my fibro. i take it so that i won't get period flare ups and now i don't. thank you all for your advice, i still continue to struggle but its nice to know i'm not alone.
Susan001
on 10/24/10 1:48 am
So sorry for your pain.  I, too have FM; was diagnosed in '95, so what I'm going to tell you comes from fifteen years of trial and error, countless doctors, numerous pills and endless days of suffering in bed feeling hopeless and misunderstood.

The only thing, and I mean ONLY thing that really helps and lasts throughout the day is regular exercise (I prefer daily walks outside, weather permitting).  When I am inactive for more that a day or two, I hurt like hell all over my body and the pain level just builds from there to the point of being intollerable.  Start out at a liesurely stroll for 15-20 minutes and build up to 30-60 minutes per day at a vigorous pace, at least 4-5 times a week.  Try not to miss more that two days in a row.  A treadmill is okay for when the weather is bad, but try to do most of your exercise outside.

I know this flies in the face of modern medicine and the drug pushers (doctors/pharmacutical companies) but it works (at least for me).  In addition to helping with my pain, It does four things very nicely:  (1) it elevates my mood and clears my mind, (2) it gives me sunshine (vitamin D) and fresh air, (3) it improves my curculation and flexibility and relieves my body stress and (4) helps me sleep better (I'm and insomniac, too).  Oh, and as an added benefit, it helps me loose weight!  Oh yeah, there are NO nasty side effects, NO worries of addiction, NO judgemental doctors to deal with and NO appointments to keep (unless you are walking your dogs like I am--they do not let me miss an "appointment").  AND IT'S FREE!

I swear to you that it is as simple as that.  I have tried all the drugs there are and suffered through all the nasty side effects of them before I gave up on doctors in disgust.  Now, I can literally feel it when I haven't been walking regularly.  I feel it in my muscles, bones, and my mood.  When the weather is cold and damp and I can't go out on my walks, I inevitably have a flare up; so, I just stay in and suffer the pain under an electric blanket with a good book; but, it is a much more tolerable level than where it was when I was on the witch doctors' magic pills.  And, besides, the sun always comes out eventually!

Please give a try for a month or so.  What have you got to loose?
Thorney
on 10/26/10 4:23 pm - Seattle, WA
I am so sorry you are having these issues with your pain, as one who suffers 24/7 I feel for you.  I wear a phentenal patch 100mgs.  It's strong, but it works.   Idon't like needing this patch, but I am grateful it's available because I need it.
    
Thorney
280/132
            
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