My dr's all said thry just plain give up
Hey you guys. Its me again. I am sure you are all sick of my whining by now. I don't know how to fight this thing. I have public aid so dr's are limited to begin with. My age works against me too. Me being only 22. I have SEVERE FIBROMYALGIA. Here is a list of what i tried and or am currently doing.
1. Rheumatologist
2. Pain management dr
3. Primary care dr
4. Chiropractor
5. Savella
6. Cymbalta
7. Neurontin (gabpentin)
8. therapy
9. physical therapy
10. Lyrica
11. Ultram (tramadol)
12. Darvocet
These are things i have tried or am currently trying. All to no avail. I have also been tested for Lupus and Arthritis. My pain is so bad, i fall, i get lost, i get chronic migraines, my hands get crippled with pain and curl up. I bathe every 10 days and its excruciating. I can't walk around. I have a child but another relative cares for my child. I do not know what to do. My dr's say there are no other treatments and no other meds and if none of the ones i am on or have been on work then thats it. There is nothing else for pain even something else that is no traditional like an arthritis drug. They all just said they are done, thats the treatment and thats how it is. I am still in so much pain. I do wonder about meds for things like arthritis even though i don't have arthritis because i would be willing to try. But no they just leave me to suffer. Everybody just says no or i don't know. Anybody been through this. I do all that is asked of me and then they come up with something else for me to go do. My last appt i was told to take Lyrica for pain and to go see my therapist for the pain. i fall and i cry. I get frustrated because they think you are a junkie but whoever said i wanted that because i didn't. I told them any medication that will help. I take so much tylenol i feel like my liver is going to crap out. I would try MS or lupus meds to see if thry would help. I am very compliant and i just want to feel better and not stay in chronic pain , cry all day. Sometimes i feel the effects but no pain relief like really sleepy or nauseated or heart plapitations or like a head cold feeling but i will still be in pain. I hate living like this. So many pills to take that aren't even partially helping the problem. I can't even think anymore or have a basic conversation.
1. Rheumatologist
2. Pain management dr
3. Primary care dr
4. Chiropractor
5. Savella
6. Cymbalta
7. Neurontin (gabpentin)
8. therapy
9. physical therapy
10. Lyrica
11. Ultram (tramadol)
12. Darvocet
These are things i have tried or am currently trying. All to no avail. I have also been tested for Lupus and Arthritis. My pain is so bad, i fall, i get lost, i get chronic migraines, my hands get crippled with pain and curl up. I bathe every 10 days and its excruciating. I can't walk around. I have a child but another relative cares for my child. I do not know what to do. My dr's say there are no other treatments and no other meds and if none of the ones i am on or have been on work then thats it. There is nothing else for pain even something else that is no traditional like an arthritis drug. They all just said they are done, thats the treatment and thats how it is. I am still in so much pain. I do wonder about meds for things like arthritis even though i don't have arthritis because i would be willing to try. But no they just leave me to suffer. Everybody just says no or i don't know. Anybody been through this. I do all that is asked of me and then they come up with something else for me to go do. My last appt i was told to take Lyrica for pain and to go see my therapist for the pain. i fall and i cry. I get frustrated because they think you are a junkie but whoever said i wanted that because i didn't. I told them any medication that will help. I take so much tylenol i feel like my liver is going to crap out. I would try MS or lupus meds to see if thry would help. I am very compliant and i just want to feel better and not stay in chronic pain , cry all day. Sometimes i feel the effects but no pain relief like really sleepy or nauseated or heart plapitations or like a head cold feeling but i will still be in pain. I hate living like this. So many pills to take that aren't even partially helping the problem. I can't even think anymore or have a basic conversation.
You just vent all you want, I just wish we had more ideas for you. Have you seen a neurologist? The falling doesn't sound so much like fibro, may******ve malfunction which can also cause lots of pain. My only other idea would be see if there is a teaching college anywhere near you that you could get help at. Sometimes they are more advanced in their thinking than regular docs. I would also encourage you to go ahead and do counceling because even if it doesn't help the pain it may help you cope with the whole situation better. I wish there was something more we could do to help, but even so feel free to come and vent anytime you need to.
So sorry you're having such a hard time. I can identify with you in so many ways. I too have severe fibro and one of the symptoms was/is falling and losing my balance and many of the symptoms you describe. I had a difficult time finding a health care team of professionals who understood my level of pain. Now, I'm diagnosed with lupus, fibro, vertigo, and other illnesses. What's helped me with my pain is morphine. It doesn't take the pain away, but takes some of the edge off. My neurologist prescribes it for me. I agree with Hislady that maybe you should consult with a neurologist.
You may have to take a break, but please don't give up. Keep looking for a doctor who will take your level of pain seriously. I've taken all the meds you've listed (and more) and none of them worked for me. Narcotics help, but doesn't take the pain or fatigue away.
Please vent as much as you need to. I believe you and I believe that your pain is real and is severe. You are in my prayers.
You may have to take a break, but please don't give up. Keep looking for a doctor who will take your level of pain seriously. I've taken all the meds you've listed (and more) and none of them worked for me. Narcotics help, but doesn't take the pain or fatigue away.
Please vent as much as you need to. I believe you and I believe that your pain is real and is severe. You are in my prayers.
My daughter is 38 but she too suffers the same as you AND they will not give her much to help. I think they are really not knowledgeable (sp) enought to know what to do. I pray that someday they will have more answers....
I do have severe arthritis and the fibro. None of the med's do away with the pain it is always there.
please come here to the site to vent and know that we all understand...
Pam
I do have severe arthritis and the fibro. None of the med's do away with the pain it is always there.
please come here to the site to vent and know that we all understand...
Pam
LMAO, but, I have to agree with likki12, I'm at my last straw too, I've tried all kinds of meds also, and I live in severe chronic pain 24/7, I've had it and am now on my last plan of action, if the Fentanyl patches don't work and give me enough relief, I will have no other choice but to refer to my "My Final plan" and that is to take some hits off of some All Natural Medicine...LOL...I'm 53 yrs. old and have to resort to this, now you know that there is relief for our pain somewhere, we just have not found the right doctor.
Come on this is the 21st century.
Good Luck Dear,
Lady Lin
Come on this is the 21st century.
Good Luck Dear,
Lady Lin
I am in a lot of pain today. I try so hard to be a mom. I fall and drop stuff and still get confused and a lot of real bad migraines. My arms have been going numb a lot lately.
I am looking into seeing a neurologist but he wants my records and my dr's aren't sending them over. I have a child that wants me to interact with her and i try but i am being stopped by my dr's not helping me in any way at all. They just do nothing. It's not going to go away and i need help. I want to work and go to college. I want to go to a grocery store and i can't do these things. I can't take my child anywhere alone. i wish there was help. i have hope but its so hard. all the therapy in the world isn't going to change my condition. i just want help. some advice, some answers, some hope. I am tired of all of these sedative meds. i don't like how they make my head feel like i have had to much cold medicine but my body bound with pain. i am young and i want to live like a person. i want to feel functional. i hate throbbing pounding pain. i hate feeling different pains and different sensations all over. numbness, sorness, throbbing aching. i have been having cold sweats too. I feel scared actually. How am i going to manage the rest of my life? The therapists office had no clue what to tell me, other then we hope your dr will help you. *sighs* i hurt and thats all i can say, once again i cry.
I am looking into seeing a neurologist but he wants my records and my dr's aren't sending them over. I have a child that wants me to interact with her and i try but i am being stopped by my dr's not helping me in any way at all. They just do nothing. It's not going to go away and i need help. I want to work and go to college. I want to go to a grocery store and i can't do these things. I can't take my child anywhere alone. i wish there was help. i have hope but its so hard. all the therapy in the world isn't going to change my condition. i just want help. some advice, some answers, some hope. I am tired of all of these sedative meds. i don't like how they make my head feel like i have had to much cold medicine but my body bound with pain. i am young and i want to live like a person. i want to feel functional. i hate throbbing pounding pain. i hate feeling different pains and different sensations all over. numbness, sorness, throbbing aching. i have been having cold sweats too. I feel scared actually. How am i going to manage the rest of my life? The therapists office had no clue what to tell me, other then we hope your dr will help you. *sighs* i hurt and thats all i can say, once again i cry.
Firts off I hope I dont scare you with my story.I hope you get to a neurologist soon.I have fibro hydrocephalus and pseudotumor cerebri..I was fine and in march of 2008 I started loosing my vision it was blurry and severe headach pain in my arms and legs and nauseua I also had sweat dripping from hands and feet.I waited and kept hoping to feel better but it got worse.I went to ER and they did a CT scan of my head.That is when they found I had ICP and it was Pseudotumor cerebri and I had to get a vp shunt to drain the fluid off my brain.
The fibro came after my surgery.
Im not trying to say whats wrong or diagnose you by any means.I just wasnt to urge you how important it is to get into a neurologist. I was hesistant about going to ER but I am glad I did it saved my life.Before that day I didnt even have a primary care I was healthy but slightly overweight.
Please feel free to message me.Also if you are having a hard time with doc and refferals, not always but sometimes a call to your insurance can help.I also belong to another support group daily strength.Hope you feel better
The fibro came after my surgery.
Im not trying to say whats wrong or diagnose you by any means.I just wasnt to urge you how important it is to get into a neurologist. I was hesistant about going to ER but I am glad I did it saved my life.Before that day I didnt even have a primary care I was healthy but slightly overweight.
Please feel free to message me.Also if you are having a hard time with doc and refferals, not always but sometimes a call to your insurance can help.I also belong to another support group daily strength.Hope you feel better
Anybody have any ideas on how to go to a grocery store? i need to shop and i have a hard time picking stuff up to put in the motorized cart. i do drive but at 22 and in severe pain my vision has also taken such a nose dive i can barely see even squinted. Its a miracle i can drive. i find the grocery store a pain staking daunting cruel punishing task. The store is frigid cold like ice freezer. I can use a motorized cart but as the pain increases the task to finish becomes nearly impossible i am usually balling through the store as i drop things trying to pick them up and have to go back and forth and all around because i am so lost. i don't know anyone who could shop for me. i am the only one with a license. Getting up and down repeatedly from the mobile cart makes it even harder. then loading it all on the convayer belt is hard as well. The things normal people take for granted i find quite hard and not easy to do. Anyone have any advice? Thank you
Hang in there hon. At most stores you can let them know that you need help shopping and they will have one of their employees go around the store with you and put your requested items in a cart. Or you can call and talk to the manager and explain your problem. If you fax them a detailed list (and maybe pay over the phone with debit card etc) they can get your groceries ready in advance and waiting for you. I have Fibro. and lupus that was dormant in April but not so sure now. I hurt all over so much for a year until I told my husband I just couldn't take it anymore. I finally found a Rhuematologist who would take cash (who knew that would be a challenge!)
and after an exam during which I almost jumped off the table and straddled him as he pushed on pressure points, he gave me medrol injections in my shoulders. I thought it would hurt but he used an ultrasound and some cold spray and I actually felt no pain. The next morning I was shouting to my husband when I realized I had gotten out of bed and to the bathroom in just a few seconds and by myself with no pain! Before I couldn't even roll over at night without waking up and being in extreme pain and when I finally got settled I would lay there crying because I was so cold and I knew it was going to hurt so much to slowly reach down to pull the covers up. Enough for now. Don't give up. We are here for you. Tammi
and after an exam during which I almost jumped off the table and straddled him as he pushed on pressure points, he gave me medrol injections in my shoulders. I thought it would hurt but he used an ultrasound and some cold spray and I actually felt no pain. The next morning I was shouting to my husband when I realized I had gotten out of bed and to the bathroom in just a few seconds and by myself with no pain! Before I couldn't even roll over at night without waking up and being in extreme pain and when I finally got settled I would lay there crying because I was so cold and I knew it was going to hurt so much to slowly reach down to pull the covers up. Enough for now. Don't give up. We are here for you. Tammi
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